The Chief Medical Officer for England, Sir Liam Donaldson, included epilepsy in his 2001 Annual Report. He said:
“Five earlier reports have remained largely unimplemented, negative attitudes to epilepsy still persist in our society, and the disease remains an unglamorous area of clinical practice”
"Since 1953 there have been five government reports (in 1953, 1956, 1969, 1986 and 1999) which have drawn much the same conclusions about the fragmented and poorly co-ordinated service provision, yet there has been no major change. This suggests a serious failure to act and underlines the ignorance and apathy towards the needs of people with this common disorder."
Those five reports were:
- Ministry of Health National Assistance Act 1948
Welfare of Handicapped persons: the special needs of epileptics and spastics.
London: Ministry of Health, 1953
- Central Health Services Council, Ministry of Health,
Medical care of epileptics: Report of the sub-committee of the Central Health Services Council.
London: HMSO, 1956 (Chairman: Lord Henry Cohen)
- Reid JJA . People with epilepsy.
Report of a joint sub-committee of the standing medical advisory committee and the advisory committee on the health and welfare of handicapped persons.
London: Department of Health and Social Security, 1969.
- Winterton PMC. Report of the working group on services for people with epilepsy: a report to the Department of Health and Social Security, the Department of Education and Science and the Welsh Office.
London: HMSO, 1986. (Chairman: Miss PMC Winterton).
- Kilson A, Shorvon S, Clinical Standards Advisory Group. Services for patients with epilepsy: a report of a CSAG Committee.
London: Department of Health, 2000 - available online
Then in May 2002, a further report, into SUDEP (Sudden Unexpected Death In Epilepsy), was released:
- Hanna N J, Black M, Sander JW, Smithson WH, Appleton R, Brown S, Fish DR. The National Sentinel Clinical Audit of Epilepsy-Related Death: Epilepsy – death in the shadows. London: The Stationery Office, 2002