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Consensus statement

To show support for epilepsy specialist nurses (ESNs), doctors and organisations with an interest in epilepsy have come together and put their name to a statement of support.

This consensus statement was published in the ‘Letters to Editor’ section of The Daily Telegraph on Thursday 12 August 2010.

If you are a clinician and would like to add your name to this consensus statement, please email pscott@epilepsy.org.uk.

Statement

Epilepsy specialist nurses (ESNs) play a central role in the treatment and care of people with epilepsy. There are around 250 ESNs in the UK. However, on the basis of the recommendations of the All Party Parliamentary Group for Epilepsy, 1,100 nurses would be needed to provide comprehensive cover for the UK.

ESNs review the control of seizures, adjusting or changing medication as required, and provide essential advice and information. They give support and time to help reduce the impact of a serious and often misunderstood condition. Their educational role includes helping patients to understand risks associated with epilepsy and cope with emergencies.

By dealing with many practical problems, ESNs also free up neurologists to concentrate on more complex cases. They make comparatively inexpensive early interventions which may reduce more expensive emergency care.

In these times of economic uncertainty and budget restraint, trusts are understandably looking to make savings. It is for this reason that we believe it is important to highlight the invaluable contribution of ESNs. We are aware that some ESNs are being asked to do reduced hours in their speciality and a number of posts are under review. Such reductions threaten the quality of patient care and any economies will be false because they will impact adversely on patient care. We call for an end to these cuts and a national plan to ensure all patients who need to access an ESN can do so.

Full list of signatories, as of 11 August 2010.

