12 year ago I was having unexplained ‘episodes’, following a heart monitor for 1 week, it was found my heart was stopping for up to 15 seconds. Therefore I was given a dual chambered pacemaker for Sick Sinus Syndrome.
Unfortunately however the ‘episodes’ continued and finally having previously had a tonic clinic seizure in 2009 with no neurological follow up in 2012 I was eventually diagnosed with Complex Partial Seizures.
I have now been told they are drug resistant (having tried numerous mixtures of medications) they are unpredictable, uncontrollable and as a result my career as a psychiatric nurse and social worker was taken from me.
Loss of your independence and job is like a bereavement, extremely painful and difficult to accept and adjust to.
Words cannot fully describe the impact as you try to protect your family.