We fight to improve the lives
of everyone affected by epilepsy

Victoria Jones

I have had juvenile myoclonic epilepsy for nearly 15 years and to be honest it does bring me down every time I get that feeling that im going to fall into a seizure.

im now at the age where I would like children but im so scared that lately I have suffered 3 fits already this year and last year too but last year was my worse one as I nearly died, I was at home with my 5 year old niece and I said to her that im gonna have a fit and she said that she was scared I was gonna die and all I remember was handing her my phone and asking her to call for help and then I had a fit and she rang my dad and my boyfriend and her mum and she also ran downstairs to get help from my neighbours and when I woke up I remember seeing ambulance people there and also she was there with my neighbour and crying and shouting please wake up. I felt so bad that my niece hat to witness such horror at her age but at the same time I was so proud of her as my heart had stopped beating for a few seconds, I was completely knocked out as I bashed my head on the tv unit. but the year brfore last I was 7 years free from fits.

I know there are people out there experiencing worse then me but I am a fighter and I got through it with the love of my friends and family and my niece who was so so brave, I contacted the papers because I wanted the world to know how brave she was that day but didn't hear anything back but I know when I look at her I know she saved my life.

Victoria Jones
Add your story

There are no comments yet. Be the first to comment...

Question about your epilepsy?

Your question will be sent to our helpline advisors.

Have a comment about this page?

All comments are reviewed by a moderator before publishing. Comments will be edited or deleted if they are offensive, libellous, slanderous, abusive, commercial or irrelevant.

We ask for your email when you make a comment through this website. This means that we can let you know directly that we have replied to you. By making a comment through the website, you allow us to use the comment in our publicity without using your name. If we would like to use your name, we will email you to get your permission.

This question is for testing whether you are a human visitor and to prevent automated spam submissions.
3 + 1 =
Solve this simple math problem and enter the result. E.g. for 1+3, enter 4.