Paul is an Epilepsy Specialist nurse based in Yorkshire.
“My post is the result of many years’ campaigning by Epilepsy Action’s local group in Scarborough. And in the few months I have been in post I’ve already been busy getting to know my patients, at the hospital and in the community. I have seen 20 people so far and spoken to a lot more people on the phone. And with 87 people newly diagnosed in the UK every day there will be many more people needing support in the future.
A conversation with a nurse like me, who has access to the right information and resources, can really transform how a person feels. I’ve seen isolation, feelings of desperation and fear all turn into a sense of safety and hope. Around the country nurses like me can provide guidance and reassurance when people have been left feeling they have nowhere to turn.”
You can make sure nurses like Paul can help their patients.
“It’s our job to make the link between the hospital and the GP and make the care consistent. It’s about helping people with epilepsy lead healthier, happy lives.
But to do this we need information booklets to give to patients desperate for answers when they are first diagnosed. We need first aid leaflets people can take home and share with their families.
Resources like these cost around £100 a year – but you can’t put a price on the difference it makes to the people I care for.”
“Since being in post I have been able to introduce new guidelines for rescue medication which have helped one lady avoid being admitted to hospital. I run two clinics and am setting up two more. I also run a transition clinic for young people as they move from children’s to adult services. And I am working to improve treatment for people coming into A&E after their first seizure.