My Story: fundraising

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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Toni is running the Great North Run for Epilepsy Action in 2021. Her son Will is 14.

“Will started with epilepsy in 2009 when he was 2 years old. His seizures came out of the blue and...

I was first diagnosed when I was 14 years old. It was a typical family Christmas and we were celebrating. All I can remember is the dog barking and sniffing around me, and then I was having a...

My first seizure came completely out of the blue in February 2019. Since then, I’ve gone on to have over 170 more. But EEG tests showed no seizure activity linking to epilepsy. A letter initially...

I was diagnosed with junior myclonic epilepsy aged 11. For purple day 2016 I created an epilepsy awareness pack and delivered it to my entire call centre. This has now been shared across all sites...

Dalgety Bay

Becoming a mummy & also having a short film made about myself to raise awareness of epilepsy.
I have had uncontrolled epilepsy since the age of 10 (both Tonic Clonic, once a week or more...

Shrewsbury

My name is Amy Bassett, I am 22 years old, I live in South Wales, I study Psychology with The Open University and I have had Epilepsy for about 4 and a half years now. In July 2013 I ended up in...

Pontypridd

My greatest ever achievement was taking part in an indoor sky dive.

I'm 10 years old I have had epilepsy since I was 6 years old, and thats when i had to go on medicine. I've now been told...

Indoor Skydive