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of everyone affected by epilepsy

Nottingham epilepsy specialist nurses campaign

updated 22 January 2007

It has been confirmed that the epilepsy specialist nurses in Nottingham who were working reduced hours are now working full-time on epilepsy specialist duties. However, it has been confirmed by the Chief Executive of the Queen's Medical Centre that one post out of the four that currently exist will be reduced. The epilepsy specialist nurse who was in this position has left their post and has not been replaced.

Epilepsy Action believes that if this nurse is not replaced there would be a lack of specialist knowledge and support for over 7,000 people living with epilepsy in the Nottingham area. As a result, Nottingham Primary Care Trust (PCT) and Queen’s Medical Centre would not be able to fully meet the needs of local people, their families and carers. In addition, some people with epilepsy living in Derby, Grantham, Newark, Mansfield and Loughborough would be affected as they are currently seen at Queen’s Medical Centre.

Action taken

Epilepsy Action has written to local MPs in the Nottingham area and to MPs who we have received support from in the past. We have asked them to contact their local primary care trust and hospital trust to ask them not to make the proposed changes.

We have written to Epilepsy Action members and clients in the affected areas asking them to write to their local MPs and the local primary care trust and hospital trust about the issue.

How can you help?

We would really value your help in fighting to protect epilepsy services in the Nottingham area. The more people who are involved in the campaign the better.

If you live in or near Nottingham, Derby, Grantham, Newark, Mansfield, or Loughborough, you may live in the catchment area of the Nottingham epilepsy specialist nurse. If so, there are a number of ways in which you can support us:

  • Writing to the hospital trust

We would be grateful if you would consider writing to the chief executive of the Queen’s Medical Centre outlining our concerns:

Dr Peter Homa
Chief Executive
Nottingham University Hospitals NHS Trust
Hospitals Headquarters
Queens Medical Centre
Derby Road
NOTTINGHAM
NG7 2UH  

  • Writing to your local MP

Members of Parliament (MPs) can be a powerful influence on those making local decisions.

Please also ask your MP to write to the Queen’s Medical Centre and Nottingham PCT, highlighting your concerns about the threat.

In your letter you may want to include information about the role of the epilepsy specialist nurse; your concerns about the threat; and any examples of your personal experience of the epilepsy specialist nurses.

You may also want to ask your MP to sign the Early Day Motion (no.541) that has been presented to the House of Commons about epilepsy services provision.

An Early Day Motion is a way for MPs to call for a debate on a particular subject. The purpose is to allow MPs to draw attention to an issue and to ask for support for their views by inviting other MPs to add their signatures in support of the motion.

Try to keep your letter to one side of A4 as this makes the letter easier to read and helps to set out the main points. You can change the font and margins to help you achieve this but always make sure the letter is easy to read.  

  • Case studies

People’s personal experiences can play a powerful part in campaigning so any help you can offer would be much appreciated.

If you would be willing to talk to the media about your personal experiences of the epilepsy specialist nurse, please contact Epilepsy Action's press office on +44(0)113 210 8870 or email press@epilepsy.org.uk. You will need to be happy to be photographed.  

  

More information?

If you require any further information or advice on campaigning please contact Pete Scott, Epilepsy Action's Campaigns & Policy Officer, by phone on on +44(0)113 210 8877 or by email to pscott@epilepsy.org.uk

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