We exist to improve the lives
of everyone affected by epilepsy



When I was a teenager, I was given the medication sodium valproate and suffered the symptoms of polycystic ovary syndrome – acne, weight gain, irregular periods, and the side-effects have got worse as I have got older. I think you should be told in your teens how the drugs you are on could affect you. Now, at age 27, the process of changing medication could affect my job if I experience breakthrough seizures. It would have been so much easier to change treatments when I was a teenager at home with the support of my family. I wish I knew then what I know now.

Add your story

e-action newsletter

Subscribe to our e-action newsletter and stay informed

Subscribe to e-action newsletter feed