We fight to improve the lives
of everyone affected by epilepsy

 

My Story

Add your own

Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

Most recent | Most read

My name is Naho Tamura. I am an ex epilepsy patient who had recently published my patient story on American Epilepsy Journal, Epilepsia.

I suffered Childhood Absence Epilepsy (CAE), onset...

Tokyo

Thanks to a story line now running on Eastenders, I now have a name for the type of epilepsy I developed 55+ years ago. I started to develop morning jerking when I was about 13. My grandmother was...

I was first diagnosed with epilepsy when I was 11years old. Basically my epilepsy started when I hit puberty. I am now 50 years old and since then my life has been a rollercoaster re epilepsy I...

Rochdale

It started as any normal day,
You had to change it, turn it grey
Pessimistically wanting it your way
And making sure that I had no say.

Quietly I was sitting, then a pain...

Newcastle Upon Tyne

Hi my name Kaitlin,

I had my first ever epileptic seizure on January 2013. I was at a friend's house and started randomly having a grand mal. After this stopped my friends phoned emergency...

Llanelli

I was first diagnosed with epilepsy 36 years ago, at the age of 9.  This is my story. (Names of sisters have been changed)

It was the morning of February 2, 1980, and I was in 4th...

I was diagnosed with Epilepsy (Petit-Mal) at the age of 3 years old.

And then in 1979-1980 i had four generalise seizures (Grand Mal)

And since 1984 i have been driving.

Stanmore

I have epilepsy and sometimes I can have up to 4 a day I feel depressed and I hope tomorrow will be better.

The seizures sometimes make me hurt myself I have fallen down the stairs and had...

Samantha (21) is an opera singer. She has been registered as blind since her premature birth, and was diagnosed with epilepsy when she was 18. Samantha describes the memory and sounds associated...

Isle of Man

After recently celebrating her 40th birthday, Vicky takes us on a whirl-wind tour of her life with epilepsy. Her journey has involved Shrek, an elephant, an amazing amount of hair and make-up, and...

How do you help your seven year old nephew, who has been recently diagnosed with nocturnal epilepsy? Discover Tori’s answer, as you see what nocturnal epilepsy looks like. [People with nocturnal...

Ruth (31) is a single parent to a young daughter. Her frequent daily seizures can leave her feeling tired, confused and occasionally bruised. But Ruth’s video shows her smiling warmly as she ‘...

During the 2014 Purple Day campaign, Megan (18) shared a photo of her black eye. She received the injury during a seizure – but can’t be sure how it happened. Today, Megan is enrolled at...

Maggie (26) has spent the last few months working to better educate people about epilepsy. In the process, she has regained the confidence that was almost taken from her, when two strangers...

During the last year, Laura (22) has graduated from university and started her career as a soprano and music tutor. In this short video, Laura shares her amazing success as a classical singer,...

Jimi was diagnosed with epilepsy when he was three years old. In this short video, watch Jimi rush about busily, in the way that children do. His mum talks about the impact that his epilepsy has...

Imogen (27) developed epilepsy as a result of brain trauma from a hit-and-run car accident when she was nine. In her video, Imogen shows how her uncontrolled epilepsy has affected her life in many...

Stevie was diagnosed with epilepsy when he was 13. Today, aged 22, his seizures remain uncontrolled. Stevie’s family describe the highs of watching their son play rugby with Dad. And the heart-...

My name is Claire. I was diagnosed with epilepsy when I was 8 years ago I was only 9 years old. I am now 16 years old. I have had quite an experience with epilepsy. My first seizure happened in...

NI-claire

I was diagnosed with epilepsy at 2years old. Almost died from SUED at age of 6 and 7. Parents would claim that I would stop breathing and turn purple.

There's no real reason behind the...

Washington DC

My name is Jodie-Marie, I began having seizures at the age of 12. My first seizure took place at school in an English classroom, of course this raised issues. The next few months were constant...

Pages

e-action newsletter

Subscribe to our e-action newsletter and stay informed

Subscribe to e-action newsletter feed