This page is about National Epilepsy Week 2014. Find out how you can get involved in 2016.
National Epilepsy Week is over for this year. We’d like to say a huge thank you to you all for supporting the week by sharing your experiences of epilepsy, taking one of our posters to your local GP surgery or volunteering your time at one of our events.
This year, the week allowed us to tell thousands of people about epilepsy. It also gave us the opportunity to explain just how hard it can be when you first find out you have epilepsy, as well as the support Epilepsy Action provides every day to people with epilepsy.
Epilepsy Action was mentioned on the radio almost 50 times during National Epilepsy Week across 22 radio stations. Print and online media coverage also reached thousands of people. And over 725,000 people saw the stories you shared about your epilepsy diagnosis on Facebook and Twitter, bringing epilepsy to new audiences.
Thank you for your support.
Did you know that 87 people are diagnosed with epilepsy every day in the UK? This year’s National Epilepsy Week ran from 18-24 May and focused on diagnosis.
We asked what it’s really like to be diagnosed with epilepsy. We also raised awareness of epilepsy as much as we could during the week.
Here are just some of the things that happened during National Epilepsy Week:
And, don't forget, you can support people living with epilepsy and those who care for them. If you're in the UK, text DONATE NEW to 70500 to donate £3 and make a difference to someone newly diagnosed with epilepsy.
We created a special National Epilepsy Week poster for anyone to print out.
We gave away 87 Epilepsy Action memberships! As the UK’s biggest epilepsy membership association, that means that new people could join over 14,000 other members in creating a brighter future for everyone affected by the condition. As a member, you add your voice to our unique awareness-raising and campaign work. Join today
Our chief executive Phil Lee answered your questions during National Epilepsy Week. We got questions about the work we do at Epilepsy Action, our campaigns, and our thoughts on key issues affecting people with epilepsy. Watch Phil answer your questions.
Our advice and information team were on hand during National Epilepsy Week to answer your questions online.
We worked with NHS Choices and talkhealth to run an online clinic on epilepsy. You were able to hear from leading medical experts directly from the comfort of your own home, and read and engage with others' thoughts and questions on in-depth health issues.
- Get our Take Epilepsy Action first aid poster
- Get our 'Introduction to Epilepsy Action' leaflet
- Have you got the most recent edition of our magazine 'Epilepsy Today'?
- Get some of our epilepsy booklets on your Kindle
- Get a selection of our epilepsy advice and information factsheets
We announced the winners of this year’s Edwards. A total of 10 nurseries and colleges across the UK were presented with an award during National Epilepsy Week. They are all doing great things to support children and students with epilepsy throughout their education.
This National Epilepsy Week, we created a special edition ’87 everyday’ cotton shopper, to raise awareness of the 87 people diagnosed with epilepsy every day in the UK. Just £6 – the cost of each bag - could help our experts support someone newly diagnosed with epilepsy, providing advice and information when they need it most. Buy yours from our online shop today and start raising awareness everywhere you go!
As part of our commitment to supporting people recently diagnosed with epilepsy this National Epilepsy Week, we have created a new resource pack. Our special diagnosis pack is for anyone contacting our helpline for support for the first time. If you’ve just found out you have epilepsy and aren’t sure where to turn, call the Epilepsy Helpline on freephone 0808 800 5050 for advice and information, and to claim a copy of the new pack.
If you are based in the UK and have a story to tell about being diagnosed with epilepsy we’d love to hear from you. Maybe you were diagnosed with epilepsy after several years or have found that your diagnosis has had a huge impact on your life. Or perhaps you’re feeling well and want to tell others that being diagnosed with epilepsy doesn’t have to hold you back. Whatever your story or thoughts, we’d love to hear from you.
To take part and share your story, please visit the Snapshot section of our website and add your story.
We’ve created an online resource pack for health professionals. This included awareness posters and advice and information materials, including care planning documents. It also included information about our e-learning modules for both patients and health professionals. You can request a hard copy of any of the resources by emailing email@example.com
- Lancashire Telegraph - Charity reaches out with support for newly diagnosed
- Gloucestershire Echo - Epilepsy sufferer's mum speaks out about condition
- BBC Radio Bristol - Listen from around one hour 10 minutes in
- BBC Radio Tees - Listen from around one hour 50 minutes in
- BBC Radio Solent - Listen from around one hour 15 minutes in
- BBC Radio Suffolk - Listen in from around two hours nine minutes
- BBC Radio Wales - Listen in from about 29 minutes in
- Radio Aire - Leeds Man Supports National Epilepsy Week
- Oak FM - Help available through National Epilepsy Week
- Southern Reporter - Richard raises the awareness of epilepsy
- BBC Gloucestershire - Anna King speaking to Helen with her four year old son Jimi who has epilepsy
- Wilts and Gloucestershire Standard - Cirencester four-year-old Jimi Hyde takes centre stage in National Epilepsy Week