The Norwich Epilepsy Action coffee and chat group has shown an outstanding commitment to the cause of epilepsy. They have been a vital source of support for people living with the condition, their families and carers.
The Norwich Epilepsy Action coffee and chat group is co-ordinated by Maureen Roy, who runs the group with warmth and sincerity. As a result, members of the group have not only found support, but have made lasting friendships. The testament to the group’s success is the growing numbers each month.
The group have developed a strong relationship with the dedicated team at the Norfolk and Norwich Hospital. Particularly they have worked closely with Epilepsy Specialist Nurses (ESN), who attended at least four of the group’s meetings in 2017. The nurses have freely given time to attend group events, including coffee and chat sessions and an annual walk at Whitlingham. People have said that they are so friendly, practical and understanding, and have had such an enormous, positive impact on the group.
Feedback from the group also led to the improvement of the seizure care plan. The plan needed changes so it could be easily understood and reflected individual needs of people with epilepsy. Resulting from the group’s input, the new care plan is highly regarded by nurses in the region and has been widely shared. People with epilepsy and care teams now actively use it for those with more complex needs, including emergency medication.
The group have promoted a greater understanding of epilepsy, working with the hospital, the Job Centre, and Norman Lamb MP. Their work has made a huge difference for people living with epilepsy in Norwich.