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of everyone affected by epilepsy

 

Lauren

Hi, my name is Lauren. I have a wonderful little boy named Albie who was diagnosed with Dravet Syndrome in September 2018 (Just before his 1st birthday). Albie was having lots of prolonged seizures where one resulted in him being intubated and taken to Sheffield Children's Hospital. Whilst in the Intensive Care Unit at the Children's Hospital, a Neurologist came to see me and told me she thought my son had Dravet Syndrome, a rare type of epilepsy. I thought my world had fallen apart. I was worrying what my sons future would hold and how my daughter would be affected by this massive change to our lives. Albie started anti-epilepsy medication and we were given emergency medication to give him whenever he had a seizure at home. I cried and cried after reading all the Dravet Syndrome stories trying to imagine what our lives were going to be like. But now, I have a very happy, mischievous 19 month old boy whos seizures are under control and has managed a whole 7 months without a prolonged seizures. In the last 7 months, he's only had 4 seizures which each were no longer than 3 minutes. He's hitting all of his mile stones for his age including speaking, walking, running and playing - everything a 19 month old boy should be doing! I just want people to see it's not all doom and gloom and there's hope out there for everyone. I really hope someone reads our story and I hope it help them with their Dravets Syndrone Diagnosis.

Lauren
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