We exist to improve the lives
of everyone affected by epilepsy

Work, health and disability: improving lives

What's the issue?

In October the government announced a major consultation. It wants to know what it can do to help disabled people and people with long-term health conditions find and stay in work. The government wants to halve the disability employment gap. It hope the proposals in this green paper will help to achieve this.

Some of the things the ‘Work, health and disability: improving lives’ green paper will look at include:

  • ways of supporting more people into work and to stay in work
  • changes to benefits assessments
  • supporting employers to recruit and retain more people with disabilities and long-term health conditions
  • attitude to disability and employment

What we are doing

We want to make sure the views of people with epilepsy are represented in the consultation. We will be working with others to develop a response that highlights specific barriers for people with epilepsy and provide solutions to remove them.

The green paper is a real opportunity to shape future policy in this area. We want to make sure any proposals work for people with epilepsy who may find it difficult to work, find work or stay in work.

How you can be involved

The full government consultation can be found on their website and covers a wide range of employment issues. It is aimed at everyone with a disability or health condition.

We want to make sure that our response specifically highlights the needs of people with epilepsy so it is important that we hear your views and experiences. We are particularly interested in:

• Your experiences in employment

• Your experiences when looking for work

• Your experiences of employers

• Your experiences claiming Employment and Support Allowance

• Your experiences of Fit For Work or Occupational Health Services

• How epilepsy has affected your ability to work or find work

• What barriers you have faced working or looking for work

• What you think the government can do to make it easier for people with epilepsy to find and stay in work

If you are interested in talking to us please email campaigns@epilepsy.org.uk with your contact details and or call Anastasia Berry on 0113 210 8847 for more information on how you can be involved.

Event Date: 
Wednesday 14 September 2016 - 09:32

Comments: read the 4 comments or add yours


This really makes me laugh. I have just been retired on grounds of ill health after working 8 years for DWP. I have complex partials and memory problems. They are not good employers for disabled people themselves yet try to preach to the private sector. I couldnt meet their standards im afraid and they said there wasnt another job for me. WCA next for me but atleast i know what to expect. They treat employees just as badly as custtomers.

Submitted by annem on

I have been told that iam on suspension of my job. I was late by 1 hour due to a previous seizure. I came to work not feeling well being told of various petty issue and complaints.
I got angry to my work colleague as she reported me to my boss.
Lately I feel angry often as she is continuously phoning my boss about me
Can I beat the suspension

Submitted by Gary thomas on

Hi Gary 

It sounds like things at work are a bit tough at the moment. 

Here is all our information about work. Because you have epilepsy you are likely to be covered by the Equality Act. If your employer knows you have epilepsy, they have to do a risk assessment. If any risks are identified, they then need to consider any possible reasonable adjustments. I wonder if you and your employer have had this conversation?

If you are going to have a meeting with your boss and you’re still feeling angry, you might want to take someone with you who could help you get your views across in as calm a way as possible.

If you think your colleague or boss is not behaving fairly, the first thing to do is to look at the terms and conditions of your contract. This will give you information about how to take out a grievance procedure.

For more information about employment rights, contact ACAS. For more information about possible disability discrimination, contact the Equality Advisory Support Service. We also have links to other useful sources of information and advice.

I do hope it is possible to sort things at work. But if we can be of any more help, please feel free to contact us again, either by email or the Epilepsy Helpline freephone 0808 800 5050.



Epilepsy Action Helpline Team

Submitted by rich on

First of all trouble in finding an employer willing to employ you is hard then when fellow mployees don't think you can do the job so refuse to give you work is bad enough but being told that you shouldn't work there even when qualified but being told by boss to go for a medical surgery takes the biscuit. Employers have told me not suitable for a none driving position job ie clerical not suitable because I can't drive
until government disability part of the work place employment is always going to be a joke. It is a static that the disabled are the least likely to get a job. Even though most would like one. Government will to teach employer's what disabled people can do. And not just expect them to jump and find a job like everyone else

Submitted by Graham on