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of everyone affected by epilepsy

Seizures introduction continued

Causes of epilepsy
When seizures start
When epilepsy has gone away
Seizure triggers

The causes of epilepsy

In around six out of 10 people, doctors don’t know the cause of their epilepsy. For many of these people, it seems that it is just something in the way they are made that makes them more likely to have seizures.

Some people do have a cause for their epilepsy. Sometimes it is caused by damage to parts of the brain which can be brought about by: 

  • A difficult birth
  • A brain infection, such as meningitis
  • A stroke
  • A serious brain injury

 You might have another condition where epilepsy is quite common. Two such conditions are tuberous sclerosis and cerebral palsy.

When seizures start

Seizures can start at any age, but are most common in children and older people. Certain seizure types are more likely to start at certain times of life. For example, children are more likely than adults to have absence seizures, and older people are more likely than children to have focal (partial) seizures.

When epilepsy has gone away

A person will no longer be considered to have epilepsy if they:

  • Had an epilepsy syndrome that only affects people of a certain age, but are now past that age. An example is benign rolandic epilepsy, or
  • Have not had a seizure for 10 years, and had no epilepsy medicine for five years

Seizure triggers

Some things make seizures more likely for some people with epilepsy. These are often called ‘triggers’. Triggers are things like stress, not sleeping well or drinking too much alcohol. Some people say they have more seizures if they miss meals. Not taking your epilepsy medicine is another common trigger. A small number of people with epilepsy have seizures triggered by lights that flash or flicker.

Not everyone has seizures triggers, but for those who do, avoiding triggers lowers the risk of having a seizure.

Epilepsy Action has more information about some common seizure triggers

If you would like to see this information with references, visit the Advice and Information references section of our website. If you are unable to access the internet, please contact our Epilepsy Helpline by email at helpline@epilepsy.org.uk

Pay it forward

This resource is freely available as part of Epilepsy Action’s commitment to improving life for all those affected by epilepsy.

On average it costs £414 to produce an advice and information page – if you have valued using this resource, please text FUTURE to 70500 to donate £3 towards the cost of our future work. Terms and conditions. Thank you


We can provide references and information on the source material we use to write our epilepsy advice and information pages. Please contact our Epilepsy Helpline by email at helpline@epilepsy.org.uk.
Code: 
B037.03

Epilepsy Action wishes to thank Dr John Paul Leach, consultant neurologist, Honorary Clinical Associate Professor, Glasgow, UK for reviewing this information. 

This information has been produced under the terms of The Information Standard.

  • Updated July 2014
    To be reviewed July 2017

Comments: read the 31 comments or add yours

Comments

I have had fits since I was 12 im 28 I only have them in the early hours of the morning in my sleep only I have about 2 seconds warning befor I have a fit which somtimes I can pull my self out of stop the fit by literary jumping up out of my sleep then standing up quickly my Hart beats like anything but im so pleased I pulled my self out of it it's the most scary thing ever.unfortunately I am semi contas thought lout my fit which my wife says last about 2 mins.this is what happens I get a feeling of cramp in my right leg I have 2 seconds if I don't sucsuced in pulling my self out of it I start my fit I start spiking around on my bed but can't move then their is a voice saying john roll roll roll telling me to roll off the bed but im stuck to the bed and paralysed repeating in till near the end then towards the end it says youv failed youv fail even though I have ended up on the floor which is where the voice was telling me to roll. Li have kids and a wife it's the most scariest thing ever I know it sounds weird but that's what happens iv only ever told my wife in fear of being classed as crazy it's like the devils talking to me it's really ruined my head up in my years iv gone through every kind of emotion thinking iv been taken by the devil that im going to he'll wen I die that's what I will feel for internaty but iv grown up im alive getting on with life. And lets face it theirs people in the word without water so it's not all bad just carry on be strong and remember your not the online take care jon

