I had my first seizure in the early morning of my 14th birthday. All I remember from that morning was a bright light in my eyes. A few weeks later I went to a sleep over & ended up having tonic chronic seizures, one after the other. This time I was awake during them all. Which is a feeling I couldn’t explain, I felt like I was drowning & would scream before my seizure.
I spent a long time going in & out of hospital for checks which meant I lost a lot of school time. When I did go back, the word had already spread from the sleep over & I lost friends, got bullied & fell behind on my school work. I ended up leaving as I felt like a alien. I felt angry, upset at why I couldn’t control my own body. My life at home fell apart & ended up living with my dad in London.
I am now nearly 30, a single mum of 2 that does weight lifting & bodybuilding. Just because I have epilepsy I shouldn’t let it control my life. I am in control. I got told I shouldn’t weightlift because of my epilepsy. Why not? Why should we not do something we enjoy just because of a disability? I work as a personal trainer now helping others achieve goals & show no matter what, don’t let something get in your way!