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of everyone affected by epilepsy

Thanks for sharing your views!

Your insight into Epilepsy Action membership is so important.

We’ll be collecting more feedback from across the epilepsy community over the next few weeks. If we need to make changes to Epilepsy Action membership, we’ll do so in 2018. But don’t worry, we’ll let you know what we’re planning in plenty of time!

If you’re already a member, don’t forget to check up on your latest member benefits.

Not yet a member? While you’re here, have a look at your options for joining and see what you get for being a member of the UK’s biggest epilepsy movement!

Event Date: 
Tuesday 3 October 2017 - 09:32

Comments: read the 5 comments or add yours

Comments

My epilepsy did not start until age 50 with menopause. They're's little information on the subject. I did find info on this site!!!!!
Menopause/Epilepsy. I've finally found a
doctor to listen to me. My seizures have lessened hoping they will be gone once I'm through menopause.

Submitted by Cindy Rogatsky (not verified) on

I AM SADDENED BECAUSE ALTHOUGH MY GRAND MAL SEIZURES HAVE REDUCED IN NUMBER THE MEMORY PROBLEMS ARE VERY SEVERE. PERHAPS OTHER SUFFERERS CAN SEND ME A MESSAGE OF HOPE IF THEIR MEMORY IMPROVED THROUGH EPILEPSY ACTION.

Submitted by CAROLINE OLDFIELD (not verified) on

It is actually my son who has epilepsy, so he is the member of EA ( at my suggestion) but i have always been able to get lots of information and support from EA website and helpline, it's a minefield when it comes from out of the blue. We certainly need more education and understanding across the board. My son was 17/18 when his seizures started, for no apparent reason, he is now 38 and they are pretty well controlled but he knows his limitations in life! We did pay privately to see a neurologist eventually because of the waiting lists with the NHS, this was back in 2000/2001, but not everyone has that choice, the government really need to address this problem. EA are an excellent source of support when you are feeling very lost.

Submitted by June Brown (not verified) on

Thank you so much for sharing your feedback June. It's really good to know that we have been able to help your family.

If you would ever like to share your story we have a section on the website for this:

https://www.epilepsy.org.uk/my-story

Best wishes

James
Individual Giving and Membership Manager

Submitted by James-Epilepsy ... (not verified) on

Thank you so much for sharing your feedback June. It's really good to know that we have been able to help your family.

If you would ever like to share your story we have a section on the website for this:

https://www.epilepsy.org.uk/my-story

Best wishes

James
Individual Giving and Membership Manager

Submitted by James-Epilepsy ... (not verified) on