Submitted by john3084 on

Hi,

About 4 or 5 weeks ago, I had the first instance of what I now think might be some sort of simple seizure (but am not sure) - I have since had about 4 more instances. I just had one about an hour ago. The experience tends to come on suddenly, and I have an inkling it is about to, and involves me remembering a dream (the same dream every time, I think), in quite detail. It only lasts maybe 20 seconds, and afterwards I feel nauseous for, at most, a few minutes, but then can't remember the dream that I had just relived. I didn't think too much of these events, other than that they were quite odd. I had been meaning to google it, just to see if others had the same or similar experience. I wasn't looking for a diagnosis, not expecting that it was potentially an oddity of medical origin, rather just wondering, out of curiosity, whether others have experienced the same. However, upon googling, I have come to notice my symptoms described in discussions with others suggesting that it might be a seizure or epilepsy. What are your thoughts? Mainly, I suppose, I want to know if this is something I should see someone for? It isn't impacting on my life. I would feel silly going to someone for this, but I think, after reading some of this information, that perhaps I should see someone. Who would I see and what would I tell them, if I should see someone, that is?

Kind regards,

Sarah.

Submitted by Sarah on

Hi Sarah

You are doing the right thing and investigating any symptoms that seem strange. So I hope the information below will help.

Epilepsy is a difficult medical condition to diagnose as the symptoms of epilepsy can be similar to many other medical conditions. The symptoms of the over 40 different types of seizures can also vary greatly. However, if you feel you’ve been having possible focal (partial) seizures it would be best to talk to your family doctor first.

You can also find information on our website about how epilepsy is diagnosed and tests that you might need to have.

https://www.epilepsy.org.uk/info/diagnosis/diagnosing-epilepsy

Rosanna

Advice and Information Team

Submitted by Rosanna on

In the last 4 years I have had 3 episodes (poss seizures). The latest been today. Each episode has been very similar and have been 15months or so apart from each other. So today I came down feeling fine walked in the living room picked up some cups and went into the kitchen, immediately I had a overwhelming "da javu" feeling so I recognised this from last time and I rushed back into the room where my 10year old son was. I thought I sat down but my son says I flew myself on the sofa in a lying position and went "funny" he says my eyes were fixed at the top of my lids and my hands fingers were stretched out up near my face. He ran to get his dad who came down but I had come round . I knew what it was so I rang my consultant from previous tests (eeg,etc) and left a message. (I was discharged previous because no further episodes and tests inconclusive) I felt ok so I went out with hubby around an hour and half after 1st one, however in the car I got the whole da javu again and again and again in the car passing out each time. my hubby drove me to a&e and I was taken straight through, after 4 hours I was sent home and told that they will re write to my consultant saying I have had further episodes/ clusters, The a&e dr thinks it is "focal seizures"
Main symptoms /warnings are intense da javu, (different each time)overwhelming dread feeling, knowing I am going to drop, warm rush feeling to my right side and spreading to my chest. Having suffered 10 or so further episodes in front of nurses in a&e whilst hooked up for pulse, heart rate and blood pressure, there was no change in the readings before the episodes but during the episodes my heart rate drops down to about 35. But returns to normal as it ends. When it happens I know im going to pass out again because I say "its coming" because I get this rush, dread felling mostly after da javu. However this time I did wet myself and bit my cheek (never done this before) Also some episodes felt like I was conscious some fet like I had awaken from a deep sleep! DOES THIS SOUND FAMILIAR TO ANYONE, IF FOCAL SEIZURES DIAGNOSED AND OFFERED MEDS THAT I TAKE HOW LONG BEFORE I CAN DRIVE AGAIN? Thanks, great site too.

Submitted by lisa jenkinson on

Dear Lisa

Thank you for your comment.

There are many symptoms of epilepsy. What someone experiences depends on where in the brain the activity starts. For example the symptoms you’ve described generally happen when the activity is in the temporal lobe area of the brain. This would be known as temporal lobe epilepsy. 

For some people their focal seizures can spread to both halves of their brain and they can then have a tonic-clonic seizure. Some people call their focal activity just before a tonic clonic seizure an aura or warning. As you found out when you were with your son, the warning (focal seizure) can be very useful, as it may give you time to get to a place of safety, or to alert someone else that you are going to have a seizure.

