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My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I was diagnosed with epilepsy aged 23. I lost my license for 5 years as unfortunately I kept having seizures around 10-11 months after the previous one. I live in Cambridgeshire in a small village...

Radio personality

We are proud parents of daughter Lucy who is 6 today. She was born with Hemiplegic Cerebral Palsy and developed Epilepsy at 2 yrs old. She is a bubbly, talkative little girl and has such a can do...

Ashford, Kent

Running the Royal Parks Half Marathon for Epilepsy Action in 2009 - despite having seizures every few weeks and being rather heavy for a long distance runner, it really was an amazing feeling to...

Forest Hill

being able to read as good as my school friends.

I'm eight years old, but this time last year I struggled with my reading and was 2 years behind my class mates.

After lots of hard...

I'm now an excellent reader

Becoming a fully qualified counsellor and running my own busy private practice despite never being able to complete my A-Levels or Degree due to returns of my epilepsy.

Having epilepsy made...


becoming a fitness instructor despite having had a brain tumour, stroke and epilepsy which all mean I have a very poor short term memory and balance. I started the course just 7 months after the...


Managing to stay awake in school.

croydon surrey

the way travel saw no boundaries after my temporal lobe surgery. Before the operation I had no confidence to take a bus trip to Chester alone. Within a year I not only went to Chester regularly...


I have many, I'm married to a wonderful man,Carl,and I'm mum to a healthy,happy and confident 12 year old daughter Jodie. I grew up knowing a little about epilepsy as my aunty had developed it as...


...being elected the MP for Blackpool and North Cleveleys. I am in a unique position of being able to highlight a variety of disability issues, and I hope this means that groups of people whose...

Paul is a Member of Parliament

Studying for a Fine Art (BA Hons) at Manchester School of Art! Lots of hard work and I've achieved all I set out to do and now I'm just waiting for our degree show and that graduation day.


Greater Manchester

Despite having 50-60 attacks a day I have worked in full time employment since I was 22 in managerial and executive PA roles, gaining the respect of my colleagues who see me for my skills not my...


Made it down the aisle without my walking stick, raised £90 plus Gift Aid at my wedding reception and began a blog advocating autism and epilepsy awareness and education - while still proving that...


Passing my driving test after having to wait years to have my epilepsy controlled!


Swimming Coniston Water in the Lake District. Although i swam this just over 20 years ago it was a great achievement for me at that time. My epilepsy never stopped me from doing Long Distance...


In my professional life my greatest achievement would be working to and obtaining my PhD in neuroscience. This allowed me to work in an Brain research institute specialising in epilepsy research,...


To be seizure free for 7 years and bring up two daughters on my own for 6 of those years.


Four London Marathons and Qualified as a Physiotherapist


Passing my cache level 2 in pre school practice and having my two lovely boys


This is my daughter she has severe epilepsy and also suffers from panic attacks. She couldn't do any children's activity clubs because of the panic attacks and epilepsy. Untill we found majorettes...


I have beaten the majority of my NEAD (non epileptic attack disorder) , and despite my minor fits being frequent since December, I have gotten through my first year at A level, in comparison to my...



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