Epilepsy Surgery: A patient & carer perspective

Study title

Epilepsy Surgery: A patient & carer perspective

What’s it about?

Epilepsy medicines do not always stop seizures. Some adults and children are suitable for brain surgery. Some wait a long time and try different medicines before they are considered for surgery. Researchers are designing new studies to improve outcomes for children who are having epilepsy surgery. They would like your help to make sure that the studies are appropriate and measure the things that are important to people with epilepsy and their families.

Am I eligible to take part?

Anyone with epilepsy or who is a parent or carer of someone with epilepsy can take part. The researchers would especially like to hear from parents/carers of children with epilepsy who may have had or been considered for epilepsy surgery.

What will I have to do?

Fill in an online survey which takes 15 minutes by clicking on the link below. It can be completed on a computer, tablet or mobile phone.

How do I get involved?

Click on this link: https://forms.gle/wChikWLbr9S9XmLEA

Is there a deadline?

31 May 2022

Who is conducting the research?

This is a collaborative study between Great Ormond Street Hospital in London and the Brain Recovery Project, a patient charity based in the USA. For more information contact aswin.chari.18@ucl.ac.uk

Who has reviewed this study?

It has been reviewed by researchers at Great Ormond Street Hospital in London and independent patient advisors.