When someone's consciousness is affected when they have a seizures, they generally have to stop driving until they are 12 months seizure free. You may wish to visit our driving webpages that have information about driving for people with epilepsy in the UK. It covers the rules for holding a driving licence, how to inform the DVLA in your change of health and it explains how the agencies that issue driving licences work.

Diane Wallace

Advice and Information Team

Submitted by Diane on

Does anyone have a throbbing in front of a head or like a headache really cold sensation in head? I have had these for a while now. I am on tegretrol 300 mg x 2 I am convinced this might be all to do with my epilepsy which has been generally controlled for a good 17 years. I am wondering if this is like a fit but obviously I don't go into a full fit. I have had an aura a couple of times also. It does seem to be worse when I go into somewhere there is a lot of light or a concerts. Is this my epilepsy or something else. I am going for a ct scan which I am hoping will shed some light on it.

Submitted by Antony on

Hi

Living with headaches or head pain must be so distressing.  Your symptoms don’t sound typical of epilepsy, this doesn’t mean it can’t be related to your epilepsy.

Everyone’s epilepsy and what they experience is individual to them. I hope the doctors are able to diagnose the cause of your symptoms quickly.

Diane Wallace

Advice and Information Team

Submitted by Diane on

Hiya my name is Katrina I have Prader Willi Syndrome I'm 28 years old. Doing well controlling my weight I'm only 7 stone. Anyways when I was 12 collasped after my dog bit me, than again when i was 18 that ended up in the back of the ambulance after getting an almighty pain in my tummy, before I flaked out i saw white globe in the sky. That morning I did take a tablet because I was constipated. I tried to go out the room I body would not move instead I fell on my back head my head on the way down and was jerking, When I was 21 I was diagnosed with having borderline epilepsy, I refused the tablet incase it effected my prader willi by gaining weight. My symptoms if im walking leg suddenly jerk, or I nearly fall back overs I pull a muscle in my leg. In the car my mum noticed one minute im looking at the phone than my eyes close and open them I do couple of times. I have headaches, noise senstivity, Heat intolerence, I have pounding in my left ear. I hear things like my name been called there's no one there. I can;'t listen to three people at once my head spins. I have this strange feeling that comes over me which makes me go and sit down than I end up going to sleep very early. I have felt down the stairs once not remembering what happened, I felt on my knees once, not knowing what happened. I have bruises which i cant remember getting them. The dentsit I grind my teeth. I stare like I'm not all there, it takes three atempts to wake me up. I switch off realize where iam I start to panic. In a middle of the converstation with my dad, I had this rising feeling in my tummy, hit my throat I couldnt breathe I started to panic, I thought my dad was shouting at me, but he wasnt just his voice sounded really funny this mades me cry my memories or coming back. I this could well be simple parital complex partail just like what the doctor said. I havent had it so bad until this year, get too many lately all my bloods came back normal. Pains, headaches, cramps in my feet, I walk like im drunk after seeing a movie at the pictures.

Submitted by katrina Jane Hardy on

Hi Katrina

It sounds like you’re dealing with a lot of difficult things. You might want to make sure you write down when you have these episodes. We have a seizure diary which could help with this. 

If the episodes do increase, you may decide to think again about epilepsy medicine. And then the diary would be useful to show the doctor what has been happening for you.

There is only one epilepsy medicine which has a clear side-effect of weight gain. So there are many others to choose from.

I hope this is useful information for you.

