My Story: life

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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You have so many plans for the future and when they gradually start to fall apart you wonder if you can carry on.

I had my first seizure when I was 27. I'd started temping as an...


I was diagnosed with a epilepsy at the age of 7, a normal day I was sitting watching TV eating a baby bell and it happened. Full blown seizure. Never have in ever touched a baby bell since, even...


I was diagnosed with epilepsy at 2years old. Almost died from SUED at age of 6 and 7. Parents would claim that I would stop breathing and turn purple.

There's no real reason behind the...

Washington DC

My mother never told me I was born with epilepsy, I always questioned why I'm mixed with white birthmarks on my body. I grew up a perfect childhood, no fits in sight until I hit puberty. I...


This is my third year of having Idiopathic Epilepsy. When I was first diagnosed with Epilepsy I thought the worst and found it really difficult to cope with being in and out of hospital. I was...

Great Yarmouth