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of everyone affected by epilepsy

 

My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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My story began in October 2005 when I fell from a first floor balcony onto granite paving below whilst trying to move a futon. My head took the impact of the fall, I fractured my jaw in three...

Truro

My daughter angelica has had seizures since age 2 and now not only in past has many grandma seizures now age 10 absent seizures few times a day.

living with this this epilepsy is such a...

bose

A group of 25 family and friends will be running the Manchester 10k in memory of our beautiful 27 year old daughter Carla who died last summer whilst having a seizure.

All monies raised...

Macclesfield

A professor from Penrith is lacing up his running shoes to complete this year’s Virgin Money London Marathon. Professor Gus Baker will take on the gruelling 26.2 mile run on Sunday 26 April to...

Penrith

A Leeds man, recently diagnosed with epilepsy, is lacing up his running shoes to complete this year’s Virgin Money London Marathon. Joe Townsend will take on the challenging 26.2 mile run on...

Leeds

Geoffrey Streatfeild is lacing up his running shoes to complete this year’s Virgin Money London Marathon. The actor, along with his three brothers, Luke, Roland and Richard, will take on the...

London

Graphic designer, Gavin is running the marathon for the first time. “I have proudly been selected to be part of the ‘Action Heroes Team’ to run for the nationwide charity. Out of 40,000 runners, I...

Tavistock

An epilepsy specialist nurse at the Princess of Wales and Neath Port Talbot hospitals, Lisa says, “I have decided to set myself some challenges for my 50th birthday year. This will be my 14th...

Port Talbot

I am currently 17 years old and I was diagnosed with complex partial seizures and can go into Status since the age of 4. I have 2 different types of medication, one called carbamazepine which I...

Wirral

I've had focal epilepsy since I was 6 years old, my seizures started to occur as I went to bed. I would lay in bed and panic as I experienced my seizures, afraid to tell my mum incase she thought...

Hull

I have had grand mal epilepsy since I was 18 months old and had a lot of seizures up until about 1990 when I was in my twenties.

The things I remember , just, from my childhood was the...

Stourbridge

I was diagnosed with focal epilepsy in 2012 at the age of 17.

I was taking my driving lessons a month before I had my first seizure, I was extremely excited of having my independence and...

Newcastle upon tyne

As a child I suffered with feveral convulsions which are quite common in children. As a teenager my seizures returned and I was referred to a neurologist for tests and medication was advised due...

Bolton

I was re diagnosed with epilepsy aged 13. My seizures are triggered my stress and tiredness amongst a few other things. During my GCSE's I had a seizure during my history exam. But that didn't...

Dunstable

I have been living with epilepsy for 11 years now, it's been a struggle at times and finding the strength to talk about epilepsy to people who don't understand the condition is heartbreaking...

Suffolk

I developed epilepsy when I was 17. One night I randomly had a grand mal seizure in the middle of the night and my family called for paramedics. I was taken to hospital and had another seizure...

Newcastle upon Tyne

My name is Rocio Calderon, I'm a mother of two beautiful girls & a fiancée of a proud army veteran. I was diagnosed with a rare brain condition that affects 1 in 100,000 children. Before birth...

Glendale AZ

I am very proud to say my name is Paris and I am 17 years old, I live with my parents Julee and graham and my younger sister britanny.  I have uncontrolled epilepsy and have had it since I...

Loftus, Cleveland uk

My first ever seizure was back in 2008, I was in year 7 of high school, I had a seizure in the classroom and all I can remember was coming around with a paramedic and feeling rather embarrassed as...

Liverpool

hi I'm Brooke I'm a single mother I have had epilepsy from the age 2 up to now which my age is 28 I still suffer with sezuire's I have a son who was born with Spina biftda a defect which was...

Australia

Curveballs

My autobiography is called 'Wanting to be Anyone but Me.' It took me several years to write and I finished it just before my fortieth birthday. I'm now forty one.  And the...

Farnham

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