Cherry

Advice and Information team

Submitted by Cherry on

Hi I was at work a few weeks ago sorting some parts for quality control and suddenly realised i was just blankly staring at them in a detached sort of way and had no idea weather I had miss sorted or not .I tried to focus on my task but could not. a collogue told me later that this had occurred before and had put it down to tiredness also I had over a few weeks been making some glaring errors that when shown I had seen immediately and at some considerable distance.I was convinced I was a victim of some perverse practical joke of someone wanted rid of me.
That afternoon I attended my GP and was sent to A&E. I am awaiting an appointment with a neurologist.
With time on my hands,as i cannot perform my job at the moment I have been going back to see if there are any clues to what is happening.and have come up with 2 lists 1 Currant and 2 Past
1)Intermittent lapses of concentration, Inability to articulate without loosing the thread of the conversation, stumbling over words ,when typing, missing out letters/words or occasionally whole sentences, I also get,headaches that seem to be in the centre of my head before October I have not experienced one for 40 years since my teens, also a few weeks ago I experienced what i can only describe as an audio nightmare I was asleep when a very loud screeching sound manifested within my head it was like something out of a horror film I remember having to force my self awake it was very disconcerting I lay awake for a couple of minutes and went back to sleep almost immediately it occurred again after that I stayed awake and watched TV I have had no occurrence
2) feeling shaky with profuse sweating ,confusion, intense feelings of ,deja vous enhanced sexual appetite recurrent dreams and occasionally a feeling that some cold liquid is trickling over my brain and down my neck
IN writing this I have his over 30 wrong letters missed 12 spaces used the spell checker constantly these are approximately 10 times my normal errors PSI am only a two finger typist so its not because I am rushing. would appreciate your opinion and advice as hither too I have been lucky health wise so am finding my condition a bit disconcerting

Pete

Submitted by Peter on

Hi Pete

It sounds like your recent symptoms are really worrying you and have been quite frightening at times.

The fact that you have already discussed your concerns with your family doctor and are waiting to see a neurologist is positive.

It is not possible for us to diagnose what is going on for you. There are a number of medical conditions that can cause symptoms similar to epilepsy. This can make epilepsy difficult to diagnose.

It would be a good idea to make a note of all the symptoms you are having. Perhaps you can keep a diary of when and how things happen. This will help your neurologist when making a diagnosis.

Here is our information about diagnosing epilepsy.

If we can be of any more help please feel free to contact us again either by email or the epilepsy helpline freephone number 0808 800 5050

Kind regards

Vicky

Advice & Information Team

Submitted by Vicky on

One of the most worrying aspects I have found about having epilepsy is feeling that you are experiencing things that no one else can possibly understand. Trying to explain to others what is going on inside your head and the effects of any type of seizure on behaviour and perception is almost impossible unless they themselves have suffered a seizure. Your 'Comments' column is great as it helps to lessen the feeling of isolation by bringing together people who are going through the same things as each other. Reading that some people feel as if they are in a 'dream' or detached matches my own sensations as I sometimes feel as if I am on the outside of an activity looking in, almost as if I am floating above it yet can't get involved. When I start to regain control I am convinced that my husband is annoyed with me as he seems to be snapping or shouting yet others around tell me that he is calm and gentle and I am the one who is angry. I am told that my partial seizures do not cause headaches yet the headaches regularly follow a seizure and I end up feeling exhausted. I have had epilepsy for almost 40 years now (I started during my late teens) and If I were asked what I do to help it would be make sure those around you know you may have seizures and how they should react if you do.

Submitted by Ann on

Hi there, my 5 year old son gets a seizure every time after complaining about a headache. EEG, lumber puncher, cat scan have been done but all came out negative.

Submitted by Silvia on

Am I epileptic?

When I am driving, occasionally, when sunlight filters thought the trees the light causes me to twitch me head to the side (always the left) and I see a flash of images while my eyes are closed. All this happens In a matter of milliseconds. I also used to get a similar reaction to an old television we used to have.

Even more rarely I can get feelings of daja vu, we're I feel I have either dreamt a situation or feel it has happened before.

Cheers,

Alex.

Submitted by Alex on

Dear Alex

Diagnosing epilepsy can be a complex thing. The things you describe could be experienced by someone with epilepsy.

If you do have epilepsy then this could have an effect on your ability to drive safely. So it would be important to speak to your family doctor about this.

