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My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I was diagnosed with epilepsy when I was 9 years old, when I found this out people such as family, friends and school were concerned. They all wondered if my condition would limit what I was...

Redcar

This year, I’ll be putting myself through the pain and strain of running my second (!) London Marathon in aid of Epilepsy Action.

Epilepsy is very close to my heart with my partner being a...

London

TRAPPED BUT STRONGER

After 9 years of tests and trauma I was finally diagnosed with epilepsy 4 years ago. I constantly feel trapped, alone, with no one understanding my epilepsy, myself...

Cheltenham

This is my first marathon I decided to run the marathon as my long time friend and also my best man for my wedding had twins that were both diagnosed with epilepsy. He ran London last year raising...

Winterton

This is my first London marathon and I am running for epilepsy as my brother has had the condition since birth.

Rotherham

I am running London Marathon for Epilepsy Action as it is a charity close to my heart. They helped my sister, and family through her diagnosis of Epilepsy at the age of 21. They answered all of...

Epilepsy Action Hero - London Marathon 2014

8 years ago next month my family lost my sister aged 29 leaving her 9 year old daughter to be brought up by my Mum. My sister had severe seizures on a daily basis which meant her quality of life...

London

This will be my 3rd London marathon, and this year I am raising money for Epilepsy Action.

I know there are many worthy causes and with so many charities to donate to these days, it makes...

Epilepsy Action Hero - London Marathon 2014

Last year my brother ran the London Marathon in order to raise awareness for epilepsy after his son had been suffering and was diagnosed in May 2011. So this year I figured it was my turn!

...

Epilepsy Action Hero - London Marathon 2014

On the 13th April this year I will be running my first and very last marathon!

Epilepsy Action is a charity that's important to us as a family. Last year our youngest son, then 18 months...

Epilepsy Action Hero - London Marathon 2014

I will be running in the London marathon on behalf of Epilepsy Action for my dad who has epilepsy!

He has suffered since he was a little boy and from a young age I had to deal with knowing...

Epilepsy Action Hero - London Marathon 2014

Why on earth am I doing to the London Marathon this year? Here's my story........

My son, Isaac, had his first epileptic seizure at the age of 2½ years old and was diagnosed with epilepsy....

Epilepsy Action Hero - London Marathon 2014

Hi I'm 17 and was diagnosed with generalised epilepsy. My family and I have just come home from the hospital after my seizure of which I thought I had a broken nose, but all good news, no break, I...

Nottingham

My beautiful daughter Charlotte who's had epilepsy since she was 8. She is about to sit her GCSEs and wants to be a forensic psychologist. Go girl!

Salisbury

Mine looks like the train. Diagnosed last September I still hate not being able to drive. Today felt like an achievement as I got a train and a taxi to a conference. This time a year ago I wouldn'...

Liverpool

Fanci is a Personal Trainer, NPC Bikini Competitor, volunteer cheer coach, model, and most importantly mother of 2 beautiful girls and wife for over 13 years. She has had epilepsy since she was 10...

Fort Knox , KY

My epilepsy looks like this.....

I have had brain surgery to try and stop my seizures, but unfortunately it didn't quite stop my seizures, and I still take epilepsy medicines.

...

My epilepsy looks like this......

a basket of #Purpleday presents for my school teachers. The Epilepsy Action first aid cards will tell the teachers how to help me when I have a seizure at...

Northern Ireland

Radio 4 appeal banner

Sunday 2 March 2014

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My name is Amy Bassett, I am 22 years old, I live in South Wales, I study Psychology with The Open University and I have had Epilepsy for about 4 and a half years now. In July 2013 I ended up in...

Pontypridd

Bupa Great North Run 2013 (1.55.37)

Darlingtion

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