From the age 14, I'd get ready for school in the morning and have a cup of tea. My arm would jerk slightly. I thought it was normal. I just carried on with my day.
That happened for years. I didn't think anything of it really. I had my first baby in 2017. I was 19 years old.
In September 2017 it was my partners 21st birthday party. It was really late when we got home. I went straight to bed and took my baby up to bed too. He woke up for a feed at 3 in the morning. I went to make him a bottle.
I jerked badly. I spilt boiling hot water all over myself. I stood up with my baby in my arms, jerked and fell on my face (my son was fine. Not injured at all). All I can remember was my partner telling me to get into bed. I got into bed and woke up in an ambulance.
I had my first grand mal seizure. It was horrifying. From that point I had to see a neurologist. He said it was just a panic attack. I had another 3 grand mal seizures at the end of that year and the start of 2018. I had a normal EEG. It came back all clear.
For months I've been asking myself what is wrong with me. Why am I having these random body jerks and seizures. I recently had a sleep deprived EEG at the start of 2019.
2 weeks ago I received a letter from the hospital. I have Juvenile Myoclonic Epilepsy. The jerks are Myoclonic seizures. I'm relieved because i didn't know why I were having the seizures at the time and its hard to explain what were happening to me.
I am now on Keppra and it seems to be working really well for me. I feel much happier knowing why I have seizures. For years its just been a mystery. :)