Cherry

Advice and Information Team

Submitted by Cherry on

I'm lossing hours of the day. I will be on the sofa then the next thing I know I'm somewhere different. I ended up out in the woods today with no recallection of how I got their. I have been diagnosed with tbi from a head injury at work. I have a lot of confusion as well. Just kinda feeling lost

Submitted by v on

Hi

These episodes must be confusing and worrying events. It is possible during a focal seizure for some people to wander or do things they are not aware of.  As this is a new symptom for you and to get a definite diagnosis, we suggest you talk to your doctor about it.

Regards

Diane Wallace

Advice and Information Team

Submitted by Diane on

Hi, 3 years back I was having breakfast & suddenly started feeling sick. I called my mom & didn't remember passing out & woke up to find my mom splashing water on my face. I underwent EEG, CT Scan & an array of blood tests after which our family doctor put it down to my low Hb level. Last night I had churning feeling in my stomach & was also feeling nauseous. The last thing I remember is going to the toilet & feeling dizzy, I woke up to find myself sprawled on the bathroom floor & for a few moments I couldn't recollect where I was. I have consulted a different doctor & he thinks I might be suffering from focal epilepsy. Please advise.

Submitted by Joyee on

Hi Joyee

The symptoms you’ve described could be epilepsy. If you haven’t already you may wish to view our information on focal seizures. In these seizures the epileptic activity starts in just a part of your brain. You may remain alert during this type of seizure, or you may not be aware of what is happening. You may have movements that you can’t control, or unusual sensations or feelings.

Focal seizures can be very brief or last for minutes. Sometimes, epileptic activity starts as a focal seizure, spreads to the rest of your brain and becomes a generalised seizure. Generalised seizures are the ones most people associate with epilepsy. These seizures involve epileptic activity in both hemispheres (halves) of your brain. You usually lose consciousness during this type of seizure, The muscles in your body may stiffen and/or jerk. You may fall down.

It’s not unusual for epilepsy not to be diagnosed when a person goes to the doctors the first time. This is mainly because there could be other reasons for their symptoms. Epilepsy is general diagnosed when a person has had a second or more episodes. Epilepsy means a person has a tendency to have seizures.

You may wish to view our information on treating epilepsy with epilepsy medicine.

If we can be of any more help, please feel free to contact us again, either by email helpline@epilepsy.org.uk or the Epilepsy Helpline freephone 0808 800 5050.

Regards

Diane Wallace

Advice and Information Team

Submitted by Diane on

Hello,
I'm 18 and currently attend college, I have to catch the bus there as I don't have a driving license, but recently I have been reacting to the flickering sunlight as it passes the trees and buildings. These reactions usually consist of my shoulders jolting forward and the feeling of drifting in and out of consciousness (very brief) around this time, I also find it increasingly difficult to look at anything far away from me (usually anything more than a foot or so away) if I do look, then things seem slightly out of focus and it's difficult telling what is going on around me as though I'm not aware if it's reality or not, I am, however, very aware of what is happening to me and the symptoms. These only occur in the natural sunlight, I have also caught the bus to school for 5 years previous and it's never been a problem. My major concern is that I have no one there to inform if something should happen, also I was wondering if something like this could develop so I would react to artificial light, this is something of a concern as I am studying creative media - film production. I have spoken to family members and friends about these recent episodes and they don't seem too concerned and believed that epilepsy is something you're born with, so if this was the case, I would have known from an early age. I have anxiety issues and find it difficult going anywhere on my own, especially to things like doctors and optician appointments which is why I always bring my mum along with me, but she pretty much expressed that she isn't concerned about it.

Kind regards,
Gemma

Submitted by Gemma Billingham on

Hi Gemma

Epilepsy can happen to anyone at any age. Photosensitive epilepsy, the type in which people can have seizures triggered by various patterns of light, usually develops before the age of 20. You might find it helpful to read more about photosensitive epilepsy, and what kind of things may trigger seizures. There’s also some advice about reducing the risk of seizures if you have photosensitive epilepsy.

As you are having these unusual experiences, it really is advisable to discuss this with your own family doctor. They can investigate the possible causes. If they think it may be connected to epilepsy, they will usually refer you to an epilepsy specialist, who will carry out further investigations and tests. Or, your GP may have some other ideas about what may be causing your symptoms.

