I got epilepsy at age of 6 but I didn't get the the treatment I desperately needed until I was 16.
I grew up thinking I was lazy, stupid etc. I then moved in with my aunt who tried her best but mum had already done too much damage and I didn't believe in myself and still struggle with low confidence.
I tried to live with my mum in 99 which was was a disastrous and I moved back to my aunt. I was told I didn't have epilepsy and was making it all up.
My aunt knew better.
Isaw another specialist who agreed. He put me on other tablets, for a few years I could again "forget" I had epilepsy. I had a job and went to college.
Life was good.
We moved to Wales, I had been suffering from dizzy spells for a while but was coping. The new specialist I saw said epilepsy can't change.
They got worse.
I ended up in hospital after traveling to York and Bristol. Both specialists told me epilepsy don't change.
I gave up. I lost my job. The dizzy spells got worse.
I lost my temper with my specialist, my GP was not amused!
But I was transferred to Birmingham.
Finally I was listed to.
Tablets was changed. I felt better but my trust had been broken.
I now don't say if I think my epilepsy is changing and I have trouble getting my tablets from the chemist if it is something wrong I worry and I can't let any one else pick my tablets up.
Then 7 years ago I pushed for a VNS implant and my life took a unexpected journey.
It has been hard trip but the trip with the with the VNS has taken me from Birmingham to Costa Rica to my first battery change in Cardiff.