Coronavirus - our support for you

We appreciate this a worrying and uncertain time – we want you to know that we’re here for you.

Epilepsy Action is monitoring closely developments relating to the spread of coronavirus (COVID-19). We are updating our advice and information regularly to make sure it is accurate and up to date.

Advice and information about coronavirus

We have produced some guidance on coronavirus and epilepsy and answered some of your most frequently asked questions. There is no evidence that having epilepsy alone makes people more likely to catch coronavirus or have more severe symptoms.

We are in regular contact with the Department of Health and Social Care in the UK. We are updating our information on coronavirus for people with epilepsy frequently so please check back regularly.

Support with your epilepsy

Join one of our virtual groups 

Our new virtual groups are a great way of connecting with others who have experiences of epilepsy, in a safe and relaxed environment.

Talk to someone

If you would like to talk to someone about your epilepsy or any worries you might have, our trained advisers are here to help. We offer confidential and personal advice and you can tell us as much or as little as you want. Please call the Epilepsy Action Helpline on 0808 800 5050. The helpline continues to be available during its normal published hours.

Other online support

We offer support through forum4e, a free online community for people with epilepsy and carers of people with epilepsy. Our Facebook page is also very active.

We’ve made previous editions of Epilepsy Today available online for free for the duration of the lockdown. Catch up on epilepsy news, research and inspirational real-life stories from people living with epilepsy all over the UK, and beyond.

You may also find Epilepsy Action Learning useful. We have a range of online courses and learning resources to help you understand more about epilepsy. You can work at your own pace and at a time that suits you.

If you are supporting a colleague, student or individual with epilepsy and would like to have some training in your place of work then we are now providing virtual epilepsy awareness training for organisations. This service is delivered via zoom by experienced trainers and can be tailored to your needs.

Branches and coffee and chat groups

Based on current guidance all local branch and group meetings and activities have been suspended. There will be no meetings until further notice. We realise that many people rely on their group meetings and activities for information and support. Many of our groups have therefore started meeting virtually using zoom. To find out if your local group is meeting virtually please contact or call 0113 210 8899.

Epilepsy Action staff and office

Epilepsy Action takes the health and safety of its staff seriously and has put in place plans to minimise risks to the health of our staff while continuing to support our beneficiaries and supporters.

Our offices are currently closed and all staff are working from home. Staff will continue to receive emails, answer calls and provide support. Post is being collected daily if you write to us. The Epilepsy Action Helpline is available during its normal hours.

There will be some delay in posting items out as we are only sending out orders once each week. Please bear with us for any delays.

Stay engaged with us

We will be posting updates about the latest developments here as soon as we can. This will include updates about our services. So please check back regularly to see what’s new. You can also stay engaged with us through the usual social media platforms – Facebook, Twitter and Instagram.

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