My Story

Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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This is my third year of having Idiopathic Epilepsy. When I was first diagnosed with Epilepsy I thought the worst and found it really difficult to cope with being in and out of hospital. I was... Heather Great Yarmouth	My name is Steve I'm 58 year old i had 2 mini strokes back in 2011 and i kept haveing what was though to be tias .One day last year i was in stroke clinic when i had fit and was diagnoed with... Stephen Eaton Feltham	I was diagnosed with Photo-Sensitive Epilepsy in 2009, when I was 11 years old. Just a month before my 12th birthday. Before I was diagnosed I had underlying issues which the GP and the Optician... Lucy Newcastle
I grew up with Epilepsy. Some people laughed; some people had no idea what it was or what to do; only a few people helped when I fitted - but not enough people know what it is. I can... Cllr Andy Maric Milton Keynes	I never thought I would have a medical condition which made such an impact on my life. You see, to the naked eye, I am your normal 22 year old girl. The thing is, I have to take 6 tablets a day to... Ally Cross Woking, Surrey	I was diagnosed with epilepsy when I was 9 years old, when I found this out people such as family, friends and school were concerned. They all wondered if my condition would limit what I was... Emily Redcar
This year, I’ll be putting myself through the pain and strain of running my second (!) London Marathon in aid of Epilepsy Action. Epilepsy is very close to my heart with my partner being a... Terri Maryan London	TRAPPED BUT STRONGER After 9 years of tests and trauma I was finally diagnosed with epilepsy 4 years ago. I constantly feel trapped, alone, with no one understanding my epilepsy, myself... Holly Cheltenham	This is my first marathon I decided to run the marathon as my long time friend and also my best man for my wedding had twins that were both diagnosed with epilepsy. He ran London last year raising... David Hall Winterton
This is my first London marathon and I am running for epilepsy as my brother has had the condition since birth. You can support Susan here:... Susan Ainscough Epilepsy Action Hero - London Marathon 2014	I am running London Marathon for Epilepsy Action as it is a charity close to my heart. They helped my sister, and family through her diagnosis of Epilepsy at the age of 21. They answered all of... Tanya Epilepsy Action Hero - London Marathon 2014	8 years ago next month my family lost my sister aged 29 leaving her 9 year old daughter to be brought up by my Mum. My sister had severe seizures on a daily basis which meant her quality of life... George Coombes London
This will be my 3rd London marathon, and this year I am raising money for Epilepsy Action. I know there are many worthy causes and with so many charities to donate to these days, it makes... Sandra Hewson Epilepsy Action Hero - London Marathon 2014	Last year my brother ran the London Marathon in order to raise awareness for epilepsy after his son had been suffering and was diagnosed in May 2011. So this year I figured it was my turn! ... Nigel Pinegar Epilepsy Action Hero - London Marathon 2014	On the 13th April this year I will be running my first and very last marathon! Epilepsy Action is a charity that's important to us as a family. Last year our youngest son, then 18 months... Helen Sainsbury Epilepsy Action Hero - London Marathon 2014
I will be running in the London marathon on behalf of Epilepsy Action for my dad who has epilepsy! He has suffered since he was a little boy and from a young age I had to deal with knowing... Charlotte Rayner Epilepsy Action Hero - London Marathon 2014	Why on earth am I doing to the London Marathon this year? Here's my story........ My son, Isaac, had his first epileptic seizure at the age of 2½ years old and was diagnosed with epilepsy.... Adrian Saint Epilepsy Action Hero - London Marathon 2014	Hi I'm 17 and was diagnosed with generalised epilepsy. My family and I have just come home from the hospital after my seizure of which I thought I had a broken nose, but all good news, no break, I... Catherine Towle Nottingham
My beautiful daughter Charlotte who's had epilepsy since she was 8. She is about to sit her GCSEs and wants to be a forensic psychologist. Go girl! Marianne Mortimer Salisbury	Mine looks like the train. Diagnosed last September I still hate not being able to drive. Today felt like an achievement as I got a train and a taxi to a conference. This time a year ago I wouldn'... Vicki Liverpool	Fanci is a Personal Trainer, NPC Bikini Competitor, volunteer cheer coach, model, and most importantly mother of 2 beautiful girls and wife for over 13 years. She has had epilepsy since she was 10... A'Lisha McKinney Fort Knox , KY