We exist to improve the lives
of everyone affected by epilepsy

Local services events in the UK

  • Jamie a the Weekend for all 2012This page is about events for people with epilepsy and their families
  • We also have information on professional epilepsy training courses

The local services team at Epilepsy Action organises a series of events each year. They range from workshops and seminars to roadshows and activities in sport or the arts.

Epilepsy on the beach 2012These events provide people with epilepsy their families, carers and professionals the opportunity to

  • meet other people living with epilepsy
  • get up to date information about epilepsy 
  • get involved, ask questions or give input
  • learn more about Epilepsy Action
  • take part in activities in a safe environment 

Epilepsy on the beach 2012Some events are run for half a day or an evening, some for a full day. Refreshments are provided with lunch being offered at full day events.

  • Ticket prices where applicable cover the cost of refreshments and any literature available.
  • Many events are free to attend.
  • This page is updated as information and booking forms for each event is available.
  • Hereford information dayPlease click on the information about the event and on the booking form to download the form.
  • Bookings should be made at least seven days in advance of the event.

For more information on any event listed please contact the local services department on 0113 2108 800 or email LSO@epilepsy.org.uk

Find out what is happening in your local area including events, groups and branch activities in the latest edition of Trunk.

Local event dates

Treatment options beyond medication for hard to control epilepsy

  • Guildford - Saturday 8 March
  • Liverpool - Saturday 17 May
  • Aberystwyth - Saturday 18 October
  • Bristol - Saturday 22 November

Find out more

Understanding more about Sudden Unexpected Death in Epilepsy (SUDEP)

A twilight meeting for GPs, nurses, health and social care professionals interested in understanding more about Sudden Unexpected Death in Epilepsy (SUDEP).

  • Cardiff - Wednesday 30 April 2014
  • Belfast - Wednesday 21 May 2014
Find out more

Reducing risks when living with epilepsy

  • Bournemouth - April 2014
  • Solihull - Saturday 17 May 2014
  • Middlesbrough - Saturday 11 October 2014
  • Brentwood - Saturday 18 October 2014
Find out more
 

If you would like more information about any of these events, please contact our local services team here at Epilepsy Action, either by phone on 0113 210 8800 or by email to LSO@epilepsy.org.uk.

Comments: read the 11 comments or add yours

Comments

When I had to change my tablets .Due to weight gain, also IBS . So I went
on to Keppra , when I was on this tablets . My grand mall changed to shakes, awake, know what is happening . Were my grand mall was black out, then wake up 3 or up to 10 minutes later,without knowing what happened. Now I have changed to Lamotrigine , I have know idea what will happen when the tablets are working after the Keppra is out of my system , I am frightened .

Yours Faithfully
K Hoolbrook

Submitted by kay holbrook on

Hi K Hoolbrook,

Thank you for your comment. It can be a frightening time when change your epilepsy medication. It can be especially frightening if you have had problems with epilepsy medicines in the past. But just because you have had problems in the past it doesn’t mean you will have problems with the change to lamotrigine. Hopefully, this may be the right medication for you.

If you are still struggling with the drug change over, maybe you could talk thing over with your epilepsy consultant, family doctor or epilepsy nurse.

I hope the change over goes well. If we can be of any more help, please feel free to contact us again, either by email helpline@epilepsy.org.uk or the Epilepsy Helpline freephone 0808 800 5050.

Regards

Diane
Advice and Information Officer

Submitted by Diane@Epilepsy ... on

Hi
Can you please tell me if there are any events local to London and we would like to take part in a sponsored walk.

Thanks Naomi. Friend to someone with epilepsy.

Submitted by Naomi Pickett on

Hey I've had epilepsy for 10 years now and I've just been put on keppra it's making me really tired and I'm having trouble swallowing them i don't no what to do as they won't put me on liquid meds can anyone help and also I live on my own and I have fits in the day and night and I'm just scared that I'm going to hurt myself one day I've already been hospital 2 times this month as keep falling over help ???? Thanks beckii

Submitted by Beckii on

Hi

Thank you for your message. We would really like to help you, but think the best way to do that would be through the Epilepsy Helpline (freephone) 0808 800 5050 or by email at helpline@epilepsy.org.uk. We look forward to hearing from you.

Kathy

Advice and Information Team

Submitted by Kathy on

Hi I have been on Keppra for 5 years I have had no seizures but then suffered one in June the doc upped my doseage to 3 keppra in the morning and 3 at night they are working really well and I used to have what I describe as dejavu they have also stopped this

Hope your ok

Thanks

Zoe

Submitted by Zoe Seddon on

Hi, I'd really like to volunteer with coffee mornings, fund raising, info days and maybe a charity shop or market. I can't find anything in Gloucestershire. I live in Cheltenham. Are there no EA groups here yet? Could I look into starting one? Please advise how to proceed. My son also wants to work with EA he is 17 in December, we both have Epilepsy. Mine is well controlled his not so much. Kind regards, Jessie & Oscar. :-)

Submitted by Jessica Little on

Hi Jessica

Thank you for your message and your offer of support!

The easiest thing to do would probably for you to email our National Coordinator of Volunteers, Dyfed on dfoulkes@epilepsy.org.uk 

I have mentioned to Dyfed that you'll be in touch and he his happy to help.

Many thanks

John

Submitted by John - Web Cont... on

My consultants don't know which 'type' of epilepsy I have. I have Grand Mals/Tonic clonics, and have been changing meds for the last...I don't know....decade or so, as they cannot work out which is best for controlling my epilepsy. Now, due to the meds I am currently on, I have put on a lot of weight, and that has made me fed up, as well as actually the seizures themselves. Views and advice from others would be gratefully accepted!

Submitted by KW on

Hi KW

Sorry you haven’t had other responses to your web comment. For feedback from other people with epilepsy, you could either post the question on Facebook. Or you could join our online community, forum4e.

Not responding to the medicines for so long sounds difficult. The NICE guidelines say that in this situation you have a right to ask for your condition to be looked at again. There are two ways you could do this. You could ask your family doctor or consultant to refer you for a second opinion. Or you could ask to be sent for further testing and a check of your diagnosis at a specialist centre.

Also, there are many different epilepsy medicines. So if you are on one that is making you put on a lot of weight, it would always be possible to go back to your specialist and discuss using a different epilepsy medicine.

I do hope things improve for you soon.

Cherry

Advice and Information Team

Submitted by Cherry on

Hi, I live in Oldham, Greater Manchester and have suffered from epilepsy for 33 years, there are no support groups in our area at all...nearest one is Rochdale once a month, which with not being able to drive is difficult to get to in the evening. I would like to set up a coffee and chat group and if that is successful a support group in my area, how would I go about this?. Thank You :)

Submitted by Suzanne Henshaw on

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