We exist to improve the lives
of everyone affected by epilepsy

Living with epilepsy and a learning disability

These pages are for carers of people with epilepsy and a learning disability

Education

Schools now have a legal responsibility to support children with medical conditions. This includes making sure that:

  • Everyone is able to participate fully in the life of the school
  • The staff understand epilepsy and are able to support students with the condition
  • All students who need one, have an individual healthcare plan (IHP)

Epilepsy Action has information on the responsibilities of schools, an IHP template and information on support for children with special needs

Mencap, an organisation which supports people with learning disabilities, has a range of information on education.
Website: mencap.org.uk

The equality laws

The person you are caring for is protected under the equality laws. You are also protected as someone who may face discrimination because you’re caring for someone also covered by the equality laws.

If the person you are looking after is being refused access to a place or a service, you will need to check if the organisation has done an individual risk assessment. If they haven’t, they need to do one. And then if they do identify any actual risks, they will need to consider what reasonable adjustment they may be able to put in place to make it possible for the person to access the service. They can only refuse access if they cannot identify any possible reasonable adjustments.

Epilepsy Action has more information on the equality laws

Social care

As a full time carer it’s not always easy to find the time or the energy to look for the information and resources you may need. Your Community Learning Disability Team could be a good first local point of support for you. Your local social services or council should be able to tell you how to get in touch with them. Below is a list of topics on NHS Choices. It’s a good source of a range of information on social care.

Website: nhs.uk

This information includes:

Financial support

NHS Choices is a very good source of information on financial support for a carer of a person with a learning disability.
Website:nhs.uk
This information includes:

If you would like to see this information with references, visit the Advice and Information references section of our website. If you are unable to access the internet, please contact our Epilepsy Action Helpline freephone on 0808 800 5050.

Code: 
B010.03

Our thanks to Professor M. Kerr, Welsh Centre for Learning Disabilities, who reviewed and contributed to this information.

Professor M. Kerr has no conflict of interest to declare.

This information has been produced under the terms of The Information Standard.

  • Updated November 2015
    To be reviewed November 2018

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