What we want from the next government
We want all people affected by epilepsy to receive the healthcare and support they need and the public respect, fairness and understanding they deserve.
We want the next government to commit to:
Improving the quality and availability of healthcare services for people with epilepsy by:
- Supporting healthcare providers to comply with NICE Guidelines and Quality Standards for epilepsy. This should include timely and accurate diagnosis and access to epilepsy specialists. People with epilepsy should also have a written care plan and regular annual review
- Supporting the work of the National Neuro Advisory Group to increase the priority of neurological services. We believe this will improve outcomes and experiences for neurology patients. It will also reduce variation in access to services.
Working to remove barriers to employment for people with epilepsy, while ensuring those who are unable to work because of their health are supported fairly by:
- Committing to work towards halving the disability employment gap. This should include supporting people with epilepsy to gain and remain in employment and reducing levels of underemployment
- Providing fair access to welfare support for anyone with epilepsy who needs it. This must include a review of the current benefits assessment processes, for example Personal Independence Payment (PIP) and Work Capability.
How you can get involved
We took part in the disability hustings on 30 May. Kate Green (Labour), Penny Mordaunt (Conservative) and Baroness Brinton (Liberal Democrat) faced an audience of over 100 disabled people. The audience had the opportunity to put their questions to the panel during the event.
Contact your candidate
Contact your local parliamentary prospective candidates (PPCs). Share your experiences and explain how living with epilepsy affects your daily life. Tell them how you think they could make things better for you. You can also look out for opportunities to talk to candidates in person at canvassing events. Don’t forget to let us know how you get on so we can encourage successful candidates to fulfil any pledges they make to you.
You can find out who the PPCs in your area are here: https://whocanivotefor.co.uk/ or by visiting individual party websites.
Epilepsy Action is a member of the Disability Benefits Consortium (DBC), campaigning for fairer benefits. The DBC has put together a survey which asks about your experiences of the benefits system. The anonymous evidence you provide will help us to campaign for a fairer benefits system for all disabled people.
Epilepsy Action will be monitoring the policies of all major political parties and how they could impact on people with epilepsy. For more information, email firstname.lastname@example.org