We exist to improve the lives
of everyone affected by epilepsy

Daily Living Aids

This page is about daily living aids that are available in the UK. If you are looking for daily living aids in other countries, please contact your local epilepsy organisation who may be able to help you. 

There are many products available to help people living with epilepsy, some of which your local authority may be able to supply. This information lists suppliers of various daily living aids, including information about funding that could be useful for some people with epilepsy. Please contact the companies for further information about these products.

Feedback
If you would like to help others by giving feedback on your experience of looking for and using equipment, please post your comments at the end of this page. May we suggest you start your post with the type of equipment you are talking about. This could make it easier for others to find the information they need.

Epilepsy Action does not endorse these companies and it is a personal choice whether someone wishes to use any of these companies and their products.

Funding
Other helpful organisations
ID cards and ID jewellery
Pill organisers
Pram security
Protective headgear
Safety pillows (anti-suffocation pillows)
Seizure alarms, monitors and fall call alarms
Seizure alert dogs

Funding and possible support

Funding may be available to help with the cost of specialist equipment. Here are some funding possibilities you may wish to research further.

VAT exemption
In some cases, the equipment may be tax free. To find out more contact the HM revenue and Customs. Their helpline is 0845 010 9000 or visit GOV.UK for more information.

Social care services
Some people may be able to apply to social care services. This service could include having a personal assistant to help you around the house, structural changes to your home to keep you safe, or an alarm system so you can call for help. To see if you are eligible for this service, you need to contact your local authority (council). You will find further information about this service on the NHS Choices website.
Website: nhs.uk

Disabled Facilities Grant
If your epilepsy means you need to make changes to your home, you might be able to get a Disabled Facilities Grant from your local council to help. Epilepsy Action has more information about Disabled Facilities Grants.

Disabled Living Foundation
Telephone: 0300 999 0004
Website: dlf.org.uk
Disabled Living Foundation helps disabled people find equipment that enables them to lead independent lives. This includes information on help with funding.

Family Fund
Telephone: 08449 744 099
Website: familyfund.org.uk
They help families in the UK who are raising a disabled or seriously ill child or young person aged 17 or under.

Turn2us
Telephone: 0808 802 2000
Website: turn2us.org.uk
Use their free Grants Search tool to help you find the most appropriate funds, based on your circumstances and needs.

Muir Maxwell Trust
Telephone: 0131 273 5256
Website: muirmaxwelltrust.com
Can fund bed seizure alarms for some children with severe epilepsy.

Other helpful organisations

Fledglings
Telephone 0845 458 1124 (local rate)
Website: fledglings.org.uk
They can help families of children with a disability and/or other additional needs search for products and service to meet individuals needs. They also have some items available from their online shop. 

React
Telephone: 020 8940 2575
Website: reactcharity.org
Helping children with life-limiting illness, React works to give children comfort, dignity and where possible, greater independence.

ID cards and ID jewellery

Some people with epilepsy choose to wear identity jewellery or carry an ID card with them, to let other people know that they have epilepsy and what to do in an emergency.

ID cards

Epilepsy Action
Telephone Epilepsy Helpline, freephone 0808 800 5050
Website: shop.epilepsy.org.uk 

MediPal
Telephone: 0845 603 4604
Website: medipal.org.uk

MYSOSID
Website: mysosid.com  

uCardit Limited
Website: ucardit.co.uk

Your Ice Card Co UK
Website: youricecard.co.uk

ID Jewellery

The MedicAlert Foundation
Telephone: 01908 951045
Website: medicalert.org.uk

Medi-Tag
Telephone: 0121 200 1616
Website: medi-tag.co.uk

SOS Talisman
Telephone: 020 8554 5579
Website: sostalisman.co.uk

Universal Medical ID
Telephone: 0800 055 6504
Website: IdentifyYourself.com

ZAPTAG UK Ltd
Telephone: 08456 120 510
Website: zaptag.com

MEkey USB ICE tag
Telephone: 0114 231 6135
Website: mekey-icetag.co.uk

Pill organisers (dosette box)

You can ask your pharmacist to put your regular medicines in a special container, such as labelled trays. These have separate compartments for days of the week and/or times of day such as morning, afternoon and evening. There may be a charge for this service.
You can buy your own dosette box and you or your family and carers can fill them in yourselves.
It’s also possible to get boxes that can alert you when it’s time to take your medicine. For example, an alarm, vibration or flashing lights.
Most chemists will stock dosette boxes. You can also search on the web for online suppliers.

The Disabled Living Foundation have an impartial list of suppliers.
Telephone: 0300 999 0004
Website: dlf.org.uk

Pram security

You may want to consider a pram securty system such as a lanyard,  where there is a risk of you letting go of the handle during a seizure.

Remap
Telephone: 0845 1300 456
Website: Remap.org.uk
They have details on the Lanyard pram security system and they may be able to advise on other options.

Phil & Ted’s Navigator V2 Pushchair
This pram has a built-in auto stop safety brake.
Available in the UK, from most pram stockists.

Protective headgear

Protective headgear can be helpful for frequent and unpredictable seizures, which might cause injury to the head or face.

In the UK, a person’s hospital consultant can prescribe protective headgear on the NHS, if they feel it is appropriate. Protective headgear can also be bought privately. Here are details of companies that sell them privately:

Abilitymatters Direct
Telephone: 01235 552895
Website: abilitymattersdirect.co.uk

Aremco
Telephone: 01622 858 502
No website

Evolution Healthcare
Telephone: 028 8772 7855
Website: evolutionhealthcare.co.uk

Smirthwaite
Telephone: 01626 835 552
Website: smirthwaite.co.uk 

Thudguard (children’s protective helmets only)
Telephone: 0777 898 6405
Website: thudguard.com

Covers for some protective helmets
Hats 4 Heads
Telephone:  0845 576 4287
Website: hats4heads.co.uk

Safety pillows (anti-suffocation pillows)

Safety pillows have small holes. They may help someone breathe more easily than a normal pillow if they are lying face down during a seizure.

