I have had juvenile myoclonic epilepsy for nearly 15 years and to be honest it does bring me down every time I get that feeling that im going to fall into a seizure.
im now at the age where I would like children but im so scared that lately I have suffered 3 fits already this year and last year too but last year was my worse one as I nearly died, I was at home with my 5 year old niece and I said to her that im gonna have a fit and she said that she was scared I was gonna die and all I remember was handing her my phone and asking her to call for help and then I had a fit and she rang my dad and my boyfriend and her mum and she also ran downstairs to get help from my neighbours and when I woke up I remember seeing ambulance people there and also she was there with my neighbour and crying and shouting please wake up. I felt so bad that my niece hat to witness such horror at her age but at the same time I was so proud of her as my heart had stopped beating for a few seconds, I was completely knocked out as I bashed my head on the tv unit. but the year brfore last I was 7 years free from fits.
I know there are people out there experiencing worse then me but I am a fighter and I got through it with the love of my friends and family and my niece who was so so brave, I contacted the papers because I wanted the world to know how brave she was that day but didn't hear anything back but I know when I look at her I know she saved my life.