My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I had my first seizure at 15, and after a few more, was diagnosed last year at 16. Although my epilepsy isn't severe it has had an impact on my education- I missed two gcse exams last year and I'm...

Essex

This is a photo of my 3rd EEG. I was diagnosed at 15, still at boarding school. My roommate noticed my seizures first, and that's when it started. Inbetween revision for my first year of GCSE's I...

Bournemouth

Hello, my name is Joseph & im 14 years old. Doctors found out I was epileptic when I was just 3. Mum does a very good job looking after me, giving me my feed through my tummy tube & all of...

Crayford

I am currently studying HNC Photgraphy and decided having had health issues that led us down the path of investigations for epilepsy. That for My major unit I wanted to try and show what is often...

Livingston

Compared with some on this page, I've had it pretty easy with epilepsy. In fact, I've only had four seizures. Since I was diagnosed at 22, there's been very few times that my epilepsy hasn't been...

Leeds

When I was 7, I was diagnosed with Epilepsy. I had my first seizure without my family even knowing and I guess I didn't really know either, I just kind of woke up in the family study in the...

Lichfield

Age approximately 13 I had my first seizure. A tonic clonic, in the middle of the school day in front of all my friends. I came back round baffled, scared and more tired than I'd ever been;...

Scunthorpe

I have been struggling with epilepsy for 7 years. I was told by doctors when I was 10 that it was because I started a period. I had to go to the doctors at 11 because it was happening more...

This is my third year of having Idiopathic Epilepsy. When I was first diagnosed with Epilepsy I thought the worst and found it really difficult to cope with being in and out of hospital. I was...

Great Yarmouth

My name is Steve I'm 58 year old i had 2 mini strokes back in 2011 and i kept haveing what was though to be tias .One day last year i was in stroke clinic when i had fit and was diagnoed with...

Feltham

I was diagnosed with Photo-Sensitive Epilepsy in 2009, when I was 11 years old. Just a month before my 12th birthday. Before I was diagnosed I had underlying issues which the GP and the Optician...

Newcastle

I grew up with Epilepsy.
Some people laughed; some people had no idea what it was or what to do; only a few people helped when I fitted - but not enough people know what it is.
I can...

Milton Keynes

I never thought I would have a medical condition which made such an impact on my life. You see, to the naked eye, I am your normal 22 year old girl. The thing is, I have to take 6 tablets a day to...

Woking, Surrey

I was diagnosed with epilepsy when I was 9 years old, when I found this out people such as family, friends and school were concerned. They all wondered if my condition would limit what I was...

Redcar

This year, I’ll be putting myself through the pain and strain of running my second (!) London Marathon in aid of Epilepsy Action.

Epilepsy is very close to my heart with my partner being a...

London

TRAPPED BUT STRONGER

After 9 years of tests and trauma I was finally diagnosed with epilepsy 4 years ago. I constantly feel trapped, alone, with no one understanding my epilepsy, myself...

Cheltenham

This is my first marathon I decided to run the marathon as my long time friend and also my best man for my wedding had twins that were both diagnosed with epilepsy. He ran London last year raising...

Winterton

This is my first London marathon and I am running for epilepsy as my brother has had the condition since birth.

You can support Susan here:...

Epilepsy Action Hero - London Marathon 2014

I am running London Marathon for Epilepsy Action as it is a charity close to my heart. They helped my sister, and family through her diagnosis of Epilepsy at the age of 21. They answered all of...

Epilepsy Action Hero - London Marathon 2014

8 years ago next month my family lost my sister aged 29 leaving her 9 year old daughter to be brought up by my Mum. My sister had severe seizures on a daily basis which meant her quality of life...

London

This will be my 3rd London marathon, and this year I am raising money for Epilepsy Action.

I know there are many worthy causes and with so many charities to donate to these days, it makes...

Epilepsy Action Hero - London Marathon 2014

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