Best wishes

Amanda

Advice and Information Team

Submitted by amanda on

Hi, my name is Alex and I am a 25 year old male. I have during the past year/months started having some kind of strange attacks. It starts with a strange feeling that something is wrong, usually accompanied by a taste/smell of blood. After that I feel a tingling sensation in the head and that's when it gets weird. It feels like I enter some kind of dream world, my vision becomes blurred, the world seems slightly distorted (especielly depth perception and shape of objects) + i see lots of flashing dots everywhere. This can lasts for up to several minutes, during which I usually become numb, but can feel very bad muscle tension followed by immediate relaxation. After this episode follows a terrible headache and increase in neuropathic pain (I suffer periphereal neuropathy).

These attacks can happen at any time during the day. They make absolutely no sense. They can happen when I am trying to excercise or when watching tv, while working or while at home. It has gotten so bad I am bed ridden with dizzyness most of the day + I seem to suffer memory loss, but I do not know if this is because of my meds (I take 4800mg gabapentin daily for the pain). So I have decided to see a doctor and he has ordered a CT scan.

While I wait for the scan, does it sound like I have epilepsy? And is a CT scan with contrast the normal way to diagnose it?

Submitted by Alexander on

Dear Alex

It sounds like you’re having a bad time with your health.

Here is all our information about diagnosing epilepsy. We aren’t medically trained and wouldn’t be able to diagnose you. A CT is one of the possible tests which help a doctor to diagnose epilepsy. Here is some information about a CT with contrast. As you can see, the dye helps to distinguish blood vessels from other structures in your brain.

If the doctors think there is a possibility you have epilepsy they are likely to do an EEG as well.

As you will see from our information, there are very many different seizure types. Your experience does not immediately fit any one type. But it is good that it is being investigated.

I do hope you get some answers soon.

Cherry
Advice and Information Team

Submitted by Cherry on

I was diagnosed with epilepsy when I was 13 I remember I had focal seizures for years before that I didn't know how to tell people I thought I was a weirdo and thought everyone else would too. I'm 36 now been taking meds for years I had some lab work done requested by my husband's insurance company. The results came back liver inflation there was 5 different things that were higher than they were supposed to be 2 were extremely high!! I'm worried and thinking it was all the medicine I've been taking for years!! I haven't been in to Dr. yet told them but they didn't act like it bothered them to much anyway I'm scared to keep taking my meds!!

Submitted by Michaleena on

Hi Michaleena

Thanks for your message. I can understand your concern about your lab results. However, the issues with your liver may or may not be related to your epilepsy medicines. It is very important that you do not make any changes to your epilepsy medicine yourself, which could cause you to have more seizures. The best thing to do would be to discuss the lab results with your doctor, to see if there is a chance they might be related to your epilepsy medicines. If that is a possibility, then you should seek advice from your epilepsy specialist or epilepsy nurse to find out what steps to take next.

Our website talks about epilepsy treatment and medicines, which you might find helpful.

If we can be of any more help, please feel free to contact us again, either by email or the Epilepsy Helpline freephone 0808 800 5050.

Yours sincerely

Sacha Wellborn

Advice and Information Team

Submitted by Sacha on

hi my daughter whos 3 has been diagnosed with focal epilpsey with secondary generlisation.. she has tonic clonic fits and has carbamazapine 2 times per day
we have been given buccolam midazalom for when she has another fit hers last for45 mins to an hour.
iv heard that sometimes you can fall behind in school etc is there any support for children.
also is there any further Info on focal epilpsey with secondary generlisation

Submitted by emma on

Hi Emma

The page you have come from is the only information we have about focal epilepsy with secondary generalisation.

But we do also have a variety of information about education.   

A child’s learning will not necessarily be affected by their epilepsy or their epilepsy medicine. So you may find your daughter does not have any problems with learning. Here is our information  on support.

 We do also have a section on information for parents of children with epilepsy This includes information on learning, behaviour and epilepsy which you may find useful.

