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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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My daughter aged 13 has just been diagnosed with Jeavons syndrome a rare epileptic condition. I would love anyone who has it or knows someone who has it to get in contact with me.
This is...

I was diagnosed with temporal lobe epilepsy when I was 69.
I had several seizures in Aand E and the whole experience was very frightening. I experienced dejavu and hallucinations. When I was...

In 2014 I had my first sezuire. I was 9 at the time. One break I came into the class library area and suddenly fell asleep, 2 other students were there, after break I was still asleep and didn’t...

* Trying to make the world a safer place for people with photosensitive epilepsy *

Hello, I’m Alex, a computer science student from Greece, the country of deep economic crisis

I...

I had my first seizure in the early morning of my 14th birthday. All I remember from that morning was a bright light in my eyes. A few weeks later I went to a sleep over & ended up having...

Ryan started having seizures as a young child, but went for five years without an official diagnosis of photosensitive epilepsy.

“It’s thought I developed my epilepsy as early as 7 but it...

Scotland

I was 12 when I was first diagnosed with Epilepsy. I am not 18 almost 19 and we still have not been able to find out why I have Epilepsy. It is hard for me because I have lost some memory do to my...

I went from being a normal 17 year old with the odd issue but I was doing okay in college and studying hard to being mistaken one day for someone else and due to that mistake I then started to get...

I was diagnosed with photosensitive epilepsy when I was 14, which really got me down for some time. I hated having seizures as they always made me feel awful afterwards, and each time I had one it...

London

I had my first seizure when I was around 8, I remember my mum telling me years later that they told my parents that I would grow out of it, as it was just a behaviour and attention seeking...

At the age of 17 just as I about to take “A-levels” I experienced a situation that was described at a nocturnal seizure. That was almost 60 years ago and little was known about what was happening...

27 years had epilepsy seeing a counselor and can't cope with it anymore. 2018 Dr Faulkner couldn't do anything my memory is going reading kids books to my dad see if I can read again . If any...

I was diagnosed with epilepsy when I was 15. If it wasn't hard enough being an average teen going through gcse's I had this to contend with. Back then it felt like such a blow. The doctors...

Steph attended our Trearddur Bay coffee and chat group and it changed her life. Find a local Epilepsy Action group near you this January....

Trearddur Bay

I was diagnosed when I was 19 and in the middle of University. The sudden unexpected diagnosis changed my life massively with the seizures was having daily. I suffered for a year, where all I can...

Years and years I have suffered with the condition of epilepsy, it took for my own mum to track down the medication called melatonin and make doctors listen and it worked for the rest of my teens...

I was diagnosed with epilepsy when I was 4 years old. However when I was a baby there was several incidents where my mum and dad suspected I had epilepsy. When I was first diagnosed I could have...

My name is Katie, this is my story of my Epilepsy Journey and how running has changed my life i want to share my story to try to raise as much awareness as possible and to also show what can be...

My whole life I have been through some hard times. But learning to live with epilepsy was definitely the hardest. I suffer from tonic clonic seizures and mine are life threatening. Which caused me...

I was diagnosed with epilepsy when i was 31years of age. Although it has been controlled for many years my conditions have worsened regardless of the fact that i am prescribed a phenomenal amount...

My story starts when I was 11, my first night in Disney world , every girls dream. I woke up, shouting ' I've got a nose bleed ' , didnt know what was going on! Running into the bathroom, starting...

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