My Story: family

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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You have so many plans for the future and when they gradually start to fall apart you wonder if you can carry on.

I had my first seizure when I was 27. I'd started temping as an...


I have had juvenile myoclonic epilepsy for nearly 15 years and to be honest it does bring me down every time I get that feeling that im going to fall into a seizure.

im now at the age where...


This is my third year of having Idiopathic Epilepsy. When I was first diagnosed with Epilepsy I thought the worst and found it really difficult to cope with being in and out of hospital. I was...

Great Yarmouth

Despite have meningitis at 8 months, which left me with right temporal lobe epilepsy, I have graduated three times (Hons Degree Chemistry, MSc Waste Management and PhD). I underwent a partial...

Stewarton, Kilmarnock

My greatest achievement is a happy family. I was diagnosed with epilepsy after having a foramen magnum decompression surgery for a chiari 1 malformation in March 2010. Tonic Clonic and Absent...

It's twins