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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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As a child at 10 years old I began to have seizures in bed, my first frightened me to death, well almost. I remember coming round in hospital the next day not knowing what had happened but I do...

Middlesbrough

12 year ago I was having unexplained ‘episodes’, following a heart monitor for 1 week, it was found my heart was stopping for up to 15 seconds. Therefore I was given a dual chambered pacemaker for...

Co Durham

Paul, 52, from Greenisland, Northern Ireland, was diagnosed with epilepsy ten years ago. His wife found him when he was having his first tonic-clonic seizure and had to call emergency services as...

Greenisland, Northern Ireland

I had my first seizure while in front of a computer screen, then nothing till two years later on the hottest day of 2019 which I think was caused by stress.

In my seizures I have to go to...

Norfolk

I'm Ojijo .M. Odhiambo from Kenya.Today , i'm going to talk about how epilepsy has affected my education journey.I'm a 4th year student pursuing Mechanical Engineering at The Technical University...

Nairobi - Kenya

My Epilepsy journey started when my close family and friends and also work colleagues had noticed me having absence/focal seizures (thought it was just anxiety) maybe twice a year since 2016..I...

Bexhill-On-Sea

I am Amy, I’m 23 from Hertfordshire and I have suffered from Epilepsy since November 2016.

I was completely seizure-free until I was 19 and suffered my first ever seizure. I still haven't...

Hertfordshire

“I had my first tonic clonic seizure in March 2018, when I was asleep in bed. I realised how serious things were when there were two paramedics standing over me in my bedroom putting an oxygen...

Northern Ireland

I was diagnosed when I was about 4 years old, it took doctors four years to diagnose me with Epilepsy.

I was having seizures off the bat and my neurologist was trying to figure out...

Roseanna has had epilepsy since she was 21. She has focal seizures that are caused by a scar on the temporal lobe of her brain. Her seizures are mostly controlled by medication now, but she says...

Enniskillen

Diagnosed with epilepsy at the age of nine.. after having nearly died due to the fact that a hit a Load of bricks after that never had a seizure my doctors thought I grew out of it.. but when I...

Cardiff

I had my first seizure when I was 4 years old. Since then it has come and gone, going up to 4 years without one. During my teens and 20's most seizures were caused by being careless. All being...

Norfolk

I was diagnosed with meningo encephalitis at the age of six weeks, and suffered a stroke on my left hand side.

I was prescribed Phenobarbitone for convulsions til I was eight years old. At...

Ipswich

My first seizure began somewhere around 2013.

It was a hot summer day, around 12pm, at a seafood restaurant, that my friends saw me lift the table throwing all our food to the floor and...

Texas

If only
If only you could be in my shoes and feel my pain

If only I could take my children out and not have to wait

If only I didn’t have this dizziness and shakiness and...

Bicester

I started having seizures in 2015, when I was at uni studying marine biology. At the time it put a downer on things, as it stopped me from being able to dive. I thought I was never going to become...

I posted this at another article and thought I could put it here too.

The comment in the article said that epilepsy medication rarely effects suicide thoughts but I think that is false and...

michigan

I new zero about epilepsy as a child! As i got to about 19 (1969) my life started to go wrong. I had headaches of a different type, they were so painful i could not go to work or get out of bed....

London

I cannot really remember a time when I didn't have epilepsy. I started having seizures when I was 5, partial seizures which were pretty unpredictable. But it was part of my 'normal'. I did...

When I was about 21 I started to have very vivid deja vu; to the point where it repeated in my head for minutes. At the time I was confused but thought, it’s normal everyone gets it. Then it got...

Scotland/New Zealand

I started off having seizures at 15 years old; I didn’t know what they were at first and neither did my local GP until he referred me to a neurologist at Stepping Hill hospital.

My seizures...

Cheshire

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