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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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Jon shared his story with us for Volunteers' Week 2017. Find out more about volunteering for epilepsy Action.

Jon volunteers for Epilepsy Action because his son,...

Gabriel shared his story with us for Volunteers' Week 2017. Find out more about volunteering for Epilepsy Action.

I helped out at the Bradford 10k by giving water...

Bradford

Hi my name is Kate I'm 34 and I have been off my medication for a year now after being on it 20 years.

I am seizure free for around ten years. I have had the worst time of my life as I lost...

Stafford

Cathy shared his story with us for Volunteers' Week 2017. Find out more about volunteering for epilepsy Action.

Cathy set up the Epilepsy Action coffee and chat...

Maureen shared his story with us for Volunteers' Week 2017. Find out more about volunteering for epilepsy Action.

Maureen runs the successful Epilepsy Action Coffee...

Jane shared his story with us for Volunteers' Week 2017. Find out more about volunteering for epilepsy Action.

Jane Riley currently volunteers as a member of...

Kenny shared his story with us for Volunteers' Week 2017. Find out more about volunteering for Epilepsy Action.

As an Epilepsy Action Accredited Volunteer, Kenny...

In the prime of my life at the age of 22 my life was turned upside down when I started experiencing partial and tonic clinic seizures. After months of tests including neurological, heart and nerve...

Brisbane, Australia

Most people don't understand what epilepsy is all about, some think you have a 'fit' oh poor you have a cup of tea or a glass of water and you can get on with your day, this is so far from what...

Bracknell Berkshire

I had just graduated from university in 2005, I was hoping to move on to a teacher qualification when my had my first tonic clonic seizure. It didn't stop me and went back to university in the...

Croydon

My epilepsy came totally out of the blue in 2009 with a tonic clonic seizure after just getting out of my car. Thankful since then I've only ever had one more 'big' seizure. Since then I was...

Newcastle upon Tyne

Most people don't understand what epilepsy is all about, some think you have a 'fit' oh poor you have a cup of tea or a glass of water and you can get on with your day, this is so far from what...

Bracknell Berkshire

I've been having seizures for as long as I can remember. My earliest memory is around age 3 when I had a seizure at a friend's house. Nobody was around when it took place and as scary as it was, I...

Boston, USA

Dani shared her story for National Epilepsy Week 2017.

When you have epilepsy it is often the reaction of other people that can cause the most anxiety...

My name is Rhiannon. I was diagnosed with tuberous sclerosis at 18months. From ages 0-18 months doctors thought I was having fibrile convulsions (seizures caused by change of body temperature). It...

Leeds

My name is Alice and I was first diagnosed with epilepsy just before I sat my GCSEs at school. I suffer from simple and complex partial seizures, which as people who have been exposed to epilepsy...

Nottingham

I was diagnosed with Juvenile Absence Epilepsy when I was 12. I had, for a long time before this, been told that I was a day-dreamer and never paid attention. Turned out it wasn't daydreams but...

Dartford

Chris and Sam shared their story for National Epilepsy Week 2017

Their story shows how people with epilepsy can be affected by the current benefits assessment processes. This has already...

I was diagnosed with epilepsy at the age of 14 and am now 22 years old. Naturally there’s been some horrible sides to having this illness, I’ve been admitted to hospital countless times, spent...

Manchester

Daniel shared his story for National Epilepsy Week 2017

Daniel was first diagnosed with epilepsy when he was seven years old. He has a mixture of seizures, including tonic clonic where he...

West London

Hi, I was only 19yrs old when my world fell apart.
Back in 1979 a normal warm still summers day in September. I decided to go for a 3 mile bike ride. A car pulled out from a T- Juntion, the...

Penzance

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