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My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I have beaten the majority of my NEAD (non epileptic attack disorder) , and despite my minor fits being frequent since December, I have gotten through my first year at A level, in comparison to my...

Hertfordshire

Recovering from the brain surgery 12yrs ago and becoming a social worker as a result

Northwich

Qualifying as a nurse

Bournemouth

Becoming a mummy & also having a short film made about myself to raise awareness of epilepsy.
I have had uncontrolled epilepsy since the age of 10 (both Tonic Clonic, once a week or...

Shrewsbury

Is that i have not had a seizure for 3 years .

whitley bay

One of my achievements as well as recieving my blackbelt which is currently featured on the epilepsy action National Epilepsy Week is starting up the Horncastle Epilepsy Support Group as i will...

Horncaastle

I got accepted to be a model in a London modelling studio, I was told I was very model material and had the facial bone structure of a model, I'm am travelling down to London of the 29th of May. I...

Jarrow

Proudly designing, creating and making beaded and chainmaille jewellery. The creativity came along with the epilepsy.... the proverbial silver lining

Alloa

Raising money for Epilepsy Action last year. I made up a 24 hour Creative Write-a-thon, where I asked friends and family to sponsor me to write as many short stories as I could in 24 hours. I...

Cardiff

My greatest achievement is winning the Challenge Cup in 2005, when Hull FC beat Leeds Rhinos at the final in Cardiff. I’m a professional rugby player for Hull FC. I’m 28 and live in Hull. I’m...

Challenge cup winner

My greatest ever achievement was taking part in an indoor sky dive.

I'm 10 years old I have had epilepsy since I was 6 years old, and thats when i had to go on medicine. I've now been told...

Indoor Skydive

...changing national policy, so Buccal Midazolam can be administered by social carers.

Our son Aaron was diagnosed with refractorial epilepsy on 2 June 2004. Aaron was on three AEDs and...

Campaigned and saved lives

...qualifying as a social worker. I qualified in 2004 and I now manage a team of social workers. I was diagnosed with epilepsy at 19 years old. My epilepsy has driven me to do things I would never...

Julie qualified as a social worker.

…being a “stay-at-home Dad”.

I stay at home to look after both of my small girls because of my epilepsy. There is no way that I would have been brave enough to have given up work to take...

Mark is a 'stay-at-home Dad'!

...writing a play.

I have written a play where the main character has tonic clonic epilepsy and has a major seizure onstage and all the aftermath of confusion, repetition, etc.

A...

Clair has written a play.

...completing my Masters degree, despite surgery.

The title of my degree is 'Digital Art and Technology', it’s an MRes. I haven't gained the qualification yet, but I have just about...

Completed his Masters degree, despite surgery.

...climbing Kilimanjaro. I've been an epileptic since I was 17 following an accident playing rugby. I'm now 45 and in all that time my greatest achievement has to be when I completed a sponsored...

Climbed Kilimajaro

...never letting my epilepsy stop me. After being seizure free for more than twenty years, I did not have many achievements. Then I suddenly started having seizures again. In that time I have made...

My greatest achievement is a happy family. I was diagnosed with epilepsy after having a foramen magnum decompression surgery for a chiari 1 malformation in March 2010. Tonic Clonic and Absent...

It's twins

...not letting epilepsy get in the way of anything I plan to do. I'm Lauren, I'm 24 and from Liverpool. I was diagnosed when I was 19, just after I finished my first year of University. I didn't...

Amsterdam

Having a happy life.

Looking back on life there have been many ups and downs and epilepsy has manifested itself in a number of different ways. However, with good support, despite failing...

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