My Story: Getting there

Add your own

Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

Most recent | Most read

Hi my name is Thea for Theodora and my age is 16 and I still have epilepsy.

Everyone calls me Thea at school and I have difficulty speaking and with language. I found out I had epilepsy...


I had my first seizure aged 36. I was at work at the time, in a very busy kitchen. I had just pulled a check from the printer, and I was going to read this out to the rest of the kitchen, but...