My Story: Children

Add your own

Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

Most recent | Most read

Eva-Lilly is 9 and had two focal seizures in August last year. One affected her mouth and the other affected one side of her face. She had an MRI but there were no immediate concerns. There were...

I wanted to write about my experiences of epilepsy and pregnancy to challenge the misconception that women with epilepsy should not or cannot have healthy children or look after them. ...

“Theo started to have what we could only describe at the time as ‘funny turns’. He would often describe a tingling sensation in his teeth, before losing control of his speech and muscle movements...

Our lives completely changed on the 21st December 2017.

I was having breakfast with my 2 year old daughter Eve before we set out to her playgroup Christmas party. As I spoon fed her...

Glenrothes

Ryan started having seizures as a young child, but went for five years without an official diagnosis of photosensitive epilepsy.

“It’s thought I developed my epilepsy as early as 7 but it...

Scotland