We exist to improve the lives
of everyone affected by epilepsy

Local services events in the UK

The local services team at Epilepsy Action organises a series of events each year. They range from workshops and seminars to roadshows and activities in sport or the arts.

Find out what events are happening near you

Epilepsy on the beach 2012These events provide people with epilepsy their families, carers and professionals the opportunity to

  • meet other people living with epilepsy
  • get up to date information about epilepsy 
  • get involved, ask questions or give input
  • learn more about Epilepsy Action
  • take part in activities in a safe environment 

Epilepsy on the beach 2012Some events are run for half a day or an evening, some for a full day.

For more information on the events we do, please contact our local services department on 0113 2108 800 or email LSO@epilepsy.org.uk

Comments: read the 7 comments or add yours

Comments

Hi I have been on Keppra for 5 years I have had no seizures but then suffered one in June the doc upped my doseage to 3 keppra in the morning and 3 at night they are working really well and I used to have what I describe as dejavu they have also stopped this

Hope your ok

Thanks

Zoe

Submitted by Zoe Seddon on

Hi, I'd really like to volunteer with coffee mornings, fund raising, info days and maybe a charity shop or market. I can't find anything in Gloucestershire. I live in Cheltenham. Are there no EA groups here yet? Could I look into starting one? Please advise how to proceed. My son also wants to work with EA he is 17 in December, we both have Epilepsy. Mine is well controlled his not so much. Kind regards, Jessie & Oscar. :-)

Submitted by Jessica Little on

Hi Jessica

Thank you for your message and your offer of support!

The easiest thing to do would probably for you to email our National Coordinator of Volunteers, Dyfed on dfoulkes@epilepsy.org.uk 

I have mentioned to Dyfed that you'll be in touch and he his happy to help.

Many thanks

John

Submitted by John - Web Cont... on

My consultants don't know which 'type' of epilepsy I have. I have Grand Mals/Tonic clonics, and have been changing meds for the last...I don't know....decade or so, as they cannot work out which is best for controlling my epilepsy. Now, due to the meds I am currently on, I have put on a lot of weight, and that has made me fed up, as well as actually the seizures themselves. Views and advice from others would be gratefully accepted!

Submitted by KW on

Hi KW

Sorry you haven’t had other responses to your web comment. For feedback from other people with epilepsy, you could either post the question on Facebook. Or you could join our online community, forum4e.

Not responding to the medicines for so long sounds difficult. The NICE guidelines say that in this situation you have a right to ask for your condition to be looked at again. There are two ways you could do this. You could ask your family doctor or consultant to refer you for a second opinion. Or you could ask to be sent for further testing and a check of your diagnosis at a specialist centre.

Also, there are many different epilepsy medicines. So if you are on one that is making you put on a lot of weight, it would always be possible to go back to your specialist and discuss using a different epilepsy medicine.

I do hope things improve for you soon.

Cherry

Advice and Information Team

Submitted by Cherry on

Hi, I live in Oldham, Greater Manchester and have suffered from epilepsy for 33 years, there are no support groups in our area at all...nearest one is Rochdale once a month, which with not being able to drive is difficult to get to in the evening. I would like to set up a coffee and chat group and if that is successful a support group in my area, how would I go about this?. Thank You :)

Submitted by Suzanne Henshaw on

Is there a coffee and chat or support group for city of Manchester?
If you live in Manchester and interested in sharing your patient experience of living with epilepsy, please email talkinghealthmanchester.nhs.net

Submitted by Val on