I was diagnosed will epilspsy at the age of 14, almost 11 years ago now how time flights.
I wasn’t born with epilspsy and had never had a seizure before but I had a accident and I lost all speech and movement in my right side for 6 months, I was having to to 29 seizure a day. As you can imagine this was scary and horrific to be happens at this 14 when I should be excited and getting readying for my GCSE.
I didn’t give up once, I learned to move and speak again I wasn’t giving up.
I worked very hard to get where I am, I got a amazing epilspsy doctor and nurse who help me every step of the way, my seizure have never been better 9 months free.
But I want to share with you the dark side that I had to face, because I want to help people and want people to know that you can always talk to someone.
March 2020 I had to have emergency surgery (not for my epilspsy)
Because of my epilspsy the doctor wanted me to stay in hospital over night just in cares I had a bad seizure. But the hospital didn’t make room for me and actually send me home with no after care.
I was only have got 20 minutes before being rushed back into hospital. That night I had 20 seizure and a TIA it was the worst thing that had ever happened to me. I have struggled 9 mouth with my mental. I was at the lowest and my epilspsy nurse made me go to steps2wellbeing. They actually told me I PTDS and i got help with it.
People don’t take epilspsy seriously and look what happened. I will lucky that my body was fighting but someone are not lucky and epilspsy kills them. We need people to understand that we must take it seriously.
Epilspsy and mental health can be very dangerous together and I have learned that first hand.
Just you are never along