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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I've had complex partial seizures since my early 20s.

Now I find myself with three beautiful teenage daughters. They've grown up only ever knowing that mummy has seizures. Not ideal but...

Leeds

I have had juvenile myoclonic epilepsy for nearly 15 years and to be honest it does bring me down every time I get that feeling that im going to fall into a seizure.

im now at the age where...

Morden

I had my first witnessed seizure in 2002 however it was diagnosed as dissociative disorder because the neurologist didn't think someone of my age( 40 in 2002) could develop epilepsy. The next...

Dublin

Diagnosed age 10. In those days (1960s) schools wrapped you in cotton wool as far as physical activities were concerned - no swimming - & playing football, cricket & tennis became...

Penzance

I have not always suffered from epilepsy and I left school, started work, learned to drive etc as most people. I was then affected by epilepsy and the inability to drive plus the feeling of "being...

Derby

I was first diagnosed at 16 & my epilepsy was unremarkable - medication gave me good control. I worked & went about my life without a second thought. Suddenly it all changed. When I was 21...

Rainham

I was diagnosed with stress-induced epilepsy aged 37 following an assault at work. After a few years to get it under control and a few hiccups along the way I have finally come to terms with the...

Peak District

At 28 I had a successful career in Finance and could go or do anything I wanted. Then things changed, I woke to see an ambulance man kneeling by my pillow telling me I had to go to hospital. I had...

Oxford

I was diagnosed with epilepsy at age 11, the cause of which was never discovered, I spent 11 years of my life with almost daily seizures, "partial absences" and from age 16 chronic migraine.

...
Inverness

I have always had epilepsy so have never known anything else. It was caused by a stroke at birth so It's just part of my life. Having seizures growing up was tough, whenever an aura started I knew...

Pontypool

Epilepsy is a rotten neurological condition but never let it stop you living life to the full.

Sadly we lost our elder daughter, Carla at 27 when she didnt recover from a seizure ... She...

Macclesfield

My amazing epilepsy specialist nurse is Helen Hodgson, at Southmead Hospital in Bristol, England.

For only 20 minutes every week, a patient of Helen Hodgson's would reveal the most...

Bristol

I was diagnosed with epilepsy just before my eleventh birthday. I didn't know much about epilepsy at the time and was very scared and didn't want to leave the house..I used to take one seizure a...

Falkirk

I have had epilepsy since being 3yrs old, and at the age of 11 I was admitted to the local hospital due to status epilepsy seizures. It was whilst I was on this ward that I was watching what the...

St. Helens

I was diagnosed with temporal lobe epilepsy a couple of weeks after my 40th birthday in 2011 when, completely out of the blue, I experienced a huge seizure at my desk at work.

Following two...

Croydon

I held a job in a Remploy factory for over twenty years, I have been abroad a couple of times, I now live in a one bedroom flat in a sheltered housing complex in Swansea.

I am a big animal...

Swansea

I keep all my friends and family in the loop when it comes to epilepsy because I am with one or other of them all the time, and they need to know because they understand.

I have however had...

London

I've had epilepsy since I was 5 and struggled until I was 13 to fully control it with meds.

At 13 I was put on adult medication which although controlled my seizures put me in hospital for...

I was 10 years old when I was first diagnosed with my epilepsy and I am now nearly 17.

It first started at my parents friends wedding I had my first seizure there and my parents first...

Bracknell, Berkshire

I have had epilepsy since the age of 15, now i am 20 i have fully understood how epilepsy can affect a lot of people.

Having Epilepsy was hard to take in considering that I rarely got ill,...

Colchester

Hello. I am British & of Indian ethnicity. I was diagnosed with Epilepsy since childhood, i was about 7 years old and i am now 33.

When i was younger i did not have any knowledge about...

Sandwell, UK

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