Dr Richard J Abbott, Leicester General Hospital
Dr Naghme Adab, University Hospital Coventry
Dr Jane Adcock, Royal Berkshire Hospital
Dr Olukemi Adejare, Queen Elizabeth II Hospital
Dr Zed Ahmed, ABM East Learning Disabilities Directorate
Dr Gonzalo Alarcon, King's College Hospital
Dr Asya Al-Kharusi, Southport & Formby District General Hospital
Dr Holger Allroggen, George Eliot Hospital
Dr Richard E Appleton, Alder Hey Children's Hospital
Dr Ali Y Al-Memar, Kingston Hospital
Dr K Anderson, Seaview Child Development Centre, Brighton General Hospital
Dr Heather Angus-Leppan, Barnet Hospital
Dr Sarah Aylett, Great Ormond Street Hospital for Children
Dr Rebecca L M Aylward, Torbay Hospital
Professor Gus Baker, Head of Division of Neuroscience, University of Liverpool
Dr Pronab K Bala, Airedale General Hospital
Dr David E Bateman, Sunderland Royal Hospital
Dr Michelle Barber, Royal Gwent Hospital
Dr Jane Baxter, Lincoln County Hospital
Dr Peter Baxter, Sheffield Children's Hospital
Dr Richard C Beach, Norfolk and Norwich University Hospital
Mr Debapriya Bhattacharyya, Royal Hallamshire Hospital
Dr Jonathan M B Bird, Frenchay Hospital
Dr Martyn Bracewell, Ysbyty Gwynedd
Dr Karen J Brackley, Princess Anne Hospital
Professor Stephen W Brown, Neuropsychiatry, Epilepsy and Memory Service
Dr Andrea Caldwell, Kirklands Hospital
Mr Michael R Carter, Frenchay Hospital
Dr Andrea E Cavanna, The Barberry National Centre for Mental Health
Dr Nick P C Cavanagh, London North Thames Private Hospitals
Dr Dennis Chan, Royal Sussex County Hospital
Dr Anne-Marie Childs, Leeds General Infirmary
Professor Richard Chin, School of Medicine, Swansea University
Dr M S Chong, Medway Maritime Hospital
Dr Muhammad R Chowdhury, Conquest Hospital
Dr Gabriel Chow, Nottingham University Hospitals NHS Trust
Dr Michael A Clarke, Leeds General Infirmary
Dr Peter G Cleland, Sunderland Royal Hospital
Dr Hannah R Cock, St George's Hospital
Dr Suzanne Coney, Royal Manchester Children's Hospital
Dr John J Craig, Royal Victoria Hospital
Professor Pamela M Crawford, York Hospital
Dr Peter H S Critchley, Leicester General Hospital
Professor Helen, Cross, The Prince of Wales's Chair of Childhood Epilepsy
Dr Lyvia Dabydeen, Leicester Royal Infirmary
Dr Krishna B Das, The National Centre for Young People with Epilepsy
Dr Paul Davies, Northampton General Hospital
Dr C de Goede, Royal Preston Hospital
Dr R Shane Delamont, King's College Hospital
Dr Gary J Dennis, Royal Hallamshire Hospital
Dr Menaka De Silva, Princess Royal University Hospital
Dr Anita M Devlin, Newcastle General Hospital
Dr Penelope J Dison, New Cross Hospital
Dr Nicholas Driver, Royal Surrey County Hospital
Professor John S Duncan, The National Hospital for Neurology and Neurosurgery
Dr Roderick Duncan, Southern General Hospital
Dr Susan Duncan, Western General Hospital
Dr Colin P Dunkley, King's Mill Hospital
Dr Cathy Ellis, Medway Maritime Hospital
Dr Mohamed O El Tahir, Llwyneryr Assessment and Treatment Unit
Dr Roland Etti, Russells Hall Hospital
Dr Paul D Eunson, Royal Hospital for Sick Children
Dr Andrew Lloyd Evans, Northwick Park Hospital
Dr Andrew N W Evans, BMI The Blackheath Hospital
Dr Robert W Evans, Prince Charles General Hospital
Dr Colin Ferrie, Leeds General Infirmary
Dr Gerald T Finnerty, King's College Hospital
Dr Alan Forster, Aberdeen Royal Infirmary
Dr Amanda Freeman, Queen Alexandra Hospital
Dr Tarek Gaber, Wrightington, Wigan and Leigh NHS Foundation Trust
Dr Clare Galton, The Ipswich Hospital NHS Trust
Dr Vandna Gandhi, Luton & Dunstable Hospital
Dr Linda M Gerrie, Aberdeen Royal Infirmary
Dr William Gibb, Queen Alexandra Hospital
Dr Frances M Gibbon, University Hospital of Wales
Dr John Gibbs, Countess of Chester Hospital
Dr John Goodden, Sheffield Children's Hospital NHS Trust
Dr Jayaprakash A Gosalakkal, Leicester Royal Infirmary
Dr Peter J Goulding, Leeds General Infirmary
Dr Robert Grant, Western General Hospital
Professor William P Gray, Southampton General Hospital
Dr Richard A Grunewald, Royal Hallamshire Hospital
Dr Iolanda Guarino, Torbay Hospital
Dr Christopher Halfpenny, Queen Alexandra Hospital
Dr Khalid Hamandi, University Hospital of Wales
Dr Alexander Hammers, Charing Cross Hospital
Dr Eleanor Hancock, Chelsea and Westminster Hospital
Dr Marie Hanlon, Worcestershire Royal Hospital
