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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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As an Epilepsy Action Accredited Volunteer, Kenny Borland is trained to deliver epilepsy awareness presentations. He has been volunteering his time since 2013.

Kenny first considered...

In the prime of my life at the age of 22 my life was turned upside down when I started experiencing partial and tonic clinic seizures. After months of tests including neurological, heart and nerve...

Brisbane, Australia

Most people don't understand what epilepsy is all about, some think you have a 'fit' oh poor you have a cup of tea or a glass of water and you can get on with your day, this is so far from what...

Bracknell Berkshire

I had just graduated from university in 2005, I was hoping to move on to a teacher qualification when my had my first tonic clonic seizure. It didn't stop me and went back to university in the...

Croydon

My epilepsy came totally out of the blue in 2009 with a tonic clonic seizure after just getting out of my car. Thankful since then I've only ever had one more 'big' seizure. Since then I was...

Newcastle upon Tyne

Most people don't understand what epilepsy is all about, some think you have a 'fit' oh poor you have a cup of tea or a glass of water and you can get on with your day, this is so far from what...

Bracknell Berkshire

I've been having seizures for as long as I can remember. My earliest memory is around age 3 when I had a seizure at a friend's house. Nobody was around when it took place and as scary as it was, I...

Boston, USA

Dani shared her story for National Epilepsy Week 2017.

When you have epilepsy it is often the reaction of other people that can cause the most anxiety...

My name is Rhiannon. I was diagnosed with tuberous sclerosis at 18months. From ages 0-18 months doctors thought I was having fibrile convulsions (seizures caused by change of body temperature). It...

Leeds

My name is Alice and I was first diagnosed with epilepsy just before I sat my GCSEs at school. I suffer from simple and complex partial seizures, which as people who have been exposed to epilepsy...

Nottingham

I was diagnosed with Juvenile Absence Epilepsy when I was 12. I had, for a long time before this, been told that I was a day-dreamer and never paid attention. Turned out it wasn't daydreams but...

Dartford

Chris and Sam shared their story for National Epilepsy Week 2017

Their story shows how people with epilepsy can be affected by the current benefits assessment processes. This has already...

I was diagnosed with epilepsy at the age of 14 and am now 22 years old. Naturally there’s been some horrible sides to having this illness, I’ve been admitted to hospital countless times, spent...

Manchester

Daniel shared his story for National Epilepsy Week 2017

Daniel was first diagnosed with epilepsy when he was seven years old. He has a mixture of seizures, including tonic clonic where he...

West London

Hi, I was only 19yrs old when my world fell apart.
Back in 1979 a normal warm still summers day in September. I decided to go for a 3 mile bike ride. A car pulled out from a T- Juntion, the...

Penzance

Hi , I was diagnosed with temple lobe epilepsy when I was quite young and had many seizures at primary school but the meds that I was on helped me to out grow my epilepsy but I would love to help...

Bicester oxfordshire

I had my first seizure after a bump to the head from my bf (accident), a few months later i had a couple more over a period of 24 hours and possibly one in between. In honesty they arent a scary...

Spalding

after reading one of the stories I was surprised to find out that their story actually mapped mine!

I was diagnosed with Epilepsy in 2013 and it came out of the blue, no warning, no family...

Birmingham

I was diagnosed with epilepsy when I was two. My memories of being epilepsy-free are basically non-existent, so I when people ask me "What's it like to have epilepsy?" and "What if you didn't have...

Hyderabad

I'm 22. I was diagnosed with epilepsy at the age of 10. I fell in school and had no lump on the back of my head. A week later I was taken ill into hospital and that's when I had a seizure. During...

Pontypridd

I would like to share my story to show people not to ever give up hope!

At the age of 12 I noticed these strange feelings. After being referred to the hospital, scans revealed I had scar...

Liverpool

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