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of everyone affected by epilepsy

 

My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

Most recent | Most read

Hello.

My Epilepsy story began in 2003 when I suffered a serious head injury, although the symptoms didn't start to appear until a couple of years later in 2005.
I can't remember...

Keighley

My name is Christina Marshall, and I was diagnosed with epilepsy at the age of 14. I was heartbroken when I received the news because my life became completely different. I had no support from...

London

Hi I'm Lucy. I first found out about my epilepsy at the age of 15. My firat seizure was when I had a friend stopping over at my house. I didn't know that I had a seizure untill I cane round. I've...

Wolverhampton

Hi, my name is Fraser and first became aware of my epilepsy 24 yrs ago after I was attacked walking home one night. The seizures caused by tiredness and stress changed from nocturnal to daytime...

Epsom

I was diagnosed with epilepsy in my early 20's just weeks after getting engaged. It was a difficult time for both of us, but with an upcoming wedding, I concentrated on that rather that the...

Derby

My epilepsy history in 200 words will be challenging! I could write 200 words on my first seizure!
I had my first seizure at the age of 13. To this day we have no idea why! My seizures have...

Epilepsy has made life difficult. I was first diagnosed with Epilepsy when I was 14, I'm 21 now. Being a young girl and hearing that diagnosis is extremely difficult to deal with.

The day...

Walsall

I was diagnosed with Epilepsy in 2006, at the age of 10 years old. During my last year of primary school, looking forward to my high school years. And from then on all, all that has done has...

Barratt

I've had seizures since I was 9 months old. Mum was constantly being told they were breath holding attacks or just the temperature during summers. I've had them on and off ever since. I'm now...

Swaffham

I was diagnosed with Epilepsy at the young age of 12, just going into my first year of secondary school. I remember sleeping in the living room with my mum and the next thing I knew I was in the...

Wellingborough

Imagine you’re sat in a cafe with friends,
Enjoying your coffee, pouring over the latest trends,

Everything is fine, normal is how you feel,
No one would look at you and think...

Bristol

Brain and Tissue Donor
hopefully donate their Brain and Tissue after they pass away. After having epilepsy since 1979 when I was three years old i thought i really would like to look into it...

Lincolnshire

I found out I had epilepsy when I was 9, so I’ve had it for 11 years now.

It all started out when I was just having blackouts, absence seizures, no-one thought anything of it as my dad...

Derby

I'm Ruth and this is my daughter Starla. We both have epilepsy. I was diagnosed at the age of five. But I've found Starla’s diagnosis difficult to deal with.

After living with epilepsy my...

Hi. I'm Kirstin and this is my daughter Esme. She has absence seizures and photosensitive epilepsy. This can sometimes make her extremely tired, lose concentration, or bring on headaches and...

Hello. I’m Barbara. Epilepsy has dominated much of my life and that of my family. I developed the condition aged 10 and I was teased throughout my school years. I was also told I'd never follow my...

North London

I’m Jane. When I was diagnosed with epilepsy in 2012, it was a condition I knew almost nothing about. Because of this I felt very embarrassed by my epilepsy and actually a little ashamed.

I...

Edinburgh

I am 50yrs old & I have had complex partial epilepsy of the right temporal lobe since my very early 20's. Despite my VNS implant (first one fitted in 2006 & replaced in 2013) &...

Woodhall Spa, Lincs

My story about childhood epilepsy,
I remember going up to my new middle school 11 years ago (24 now) at 13 I didn't understand what was happening. I would just go into a daze, spill drinks...

Brandon, Suffolk

Hello everyone my name is Matthew Jackson and I’m 21 years of age and I have had epilepsy since the age 11 I had first ever epilepsy seizure when I was 12 i broken my left foot. At first they didn...

Leeds

My name is Andrew Jackson and i have had epilepsy for 39 years since the age of 3 years old through having measles. Nine years ago i had a very serious and life threatening seizure known as Status...

Lincoln

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