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of everyone affected by epilepsy

 

Therese Curtis, aged 59

 Epilepsy Mine image - Theresa Curtis page

I am lucky in that having epilepsy has never stopped me from having a family, or a job, or doing most things I’ve wanted to do. However, the downside has been that in general, I have had to question doctors and hospital staff about any treatment I have received, reminding them that I take medication for epilepsy. There seems to be a great lack of knowledge of the medication and its effect on other drugs.

For example, the drug I take for my epilepsy does not suit the medicine I need for an under active thyroid and its taken quite a while to sort out a good dose for me.

There needs to be more research done on women and epilepsy drugs. I know others, who like me, have had problems through being prescribed the pill, HRT etc with little regard being given to side effects we might have.

If you’re a woman with epilepsy you have to learn to ask questions and not be fobbed off.

Comments: read the 2 comments or add yours

Comments

after 30 years I am still fighting to stay on the right hormone drugs which also help to control my epilepsy I get questioned by the doctors, nurses & pharmacists continuously. Now I read about your thyroid for which I have suffered over 20yrs & never seen a specialist they just say bloods are fine! but I am gaining weight falling asleep etc! usual symptoms being ignored.. where do I go?

Submitted by Michelle Wayne on

You might want to contact the British Thyroid Foundation. If they can’t help you could approach PALS. This is the Patient Advice and Liaison service. Their job is to help you access the service you need.

Regards

Cherry  

Epilepsy Action Helpline Team

Submitted by rich on

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