What's the issue?
In March 2018, Public Health England published a report that showed deaths in people with epilepsy have increased by 70%. Figures show that people with the condition now die on average eight years earlier than the rest of the population.
The report also found people with epilepsy are three times more likely to die from their condition if they live in a deprived area. Epilepsy is the only neurological condition with a significant relationship between deprivation and mortality.
Epilepsy Action believes these figures are shocking and completely unacceptable. We are concerned that epilepsy is treated as an afterthought by the NHS system. We believe the lack of priority given to epilepsy within the healthcare system has directly contributed to the increase in premature mortality rates.
Epilepsy Action wants to see the health inequalities faced by people with epilepsy addressed immediately. With the right care and support, 20% more people could be seizure free. Better seizure control would improve their lives and could ultimately reduce the likelihood of death associated with the condition. We want the government and commissioners to act now and give epilepsy the attention it deserves.
What we are doing
Epilepsy Action is supporting SUDEP Action’s call for action against epilepsy deaths. They have written to the Secretary of State for Health and Social Care on behalf of 9 organisations to request a meeting.
As a member of the Neurological Alliance we also wrote to the Sunday Times, calling for urgent action to be taken to protect society’s most vulnerable.
How you can be involved
We need your help to bring this issue to the attention of the government.
We are supporting SUDEP Action in their call to action. You can pledge your support for their campaign here. They have a template letter for you to download if you want to write to your MP about the issue. Don’t forget to let us know if you take action.
We want to hear your stories. If you have been affected by this issue, and want to share your experience, please email firstname.lastname@example.org