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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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Epilepsy? Seizures? On April 1st in 2015 my life was going to change completely! Gigs, Mallory Knox & lots of travelling is one of my favourite hobbies alongside helping volunteer with adults...

Devon

I'm 3 years diagnosed and I'm using this as a sort of therapy .....a form of epilepsy may cripple you but I'll never stop promoting our strengths. ...... I live very happily but I deal with my...

My name’s Ray. I’ve been on quite a journey since I was diagnosed with epilepsy about 15 years ago. In fact, epilepsy has taken me on two epic journeys – and I certainly never thought I’d...

I was diagnosed with juvenile myoclonic epilepsy (JME) when I aged 16. I was in the army at the time, about three-quarters of the way through basic training, and was discharged immediately.

...
Harrogate

I'm 33 and have had temporal lobe epilepsy since I was 9. After many years neurologists found the only effective medication for me was clonazepam. I've had problems simply getting Dr's to...

Coffs Harbour

I have had complex partial seizures since the age of 4,my epilepsy is still unknown to why it started.

Over the years I have been put of almost every med there is and been under many...

Hanham,Sg

The hurt inside

Why do I cry? why do I hurt?
I don't know where to start.
It never used to occur to me
that it would really break my heart.
Epilepsy is painful...

Nottingham

I was born with good health.

But when I was 7 years old I had a seizure in the kitchen then another on the same day.

I was rushed to the hospital and was diagnosed with epilepsy they...

Tyrone

I have suffered from epilepsy since the age of 18 months when I fell and hit my head on a table leg. I was at the toddler age and into everything!

Throughout childhood I was in and and of...

Rochford

My story began in October 2005 when I fell from a first floor balcony onto granite paving below whilst trying to move a futon. My head took the impact of the fall, I fractured my jaw in three...

Truro

My daughter angelica has had seizures since age 2 and now not only in past has many grandma seizures now age 10 absent seizures few times a day.

living with this this epilepsy is such a...

bose

A group of 25 family and friends will be running the Manchester 10k in memory of our beautiful 27 year old daughter Carla who died last summer whilst having a seizure.

All monies raised...

Macclesfield

A professor from Penrith is lacing up his running shoes to complete this year’s Virgin Money London Marathon. Professor Gus Baker will take on the gruelling 26.2 mile run on Sunday 26 April to...

Penrith

A Leeds man, recently diagnosed with epilepsy, is lacing up his running shoes to complete this year’s Virgin Money London Marathon. Joe Townsend will take on the challenging 26.2 mile run on...

Leeds

Geoffrey Streatfeild is lacing up his running shoes to complete this year’s Virgin Money London Marathon. The actor, along with his three brothers, Luke, Roland and Richard, will take on the...

London

Graphic designer, Gavin is running the marathon for the first time. “I have proudly been selected to be part of the ‘Action Heroes Team’ to run for the nationwide charity. Out of 40,000 runners, I...

Tavistock

An epilepsy specialist nurse at the Princess of Wales and Neath Port Talbot hospitals, Lisa says, “I have decided to set myself some challenges for my 50th birthday year. This will be my 14th...

Port Talbot

I am currently 17 years old and I was diagnosed with complex partial seizures and can go into Status since the age of 4. I have 2 different types of medication, one called carbamazepine which I...

Wirral

I've had focal epilepsy since I was 6 years old, my seizures started to occur as I went to bed. I would lay in bed and panic as I experienced my seizures, afraid to tell my mum incase she thought...

Hull

I have had grand mal epilepsy since I was 18 months old and had a lot of seizures up until about 1990 when I was in my twenties.

The things I remember , just, from my childhood was the...

Stourbridge

I was diagnosed with focal epilepsy in 2012 at the age of 17.

I was taking my driving lessons a month before I had my first seizure, I was extremely excited of having my independence and...

Newcastle upon tyne

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