We exist to improve the lives
of everyone affected by epilepsy

National Epilepsy Week 2015

This page is about National Epilepsy Week 2015, which was the week of 17-23 May.

This National Epilepsy Week Seize Control posterwe’re continuing our work empowering people to Seize Control of their epilepsy, demand better care and access to relevant treatments. We’re also asking health professionals about any barriers they face when trying to optimise treatment for patients.

There are different ways to get involved right now - and we’d love your help.

The Seize Control campaign launched last autumn, with the aim to help people whose seizures are poorly controlled. Of the 600,000 people living with epilepsy in the UK, around 288,000 are still experiencing seizures. We estimate that with better treatment 108,000 more people could become seizure free. The campaign supports you to ask for better treatment if your seizures are not controlled.

Read people's stories:

Dani Kasam

The Daily Mirror newspaper featured the story of Cole (the little boy above) in its newspaper on the Monday of the week.

See the #epilepsyweek events happening across the UK

Comments: read the 6 comments or add yours


I have had epilepsy since 1985 and have always wanted to save lives of those that need it, I would love to donate something that I am able to but have epilepsy so I can't , this makes me very very sad, wanting to help but can't don't seem fair especially to someone that could die.

Submitted by jane yeomans on

Hi Jane

Thanks for your comment. It’s great that you want to help people.

There are many ways to help people living with epilepsy. Volunteers play a critical part of our work here at Epilepsy Action. If you would like to become involved, please see the volunteering section of our website.

Although in the UK you’re not permitted to donate blood currently, you can still donate organs. For more information you could ask at your GP practice, or visit www.organdonation.nhs.uk.


Advice & Information Team

Submitted by Sacha-Epilepsy ... on

I hope that this week your organisation will also be publicising the courageous JUSTICE FOR LB campaign, drawing attention to the death in care of a young man with epilepsy and fighting to assert the rights of people with learning disabilities and their families


Submitted by JK on

You are to be congratulated on your establishing this site.

Submitted by Douglass Collins on

I would love to be a volunteer do anything I can to help yous I lost my son at 3 year old from grand mal epilepsy I found him in bed they say times a great healer which it is but it never goes away

Submitted by Laura walker on

Dear Laura
So very sorry for your loss. Please feel free to ring the Epilepsy Action helpline on 0808 800 5050 if you would like to talk. You might also consider also contacting SUDEP Action, which helps people bereaved by epilepsy related deaths to get initial support and information. Their support team can be reached on 01235 772852.

Thank you for your interest in becoming involved. Please see epilepsy.org.uk/involved for information about the many ways you could do this. You can also email volunteering@epilepsy.org.uk to request information directly.

I hope that helps.

Kind regards
Epilepsy Action

Submitted by Sacha, Epilepsy... on