Dr K Harkness, Sheffield Teaching Hospitals NHS Foundation Trust
Dr Sian M Harris, Royal Cornwall Hospital
Dr Christine Harrison, Rotherham General Hospital
Dr Yvonne Hart, Royal Victoria Infirmary
Dr Richard H Hatfield, University Hospital of Wales
Dr Susan Haves, Bishop Auckland General Hospital
Dr Cheryl Hemingway, Great Ormond Street Hospital for Children
Dr A H Hewazy, Southend Hospital
Dr Isobel Heyman, Great Ormond Street Hospital for Children
Dr David Hilton-Jones, Milton Keynes General Hospital
Dr Frank Hinde, Princess Royal Hospital
Dr Daniel T Hindley, Halliwell Children's Centre
Dr Karen A Horridge, Sunderland Royal Hospital
Dr Stephen J L Howell, Royal Hallamshire Hospital
Dr Adrian Hughes, Arrowe Park Hospital
Dr Elaine Hughes, King's College Hospital
Dr Imelda Hughes, Royal Manchester Children's Hospital
Dr Stephen J Hunt, Royal Victoria Hospital
Dr Mark Hunter, Northampton General Hospital
Dr Kate Z Irwin, St Peter's Hospital
Dr Margaret J Jackson, Royal Victoria Infirmary
Professor Ann Jacoby, University of Liverpool
Dr Sudad Jawad, Cardiff South East CMHT, Links Centre
Dr Rosalind J Jefferson, Royal Berkshire Hospital
Mr Alistair Jenkins, Newcastle General Hospital
Dr Robert W A Jones, Derriford Hospital
Dr Fady Joseph, Royal Gwent Hospital
Professor Michael P Kerr, ABM East Learning Disabilities Directorate
Dr Munera I Khan, Tameside General Hospital
Dr Lucy Kinton, Basingstoke and North Hampshire Hospital
Dr V J Klimach, Glan Clwyd Hospital
Dr Rachel Kneen, Alder Hey Children's Hospital
Dr Mudit Kumar, Wexham Park Hospital
Dr Ram Kumar, Alder Hey Children's Hospital
Dr Horn Ming Lai, Royal Victoria Infirmary
Dr Michelle V Lambert, International Centre for Neurorehabilitation and Neuropsychiatry
Dr Mark Lawden, Leicester General Hospital
Dr Geoffrey R Lawson, Sunderland Royal Hospital
Dr Charlotte Lawthorn, Nevill Hall Hospital
Dr Andre Leonard, Staffordshire General Hospital
Dr Robert Levy, Fairfield General Hospital
Dr Hilary Lewis, Royal Gwent Hospital
Dr Rebecca Liu, Royal Free Hospital, Hampstead
Dr John H Livingston, Leeds General Infirmary
Dr Ron Lowe, Royal United Hospital, Bath
Dr Dora A Lozsadi, Queen Elizabeth Hospital
Dr Paul Maddison, Royal Derby Hospital
Dr Javed Mahmood, Queen's Hospital Burton
Dr Anirban Majumdar, Bristol Royal Hospital for Children
Dr Hadi Manji, Ipswich Hospital
Professor Anthony Marson, University of Liverpool
Dr Adelaida Martinez, Royal London Hospital
Dr Anna Mathew, Worthing Hospital
Dr Satheesh Mathew, Newham University Hospital
Dr Milica Mavra, Southend University Hospital
Dr Mark McCarron, Western Health and Social Care Trust
Dr David C McCormick, King's College Hospital
Dr Marian E L McGowan, St George's Hospital
Dr Paul McKee, James Cook University Hospital
Dr Brendan N McLean, Royal Cornwall Hospital
Dr Ailsa E McLellan, Royal Hospital for Sick Children
Dr Michael Anthony McShane, John Radcliffe Hospital
Dr Michael Milner, James Cook University Hospital
Dr John Mitchell, Eastbourne District General Hospital
Dr Rajiv Mohanraj, Salford Royal NHS Foundation Trust
Dr Carl Christian Moor, University Hospital Of North Staffordshire
Dr Santosh Mordekar , The Ryegate Children's Centre
Dr Paul Morrish, Gloucestershire Royal Hospital
Dr Jim Morrow, Belfast City Hospital
Dr Nandini Mullatti, King's College Hospital
Professor Deborah Murdoch-Eaton, Leeds General Infirmary
Dr N S Mytheen, City Hospital
Dr Eisawi Nagmeldin, Rotherham General Hospital
Dr Siva Nair, Rotherham General Hospital
Dr Lina Nashef, King's College Hospital
Dr Christian Neumann, Falkirk and District Royal Infirmary
Dr Piers Newman, Princess Royal Hospital
Dr Richard W Newton, Royal Manchester Children's Hospital
Dr David Nicholl, City Hospital
Dr Simon Nightingale, Royal Shrewsbury Hospital
Dr Stephen Nirmal, James Paget University Hospital
Dr Kannan Nithi, Northampton General Hospital
Dr Hazim Obaydi, Cell Barnes Hospital
Dr Corina O'Neill, Wood Street Health Centre CDC
Dr Mary O'Regan, Royal Hospital for Sick Children, Yorkhill
Dr Rupert Page, Poole General Hospital
Dr Kiang A Pang, Royal Victoria Hospital
Dr Jayeshkumar Patel, Bristol Royal Hospital for Children
Dr Deirdrie Peake, Royal Victoria Hospital, Belfast
Dr Ronald KB Pearce, West Middlesex University Hospital
Dr Nandhini G Prakash, The Royal Oldham Hospital