If we can be of any more help, please feel free to contact us again, either by email or the Epilepsy Helpline freephone 0808 800 5050. 

Cherry
Epilepsy Action advice and information team

Submitted by Cherry@Epilepsy... on

I have had epilepsy most of my life and was recently diagnosed as having a second type. I guess that this explains why I often have strange sensations and deja vu type experiences. I had started believing that maybe some type of and diagnose psychological condition. I am somewhat relieved now but, still do not have the desire to socialize much. I often feel as though I do not "fit in". As a child, I always knew that I was different.
Adulthood has been very difficult. Children seem to be more accepting of the condion but, adults don't seem to be too accepting... I can not speak for everyone. This has just been my experience. In my opinion, having epilepsy as an adult has taken its toll on me emotionall to a large degree. I believe that things will eventually get better. I just hope that folks understand that this condition affects every aspect of a persons life. Through the mistreatment ofbothers, my self esteem has been greatly affected. That old saying holds very true: "Treat others as you wish to be treated". Words,:mistreatment and ousting can also kill a spirit. Best wishes to all.

Submitted by Traci on

I have been suffering from epilepsy for 3/4 years and it appeared to be under control for the previous 2 and a half years, however last night I experienced another episode which seemed a lot different from the other episodes, where I was imagining I was shouting for help when I wasn't and things that were around me such as my pillow could and would help me. However a few times before I would experience a tingle in my left arm, which I know I could feel the start of an episode, however by finding the pressure point in my arm I find it stops this, is this normal?

Submitted by Matt K on

Hi Matt

Some people do find ways of stopping their seizures, so your pressure point method could be something that works for you. However, as you have had symptoms that are not normal for you, it would be best to talk to your family doctor. As trained epilepsy advisers, we can give you general information on epilepsy and related issues. But we’re not able to diagnose your symptoms.

If your symptoms are related to your epilepsy, it could be a type of focal seizure. These are a type of seizure where the epileptic activity starts in just a part of your brain. This means you may remain alert during this type of seizure, and experience unusual sensations or feelings. You can’t stop these seizures but they are generally very brief, lasting seconds or minutes.

https://www.epilepsy.org.uk/info/seizures/focal-partial

If you have experienced any more of these symptom’s you may wish to keep a diary. A seizure diary can be a helpful record of what’s been happening with your epilepsy, for you and your doctor.

https://www.epilepsy.org.uk/info/diagnosis/seizures-diary

Regards

Diane

Advice and Information Team

Submitted by Diane-Epilepsy ... on

Hi im writing this to give hope to young people and all that suffers from epilepsy my name is john iv had fits ever since I was 9 at first I diddent understand and as time went on I thought my life was over it was like the devil was talking to me when I had the I had them around 1nc a fortnight always early morning when asleep I would first get a cramp feeling in my right leg take note always my right leg it would be the warning and last for around 2 seconds if I diddent wake up and pull out of it I would go into a fit here's the worst part I thought I had the devil in me I knew I was on my bed but a voice was saying john roll roll roll to roll off my bed even though I would end up on the floor the voice still said u failed you failed it would last iv been told for around 2 minutes I know it sounds really weird even mental but that's what I went through im now 30 and haven't had 1 in 5 years I had them up to around 22 every fortnight and then 1nc every 4 months and then it stopped I still got the leg feeling about 3 years ago but I was now able to stop it by waking up I hope some people can relaite to my experience mainly young kids and teenagers who feel like thEUR weird it will pass I know it's horrible but it will pass I think when I fell from my bike and split my head open corsed my fits when I was young I now have a wife 2 children 1 boy 8 and a girl 10 and a job please don't think your any different your not it's just you may have hit your head and made your brain corse them it's the worst thing in the world it will effect your life but you will get better look at it like this some people have no food or water or are disability all their life always think that their are people who suffer more please be strong. Also I don't take any meds it's just gone I think I had whats called pette male anyway I hope this helps at least 1 person relise life goes on take care

Submitted by john1134 on

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