Epilepsy Sucks UK
Contact through their website only
Website: esuk.uk.com
 
Sleep-Safe Products
Telephone: 07092 255 916
Website: sleep-safe.co.uk

Applied Healthcare Ltd
Telephone: 0151 495 3439
Email: appliedhealth@aol.com 

Seizure alarms, monitors and fall call alarms

The following organisations have a wide range of monitoring systems for detection of symptoms that may be associated with epileptic seizures. These include bed alarms, fall alarms and tracking devices.

The type of device that could work for you will depend on what you want the alarm to monitor (movement, falling, noise) and who is going to respond to the alarm. Some alarms will only work in the house. Others can send a message to someone at quite a distance, but they are more expensive.
If you do not know someone who could respond to an alarm (for example if you live alone) you may want to consider a telecare system. The NHS Choices website has a good introduction to these.

Website: nhs.uk

Alert5 emergency contact alert app
Telephone: number not available
Website: alert5.co.uk
Emergency contact alert and location app

Aremco
Telephone: 01622 858 502
No website
Bed alarms, fall alarms.

Disabled Living Foundation
Telephone: 0845 130 9177
Website: dlf.org.uk
Bed alarms, fall alarms.

EasyLink Electronics
Telephone: 01536 264 869
Website: easylinkuk.co.uk
Bed alarms, fall alarms and GPS tracking device

Epdetect
Telephone: number not available
Website: epdetect.com
Mobile phone application that uses advanced signal processing to detect epileptic seizures.

Epilepsy Alarms UK
Telephone: 0800 180 8833
Website: epilepsyalarms.co.uk
Epi-Care wrist worn sensor and bed alarms

Epilepsy Solutions
Telephone: 01438 821 251
Website: epilepsysolutions.co.uk
Smart watch tracking device

Possum Telecare
Telephone: 01296 461 000
Website: possum.co.uk
Fall alarms

Rica
Telephone: 0207 427 2460
Website: rica.org.uk
Fall alarm

Safety Systems Distribution Ltd
Telephone: 0800 328 2950
Website: safetysystemsdistribution.co.uk
Bed alarms

Sensorium
Telephone: 0800 056 5454
Website: sensorium.co.uk
Bed alarms

Telecare24
Telephone: 0800 180 8540
Website: telecare24.co.uk
Fall alarms

Tunstall Group Ltd
Telephone: 01977 661 234
Website: tunstall.co.uk
Fall alarms

PulseGuard
Telephone: 01622 32 11 11
Website: adristechnologies.com
Heart rate monitor with alarm

Welbeing
Telephone: 01323 644 422
Website:welbeing.org.uk
Fall alarms, reassurance and reminder calls

Alert-it-Care Alarms
Telephone: 0845 217 9952
Website: alert-it.co.uk
Bed alarms

Guinness Care and Support Telecare Service
Telephone: 0300 123 0705
Website: guinnesspartnership.com
Fall alarms, reminder calls, bed sensors

Seizure alert dogs

Seizure alert dogs can detect an oncoming seizure and alert the person to give them time to make themselves safe.

Support Dogs
Telephone: 0114 261 7800
Website: supportdogs.org.uk

There may be other companies that provide these types of products. If you are aware of other companies please let us know.

Code: 
F141.01

This information has been produced under the terms of The Information Standard.

  • Updated April 2014
    To be reviewed April 2017

Comments: read the 3 comments or add yours

Comments

I never asked for and for Epilepsy is , I can not do anything as mines un control, really hoping for help to get fall alarms, broke my last mobile, should be more centre for the dogs and understanding how I feel, ten stitches in my face last two days.

Submitted by christopher lawrence on

I understand the falling and damaging your property. I have seizures myself. I take quite a few pills each day and still have seizures. After being seizure free for a year I was given my drivers license back. Well 3 months later I had a seizure behind the wheel. SMASH! Police came to accident and I told them about my condition and didn't believe me. I showed them I was wearing a medical alert neckless and that wasn't good enough. I was bleeding from wounds on my head. I asked for an ambulance and was told no. The officer said I don't need one. I told him again to get me an ambulance. He wouldn't get it for me. He gave me a ticket and told me I was free to leave. I told him again to get me an ambulance. When he refused again? I told him..OK I will start walking and if another seizure occurs and I get hit buy a car, hurt, or F'n Killed he will live with that for the rest of his life. He then said..WHAT DID YOU SAY!!! I told him you heard every word I just said correctly. He then told me to get in the F'n car. I did and he drove me home. That's when I called an ambulance myself. I was sent a letter that I was to appear in court over this. On court day I walked into the court house with a very large stack of papers stating my disability. Before the court time occurred the charges were dropped and I was free to leave. I should have taken this matter further. This isn't the only trouble iv'e gone through either. I have had a seizure in a Doctors office and was put out because they thought I was someone on some kind of drugs. The list goes on.

Submitted by Dave on

Dear Dave

That sounds like a dreadful set of experiences for you. I understand you may live in Canada. If so here is a link to the Canadian Epilepsy Association.

If you are in the UK you may still want to consider complaining to the police: https://www.ipcc.gov.uk/complaints

I very much hope things settle down for you now.

Cherry

Epilepsy Action Advice and Information team

 

Submitted by todd on