Dr Christopher Price, Taunton and Somerset NHS Trust
Dr Jennifer Quirk, Princess Royal University Hospital
Dr Kajal Rakshi, Royal Blackburn Hospital
Dr Chaniyil A Ramesh, Watford General Hospital
Dr Venkateswaran Ramesh, Newcastle General Hospital
Dr Tekki S Rao, Luton & Dunstable Hospital
Dr Damitha D Ratnasinghe, West Middlesex University Hospital
Dr Malkanthi Ratnayaka, Derbyshire Children's Hospital
Dr Asha Ravi, Barnsley Hospital NHS Foundation Trust
Professor Mark Rees, School of Medicine, Swansea University
Dr John Reid, Aberdeen Royal Infirmary
Dr Markus Reuber, Royal Hallamshire Hospital
Dr Hugh Richards, Birmingham and Solihull Mental Health Foundation Trust
Mr Peter L Richardson, Salford Royal NHS Foundation Trust
Dr Leone Ridsdale, Guy's Hospital
Dr Robin M Rifkin, Rochdale Infirmary
Dr Richard C Roberts, Ninewells Hospital
Dr Paula A Robertson, Queen Elizabeth Hospital
Dr Robert Robinson, Great Ormond Street Hospital for Children
Dr Steven D Rowe, Calderstones Partnership NHS Foundation Trust
Dr Aline Russell, Southern General Hospital
Dr Romi A Saha, Royal Sussex County Hospital
Dr GJF Saldanha, King's College Hospital NHS Foundation Trust
Dr Caroline Salmon, Royal Surrey County Hospital
Mr David R Sandeman, Frenchay Hospital
Arun Saraswatula, Imperial College, London
Dr Ketharanathan Saravanan, St John's Hospital
Dr Inder M S Sawhney, Morriston Hospital
Dr Fraser M Scott, Pinderfields General Hospital
Dr Rod Scott, Great Ormond Street Hospital for Children
Mr Richard Selway, King's College Hospital
Dr Arvind Sharma, Russells Hall Hospital
Dr Peta M Sharples, Bristol Royal Hospital for Children
Dr A Siddiqui, Mary Sheridan Centre
Dr Rajith de Silva, Queen's Hospital, Romford
Dr Bhupendra K Singh, Bassetlaw District General Hospital
Dr Rajeeva K Singh, Dewsbury and District Hospital
Dr Sumeet Singhal, Nottingham University Hospitals NHS Trust
Dr Arulmaran Sivaguru, Sandwell General Hospital
Dr Siva Sivakumar, University Hospital of Hartlepool
Dr David Smith, Walton Centre for Neurology and Neurosurgery
Dr Gareth D P Smith, Royal Cornwall Hospital
Dr Martin Smith, Princess Royal Hospital
Prof Philip E M Smith, University Hospital of Wales
Dr Robert A Smith, York Hospital
Dr Shelagh J M Smith, National Society for Epilepsy
Dr Stefan Spinty, Ormskirk & District General Hospital
Dr John R Staniland, Salford Royal NHS Foundation Trust
Dr Elma M Stephen, Royal Aberdeen Children's Hospital
Dr Linda Stephen, Western Infirmary, Glasgow
Dr Hugh Stewart, University Hospital of North Durham
Dr J Stewart, Royal Cornwall Hospital
Dr Beatrice Summers, Staffordshire General Hospital
Dr Inyang E Takon, Queen Elizabeth II Hospital
Professor Raymond Tallis
Dr K Kamath Tallur, The Royal Hospital for Sick Children
Dr Jackie Tay, St James's University Hospital
Dr Jayati Tarafder, Hull Royal Infirmary
Dr David Thomas, Nottingham University Hospitals NHS Trust
Dr Jane Thompson, Frimley Park Hospital NHS Foundation Trust
Dr Philip Tidswell, Royal Preston Hospital
Dr Sandya Tirupathi, Royal Victoria Hospital, Belfast
Dr John Q Trounce, Royal Alexandra Children's Hospital
Dr Alan Turner, Queen Alexandra Hospital
Dr Grace Vassallo, Oldham General Hospital
Dr Sophia Varadker, Great Ormond Street Hospital for Children
Dr Singara V Velmurugan, Royal Albert Edward Infirmary
Dr T L Venugopalan, St Lukes Hospital
Dr Tim J von Oertzen, St George's Hospital
Dr Matthew Walker, The National Hospital for Neurology and Neurosurgery
Dr M A Wallis, City Hospital
Dr Graham Warner, Royal Surrey County Hospital
Dr E Wassme, Birmingham Children's Hospital
Dr Mary Wheater, Queen Elizabeth Hospital
Dr Catherine White, Singleton Hospital
Dr Kathleen D White, Ninewells Hospital
Dr W P Whitehouse, Queens Medical Campus
Dr Andrea Whitney, Southampton General Hospital
Dr Udo C Wieshmann, Walton Centre for Neurology and Neurosurgery
Dr Ruth E Williams, Evelina Children's Hospital
Dr Mark Willmot, University Hospitals Birmingham NHS Foundation Trust
Dr Lapkong Yeung, University Hospital of South Manchester
Dr Bryan D Youl, Royal Free Hospital
Dr Shahid H Zaman, East Cambridgeshire Learning Disabilities Team
Dr Martin Zeidler, Victoria Hospital
Professor Adam Z J Zeman, Royal Devon and Exeter Hospital, Wonford
Dr Sameer M Zuberi, Royal Hospital for Sick Children, Yorkhill

