My Story: epilepsy

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I grew up with Epilepsy.
Some people laughed; some people had no idea what it was or what to do; only a few people helped when I fitted - but not enough people know what it is.
I can...

Milton Keynes

My name is Amy Bassett, I am 22 years old, I live in South Wales, I study Psychology with The Open University and I have had Epilepsy for about 4 and a half years now. In July 2013 I ended up in...

Pontypridd

Although now cured by neurosurgery, Tristan suffered from uncontrollable seizures for much of his life.

Tristan feels that his greatest achievement was his perseverance until he found a job...

Coventry

I am delighted to say that we, as TeamMAX have just completed the Epilepsy Action Grand Canyon Trek in memory of my 22 month old son Max. Max tragically died in June last year due to Sudden...

Wimborne, Dorset

Becoming a fully qualified counsellor and running my own busy private practice despite never being able to complete my A-Levels or Degree due to returns of my epilepsy.

Having epilepsy made...

Cardiff

....winning National Championships for Baton Twirling many times over, and twirling at national level for a number of associations. Gemma's mum, Vicki, said: Gemma has won numerous trophies, has...

National baton twirling champion many times over

...gaining a blackbelt in Taekwondo. When i was at school i had a complete lack of co-ordination and confidence due to epilepsy and my mother and father took us to alton towers as a treat in 1990...

Andy gained a blackbelt in Taekwondo

I was diagnosed with epilepsy when I was 3 years old. At the age of ten, I was admitted to hospital with my epilepsy. When I was in hospital it was then I decided I wanted to become a nurse. I...

Became a nurse despite the odds

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