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Amy

I am Amy, I’m 23 from Hertfordshire and I have suffered from Epilepsy since November 2016.

I was completely seizure-free until I was 19 and suffered my first ever seizure. I still haven't got my seizures under control, and now suffer from anxiety from having seizures.

My seizures are tonic-clonic and when i am anxious- I suffer from dissociative seizures. 

I had just passed my driving test in the October of 2016, and as anyone would feel, i was really excited to be on the roads, then, a seizure happened, completely out of the blue.

I was sitting, watching TV as you do, and as i suffered from migraines- i thought it was that, until i ‘woke up’, couldn’t remember anything and was sitting next to 2 lovely paramedics.

I had to surrender my licence, literally a month after i passed, that was hard for me, as i really enjoyed my independence. I was advised the seizure could be a one-off, but I was referred for an MRI and an appointment with the neurology department.

My neurologist took the time to listen, ask and answer questions. She referred me for an EEG and a 24 hour sleep-deprived EEG because the results from my MRI had come back clear.

Of course, i began to feel anxious and realised that my life probably wouldn’t ever be the same again. I was put on Keppra and in 2018 i got swapped to Lamotrigine and put on Citalopram for my anxiety.

I do still have blips now, i haven’t made it to a year of being seizure-free (11 months though!), but the more i was telling people, the more people were telling me other people had it, you are not alone in this journey.

I have had constant hospital visits and neurologist appointments, but now, i feel that I have accepted this is a part of me, my story to tell.

My neurologist has been so much help, with any questions i have still and what i will need to do in terms, of helping me and my epilepsy.

My friends and family have been amazing in terms of supporting me. You are not alone in this!!!

Amy
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