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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I have been living with epilepsy for 11 years now, it's been a struggle at times and finding the strength to talk about epilepsy to people who don't understand the condition is heartbreaking...

Suffolk

I developed epilepsy when I was 17. One night I randomly had a grand mal seizure in the middle of the night and my family called for paramedics. I was taken to hospital and had another seizure...

Newcastle upon Tyne

My name is Rocio Calderon, I'm a mother of two beautiful girls & a fiancée of a proud army veteran. I was diagnosed with a rare brain condition that affects 1 in 100,000 children. Before birth...

Glendale AZ

I am very proud to say my name is Paris and I am 17 years old, I live with my parents Julee and graham and my younger sister britanny.  I have uncontrolled epilepsy and have had it since I...

Loftus, Cleveland uk

My first ever seizure was back in 2008, I was in year 7 of high school, I had a seizure in the classroom and all I can remember was coming around with a paramedic and feeling rather embarrassed as...

Liverpool

hi I'm Brooke I'm a single mother I have had epilepsy from the age 2 up to now which my age is 28 I still suffer with sezuire's I have a son who was born with Spina biftda a defect which was...

Australia

Curveballs

My autobiography is called 'Wanting to be Anyone but Me.' It took me several years to write and I finished it just before my fortieth birthday. I'm now forty one.  And the...

Farnham

I have hippocampal sclerosis, through going into a coma when I was only a few months old. This left me with scarred tissue on the left temporal lobe.

I have managed to grow up with it and...

Norwich

Hello my name is rebecca and i am 16 and i have had epilepsy for 13 years. my whole life infact, to all those out  there who have had epilepsy from the day they were born than i tell you do...

lowestoft

Hello my name Is Beth and I am 17 and I have had epilepsy nearly four years. Here is my epilepsy experience:

April 7th 2011 was where my journey began it felt like I was waking up from a...

Portsmouth

Hello My name is Heather I am 17 and have been living with epilepsy for almost 4 years now. Today I am sharing a shortened down version of my story.
The 5th of September 2011 was the date it...

Norfolk

I was diagnosed with Epilepsy at the age of 7 although it's believed that I had seizures before this.

From the late 70's I was put medication, and I continued to try various drugs and...

Derby

My son Ian Broad had an accident 13 years ago he fell and hit his head while fooling about with his friends it left him with epilepsy and it was at times quite bad but he wanted his own space and...

Stoke on Trent

I had my first seizure at the age of 19, I was...

Bedfordshire

I had my first tonic clonic seizure when I was 18, in the middle of my A levels. The (now familiar) sequence of confusion and exhaustion occurred for the first time during a college trip to Rome (...

London

My story: I had my first seizure at the age of 16 not long after starting at college studying for my A levels, all I remember is feeling really confused, I had never felt like that before, mum...

Swansea

This is my epilepsy. After an initial tonic clonic seizure aged 14 which put me in hospital, I was left for the next 5 years having multiple absence and partial seizures which were passed off by...

Harrow

I am coming up to 30 years old next March and have been living with epilepsy since I was first diagnosed when I was 15. I have experienced simple and complex partial seizures as well as tonic...

Exeter

This is my epilepsy. I have had epilepsy since I was 12 years old suffering from every type of seizure. Now in my 30s I seem to just suffer from grand mal seizures. I have a beautiful and lovely...

Halifax

I had a seizure in Haddington, East Lothian.
Before an ambulance arrived, the police arrived and because I was not doing what they asked and pushing them away whilst in the seizure ,I was...

Edinburgh

Her hair flowed freely as she gazed outside the window
White puffy clouds clung to the sky as it dressed for night
Her hands and arms felt the air as if she were in flight
Yet...

Washington DC

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