The Baroness Ford of Cunninghame, President, Epilepsy Action
Dr Peter Baxter, President of the British Paediatric Neurology Association
Ms Elaine Bradley, Service Manager, Quarriers
Professor Martin J Brodie, Chair, Scottish Epilepsy Initiative
Dr Peter Carter, Chief Executive & General Secretary, Royal College of Nursing
Mr James Connelly, Chief Executive, St Elizabeth's Centre
Ms Karen Deacon, Chair, Joint Epilepsy Council of the UK and Ireland
Mr James Fitzpatrick, Director, Roald Dahl's Marvellous Children's Charity
Mr David Ford, Chief Executive, National Centre for Young People with Epilepsy
Ms Melesina Goodwin, Chair, Epilepsy Specialist Nurses Association
Ms Jane Hanna, Director, Epilepsy Bereaved
Ms Janet Henderson, Director, Epilepsy West Lothian
Ms Anne Inman, Mersey Region Epilepsy Association
Ms Simone Jeacock, Acting Chief Executive, Meath Epilepsy Trust
Ms Monica Kendall, Chair, Epilepsy HERE
Ms Shirley Maxwell, Executive Director, Epilepsy Connections
Professor Mark Rees, Executive Director, Welsh Epilepsy Research Network (WERN)
Mr Fred Savill, Chair, Gravesend Epilepsy Network
Professor Phil Smith, President of the UK Chapter, International League Against Epilepsy
Ms Eileen Springford, Chair, National Society for Epilepsy
Mr Anthony Waters, Chief Executive, The David Lewis Centre
Ms Emma Williams, Founder, Matthew's Friends

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