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of everyone affected by epilepsy

2012 Schools’ Survey

This page is about National Epilepsy Week 2012. Find out how you can get involved in 2016.

Below are the findings of Epilepsy Action’s 2012 Schools’ Survey.

In total:

  • 185 education establishments completed the survey.
  • 214 parents of children with epilepsy completed the survey.

If you completed our survey on behalf of either your child or your school, we thank you again for helping to improve our knowledge. This information will now be used to help our work to improve the support in education for all people with epilepsy.

Key findings

  • Around 40 per cent of teachers believe that pupils with epilepsy are not achieving in line with their peers.
  • Over three quarters of schools said they had at least one child with epilepsy in their school.
    Of these, less than 40 per cent (37.7 per cent) have a written epilepsy policy and over a quarter (25.8 per cent) said they had not had epilepsy training in the last three years
  • Almost a quarter of teachers said that they did not think that their school had enough policies, procedures or resources in place to support pupils with epilepsy.
  • Epilepsy Action believes that all schools should have a written epilepsy policy, regardless of whether a child with epilepsy currently attends the school. Only a third (34.6 per cent) of teachers said their school had one. A further fifth (18.4 per cent) said they were not sure if the school had one or not.
  • Almost a third (30.2 per cent) of teachers were not aware that pupils with epilepsy may be entitled to receive extra exam provision.

From the education providers’ survey

  • Over a quarter (27.7 per cent) of schools and colleges said that pupils with epilepsy are not achieving their full potential.
  • The main barriers to achievement include:
    • Being unable to fully participate in lessons (43.4 per cent),
    • Missing school due to seizures (42.8 per cent),
    • Missing school due to appointments related to epilepsy (34 per cent),
    • and parental over protection (11 per cent).
  • Over half of teachers (50.4 per cent) said that most or some pupils with epilepsy in their school were regularly absent as a result of their epilepsy.

From the parents’ survey

  • Just over half (52.6 per cent) of parents said that their child’s school has included them fully in any discussion and debate of the support their child might need because of their epilepsy.
    However, over a quarter (29.1 per cent) felt they had only partly been included and a fifth (18.3 per cent) felt they had not been included in discussions at all
  • Two thirds (65.7 per cent) of parents don’t think their child’s school is doing everything it can to understand epilepsy and support their child.
    Nearly a quarter (24.8 per cent) of parents said they thought their child’s school was only doing a little to understand and support.
    And over one in 10 (13.1 per cent) thought the school is not doing anything to understand epilepsy and support their child.

For more information about these results, including how to receive a copy of your school’s submission, please contact Leanne Creighton. Leanne is Epilepsy Action’s Education Campaigns and Policy Officer, and can be emailed at lcreighton@epilepsy.org.uk, or called on 0113 210 8800.

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