This information applies to England, Scotland and Wales. For information on claiming DLA in Northern Ireland, go to the nidirect website.
What is Disability Living Allowance (DLA)?
DLA is a benefit to help with the extra costs of looking after a child who has a disability or health condition. In England, Scotland and Wales you can only make a new claim for DLA on behalf of a child under 16. We have more information about what is happening to DLA for adults.
What will my child get?
If your child is eligible for DLA, they will get between £21.80 and £139.75 a week depending on the level of help they need. These amounts were correct in November 2016. For up-to-date information about the rates of DLA visit the government website.
Will my child get DLA?
Your child may be eligible for DLA if their epilepsy or any other disability or health condition means:
- They need more looking after than a child of the same age who doesn’t have a disability and/or
- They have difficulty getting about
They must have had these difficulties for at least 3 months and expect them to last for at least 6 months.
How do I claim DLA?
Download the claim form from the Government website or call 0345 712 3456.
Cerebra is a charity for children with neurological problems, including epilepsy. They have a free step-by-step guide to filling in the DLA claim form. The guide also has information on what to do if you are unhappy with a DLA decision. You can download it from the Cerebra website, or request a copy by calling 0800 328 1159, or emailing firstname.lastname@example.org
DLA is ending for adults who were born after 8 April 1948 and are 16 or over. It is being replaced by Personal Independence Payment (PIP). If you are 16 or over you cannot make a new claim for DLA. If you have an existing DLA claim, how the changes affect you depends on your age.
Born after 8 April 1948 and are 16 or over
If you are currently claiming DLA and are in the above age group, you can keep claiming it until the Department for Work and Pensions (DWP) writes to you to:
- Tell you when your DLA claim will end and
- Invite you to apply for PIP
Born on or before 8 April 1948
You can keep claiming DLA and will not have to apply for PIP.
If you are 65 or over and making a new claim, you may be able to claim Attendance Allowance.
DLA in Northern Ireland
PIP is gradually being introduced in Northern Ireland. This means adults between 16 and 64 will gradually be invited to claim PIP rather than DLA.
Where can I get help with benefits?
Provides a free online benefits calculator and grants search tool to help you find out what financial help you are entitled to.
Helpline: 0808 802 2000
Citizens Advice provides advice to everyone on their rights and responsibilities. Check the website or your local phonebook for details of your nearest Citizens Advice service.
Telephone advice in England: 0344 111 444
Telephone advice in Wales: 0344 77 20 20
Find your local Citizens Advice Bureau in Scotland
Find your local Citizens Advice Bureau in Northern Ireland
Contact a Family
Offers benefits advice for people with disabled children.
Helpline: 0808 808 3555
Disability Information and Advice Line services, run by and for disabled people. They may be able to refer you to someone who can help you fill out claim forms for benefits (provided there is someone in your area).
Helpline: 0808 800 3333 (to find your local group)
This website has lots of information about all the different benefits that are available.
Disability Rights UK
This website has a number of free factsheets you can download. It offers basic information about benefits, tax credits, social care and other disability-related issues for claimants and advisers.
Cerebra have a free guide which takes you through each stage of applying for Disability Living Allowance for children.
Tel: 0800 328 1159
Welfare Rights Unit
Welfare Rights Units give free advice and support on benefits. Some can also help with completing claim forms and appealing benefits decisions. Contact your local council to find out if they have a Welfare Rights Unit. To find your local council visit gov.uk/find-your-local-council
This website has lots of information about the benefits that are available in Northern Ireland.
Offers information, advice, advocacy and representation for people in Northern Ireland.
Helpline: 0800 988 2377
If you would like to see this information with references, visit the Advice and Information references section of our website. If you are unable to access the internet, please contact our Epilepsy Action Helpline freephone on 0808 800 5050.
This information has been produced under the terms of The Information Standard.
- Updated November 2016To be reviewed November 2017