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Theodora

Hi my name is Thea for Theodora and my age is 16 and I still have epilepsy.

Everyone calls me Thea at school and I have difficulty speaking and with language. I found out I had epilepsy when I was in year 7 or year 8.

I am feeling lonely with epilepsy and when I'm in class I feel left out because everyone else doesn't have epilepsy and I don't know if they know about epilepsy. When I have my seizures I feel terrible when people stare at me.

Sometimes I feel I don't know how to do stuff and sometimes I feel left out in football training because everyone in the football training does not have epilepsy.

I feel I am trapped inside me and can't get out and then when it comes to my friends sometimes we have arguments and then sometimes I have a seizure and I don't know how to tell some people.

Theodora
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Comments

Hi Thea...
Wow...you are absolutely amazing!
You remind me of me when I was in school.
I was diagnosed at 5, also felt embarassed and completely misunderstood ๐Ÿ˜Š I am actually sitting here writing to you with a black eye from a seizure... And am not sure what I threw myself into ๐Ÿ˜‚
The best advice I can give you about school is to get involved in what makes you happy!!!
Surround yourself with friends and people who are interested in the same things, and your teamates will naturally support you if you have a seizure.
Be honest about your condition, so they are aware and can help... those who judge are not really who you want as close friends are they?
As you go through the different seasons in your life, you will find some friends will stick by you and some will move on. It may not be because of anything to do with your epilepsy, people can outgrow one another... Its healthy to make as many friends as possible. Be grateful that we are able to do sport and embrace every day.
I hope this encourages you Thea... You are very special and are not alone xxx

Submitted by Sheree on

hi thank you what you say about epilepsy you have made my day thank you for committed about my story can we be friends Sheree

Thea

Submitted by thea on
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