We exist to improve the lives
of everyone affected by epilepsy

Epilepsy Helpline, email

helpline@epilepsy.org.uk

If you live in the UK and would prefer to speak to an epilepsy adviser, please contact the Epilepsy Helpline, freephone 0808 800 5050.

If you have an urgent medical enquiry, please contact your doctor.

Email replies

If you have a question about epilepsy, you can contact the Epilepsy Helpline by sending an email to helpline@epilepsy.org.uk. A member of the advice and information team will reply to your email. We aim to reply within five working days, but may sometimes take longer, for example if we need to do any research for your reply.

You will receive your reply by email. If we have any booklets or factsheets which we think you might find helpful, we may ask you to email us your name and address. You do not have to give us this information if you prefer not to.

Ask your question

Please check the spelling of your email address before you send your question to us. If it not spelled correctly, our reply will not arrive in your inbox.

We regret we cannot reply to forwarded emails.

Confidentiality

We take every measure to protect your privacy. We won’t pass your details to anyone else and we won’t contact you again, unless you give us your permission to do so.

Please remember that your computer stores copies of your sent emails. To keep your message confidential from others who may use your computer, delete the copy in your Sent Items folder and delete our email address if it has been stored in the address box on your computer.

If you don’t want to use your usual email address to send us your question, you can choose a free web-based email address such as those available through Hotmail, Yahoo or Lycos. You don’t have to use your real name, so you can remain anonymous. You will also choose your own login name and password, so no one else will be able to read your emails without your permission.

The aim of the Epilepsy Helpline

The aim is to provide advice and information on all aspects of living with epilepsy. We have access to a wide range of up-to-date information resources and are pleased to provide general assistance.

We provide confidential advice and information to anyone with an interest in epilepsy, but we will not tell you what to do.

We can give general medical information but we do not offer a medical diagnosis or suggest treatment.

If you have an urgent medical enquiry, please contact your doctor.

We can give general information on legal issues specifically related to epilepsy such as driving and the Disability Discrimination Act. We cannot, however, take up legal cases on your behalf.

AOL users:

Our emails are not getting through to AOL addresses at the moment. If you have another, non-AOL, email address, please use that one when asking your Helpline question.  

Pay it forward

This resource is freely available as part of Epilepsy Action’s commitment to improving life for all those affected by epilepsy.

On average it costs £414 to produce an advice and information page – if you have valued using this resource, please text FUTURE to 70500 to donate £3 towards the cost of our future work. Terms and conditions. Thank you


We can provide references and information on the source material we use to write our epilepsy advice and information pages. Please contact our Epilepsy Helpline by email at helpline@epilepsy.org.uk.

Comments: read the 5 comments or add yours

Comments

Hi my daughter is 7 and is having petit mal seizures should we receive DLA myself and my husband both work but it is looking like i have to cut my hours down because of the seizures. my 19 year old daughter is starting to worry when walking my younger daughters to school as she just seems to stop middle of the road, walking up the street where ever she happens to be and don't want to put them at risk. Love my job but they have to come first

Submitted by sharon reynolds on

Hi Sharon

The decision about whether a child qualifies for disability living allowance (DLA)  will depend very much on their individual circumstances.

Here is our information about DLA

The following information is from our website

Disability Living Allowance (DLA) is awarded to children who have care needs and/or mobility needs. DLA is paid at different rates depending on how a disability affects an individual. To qualify, the applicant must have needed help for at least three months because of a severe physical or mental illness or disability. They should need this help for at least another six months.

DLA is tax-free and isn’t affected by any other income or savings that you have. It is paid on top of any other earnings or income.

To get an idea of whether you would be able to get DLA, go to the government’s online benefits adviser assessment tool.

You may also find it helpful to contact Cerebra on 0800 328 1159. They have produced a step-by-step guide to claiming DLA for children under 16 with brain-related conditions, including epilepsy.

If we can be of any more help please feel free to contact us again either by email or the epilepsy helpline freephone number 0808 800 5050.

Kind regards

Vicky

Submitted by Vicky on

Hi I'm writing on behalf of my son,who is epileptic,and works in a factory,but recently had a mild seizure that lasted only 1minute,he came round and was ok again,but his work doctor wants him to take 6 months off work yet again,but his neurologist has written stating its not nessessary as 1-2days is all son needs off,but a meeting was arrange for Martin to attend,and was given a letter from his works doctor that it's not safe for him to work in a factor and there's nowhere safe for him,but he's a letter saying the mould shop is a safe environment so he was put there to work,but my son feels they want rid of him,and even when his union mentioned a protective head gear could be provided,because the Dr said my son nearly sustained an head injury,they have also asked for my sons epileptic to go to the factory to she if she thinks it's safe for my son to work in,can they still fire him if she says its a safe place.

Submitted by Beverley gell on

Hello

Thank you for your comment. It’s understandable how this must be a very difficult situation for your son. It may be considered disability discrimination if his workplace keeps him from working.

It is unreasonable to stop a person from working if they have recovered from a seizure and are well. This is if the work environment is safe, and there is no additional risk to the person with epilepsy or colleagues. Doing so might be considered disability discrimination. To find out how your son’s circumstances relate to the equality laws, you could contact the Equality Advisory and Support Service. Their freephone number is 0808 800 0082. It’s also a good idea to talk with ACAS, who specialise in employment relations. They may be able to provide guidance on the best thing for your son to do. ACAS have a helpline for workplace advice on 0300 123 1100.

Also, in addition to the statement from the neurologist, it might help to have a fit note from his GP.

I hope that helps.

Sacha

Advice & Information Team

Submitted by Sacha-Epilepsy ... on

Hello sacha. Thankyou for your reply to my comment,.my son as put in a fit note,which he did a wk after his seizure,but still keeps him from working,as to be off for 6 months.which is not nessessary as he's well to go back,but my son is now waiting to arrange an epilepsy nurse to go to his place of work,for her veiw on whether its a safe environment for my son to keep his job,even a protective helmet was turned down by his employer.hopefully his nurse can change their minds.thankyou Mrs gell

Submitted by Beverley on

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