We exist to improve the lives
of everyone affected by epilepsy


Useful organisations and resources

This information is for carers of people with epilepsy and a learning disability.

Useful organisations

Carers Trust
Website: carers.org

Carers Direct
Telephone: 0300 123 1053
Website: carersdirect.com

Carers UK
Helpline: 0808 808 7777
Website: carersuk.org

British Institute of Learning Disabilities
Supporting organisations which provide services for people with learning disabilities
Telephone: 0121 415 6960
Website: bild.org.uk

Supporting people with a learning disability
Helpline: 0808 808 1111
Website: mencap.org.uk

Making the country a better place for disabled people
Helpline: 0808 800 3333
Website: scope.org.uk

Easy Read publications
Website: changepeople.org/blog/december-2016/free-easy-read-resources

Foundation for people with learning disabilities
Influencing policies and services
Tel: 020 7803 1100
Website: mentalhealth.org.uk/learning-disabilities

NHS Website: nhs.uk

Epilepsy Action resources

Managing your epilepsy

A DVD for people with learning disabilities, their families, carers or professionals working with them.

Easy read information


Epilepsy Action would like to thank Dr Lance Watkins Consultant Psychiatrist, Community Learning Disability Team at Neath, Port Talbot for his contribution to this information.


He has declared no conflict of interest.

  • Updated November 2018
    To be reviewed November 2021

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