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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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Jimi was diagnosed with epilepsy when he was three years old. In this short video, watch Jimi rush about busily, in the way that children do. His mum talks about the impact that his epilepsy has...

Imogen (27) developed epilepsy as a result of brain trauma from a hit-and-run car accident when she was nine. In her video, Imogen shows how her uncontrolled epilepsy has affected her life in many...

Stevie was diagnosed with epilepsy when he was 13. Today, aged 22, his seizures remain uncontrolled. Stevie’s family describe the highs of watching their son play rugby with Dad. And the heart-...

My name is Claire. I was diagnosed with epilepsy when I was 8 years ago I was only 9 years old. I am now 16 years old. I have had quite an experience with epilepsy. My first seizure happened in...

NI-claire

I was diagnosed with epilepsy at 2years old. Almost died from SUED at age of 6 and 7. Parents would claim that I would stop breathing and turn purple.

There's no real reason behind the...

Washington DC

My name is Jodie-Marie, I began having seizures at the age of 12. My first seizure took place at school in an English classroom, of course this raised issues. The next few months were constant...

At the age of 70 I am able to look back on an interesting and lively life during which time there has been success and failure, determination and disappointment but above all an ability with...

Sheffield

I joined the military in 2007. My first 'posting' after training involved night shifts. These were 'sleeping shifts', so I could sleep at work, working when called upon. During this time I would...

Elgin, morayshire

It was three and half months before my eighth birthday I had what my parents thought was my first seizure. From the time the seizure started till the time the hospital stabilised me it was nearly...

hertfordshire

My first story begins when I was 12. After ten years struggle with epilepsy, I got surgery then started 5 years seizure-free period. Seizure-free 5 years made me able to complete university and...

I first had a seizure about 10 years ago ( I am a young 52). It was a real shock.

I had two more seizures within 3 months. All at home. Then I was seizure free for five years.

After...

Cuerden

I had my first seizure when I was 12 which was a difficult time when I had just started high school and wanted to be more independent – going shopping on my own and the...

I would like to stress to teenagers with epilepsy, please stop and consider contraceptives before you take the chance of becoming pregnant – life as a teenager is...

When I was a teenager, I was given the medication sodium valproate and suffered the symptoms of polycystic ovary syndrome – acne, weight gain, irregular periods, and...

I was only nine when I had my first seizure and I’d never heard of epilepsy. My mum insisted I see an epilepsy specialist as my behaviour on the medication I was...

I had my first seizure on 29th October 2013 when I was 18 years old. When they said they found irregularities in my brain waves from my EEG and that I had Epilepsy my heart sank and I felt very...

York

I have Epilepsy since I was 21. Have had long clear spells that enable me to drive!!!!!

But one stage was clear etc out in car had a seizure. No one else involve..I do not drive now which...

Lisnaskea Co. Fermanagh N.Ireland

My name is Barbara. I was first diagnosed with...

St. Cloud

I had my first fit when I was 11 everybody thought that it was just due to a viral infection I had at the time and life carried on. But about a month later I had another fit and my life started to...

Wigan

Clinical abuse of Epilepsy Suffers

I am 67 years old and a ex teacher, therapist and counsellor.
All of that experience grew out of a mental health diagnosis of personality disorder...

London

I find the increasing amount of flashing lights within daily life, especially in entertainment an ongoing problem. From diagnosis of my temporal lobe epilepsy (complex partial seizures) in my...

Barnstaple

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