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of everyone affected by epilepsy

 

My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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At the age of 70 I am able to look back on an interesting and lively life during which time there has been success and failure, determination and disappointment but above all an ability with...

Sheffield

I joined the military in 2007. My first 'posting' after training involved night shifts. These were 'sleeping shifts', so I could sleep at work, working when called upon. During this time I would...

Elgin, morayshire

It was three and half months before my eighth birthday I had what my parents thought was my first seizure. From the time the seizure started till the time the hospital stabilised me it was nearly...

hertfordshire

My first story begins when I was 12. After ten years struggle with epilepsy, I got surgery then started 5 years seizure-free period. Seizure-free 5 years made me able to complete university and...

I first had a seizure about 10 years ago ( I am a young 52). It was a real shock.

I had two more seizures within 3 months. All at home. Then I was seizure free for five years.

After...

Cuerden

I had my first seizure when I was 12 which was a difficult time when I had just started high school and wanted to be more independent – going shopping on my own and the...

I would like to stress to teenagers with epilepsy, please stop and consider contraceptives before you take the chance of becoming pregnant – life as a teenager is...

When I was a teenager, I was given the medication sodium valproate and suffered the symptoms of polycystic ovary syndrome – acne, weight gain, irregular periods, and...

I was only nine when I had my first seizure and I’d never heard of epilepsy. My mum insisted I see an epilepsy specialist as my behaviour on the medication I was...

I had my first seizure on 29th October 2013 when I was 18 years old. When they said they found irregularities in my brain waves from my EEG and that I had Epilepsy my heart sank and I felt very...

York

I have Epilepsy since I was 21. Have had long clear spells that enable me to drive!!!!!

But one stage was clear etc out in car had a seizure. No one else involve..I do not drive now which...

Lisnaskea Co. Fermanagh N.Ireland

My name is Barbara. I was first diagnosed with...

St. Cloud

I had my first fit when I was 11 everybody thought that it was just due to a viral infection I had at the time and life carried on. But about a month later I had another fit and my life started to...

Wigan

Clinical abuse of Epilepsy Suffers

I am 67 years old and a ex teacher, therapist and counsellor.
All of that experience grew out of a mental health diagnosis of personality disorder...

London

I find the increasing amount of flashing lights within daily life, especially in entertainment an ongoing problem. From diagnosis of my temporal lobe epilepsy (complex partial seizures) in my...

Barnstaple

Epilepsy? Seizures? On April 1st in 2015 my life was going to change completely! Gigs, Mallory Knox & lots of travelling is one of my favourite hobbies alongside helping volunteer with adults...

Devon

I'm 3 years diagnosed and I'm using this as a sort of therapy .....a form of epilepsy may cripple you but I'll never stop promoting our strengths. ...... I live very happily but I deal with my...

My name’s Ray. I’ve been on quite a journey since I was diagnosed with epilepsy about 15 years ago. In fact, epilepsy has taken me on two epic journeys – and I certainly never thought I’d...

I was diagnosed with juvenile myoclonic epilepsy (JME) when I aged 16. I was in the army at the time, about three-quarters of the way through basic training, and was discharged immediately.

...
Harrogate

I'm 33 and have had temporal lobe epilepsy since I was 9. After many years neurologists found the only effective medication for me was clonazepam. I've had problems simply getting Dr's to...

Coffs Harbour

I have had complex partial seizures since the age of 4,my epilepsy is still unknown to why it started.

Over the years I have been put of almost every med there is and been under many...

Hanham,Sg

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