My daughter aged 13 has just been diagnosed with Jeavons syndrome a rare epileptic condition. I would love anyone who has it or knows someone who has it to get in contact with me.
This is new to us and she is now on Keppra and her last tonic clonic seizure was 5 weeks ago.
My daughter has taken her condition on board and will not let it effect her life. I am so proud of her.
I just hope she can drive and do everything she wants too in the future.
I am so grateful people are happy to share and talk about epilepsy as it really helps others.