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My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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Years and years I have suffered with the condition of epilepsy, it took for my own mum to track down the medication called melatonin and make doctors listen and it worked for the rest of my teens...

I was diagnosed when I was 19 and in the middle of University. The sudden unexpected diagnosis changed my life massively with the seizures was having daily. I suffered for a year, where all I can...

My whole life I have been through some hard times. But learning to live with epilepsy was definitely the hardest. I suffer from tonic clonic seizures and mine are life threatening. Which caused me...

One of my achievements as well as recieving my blackbelt which is currently featured on the epilepsy action National Epilepsy Week is starting up the Horncastle Epilepsy Support Group as i will...

Horncaastle

I was diagnosed with epilepsy when I was 4 years old. However when I was a baby there was several incidents where my mum and dad suspected I had epilepsy. When I was first diagnosed I could have...

I was halfway through my first year of medical school when I had my first seizure. Eight months later I was diagnosed with Temporal Lobe Epilepsy – the day after my 20th birthday.
I went...

I was diagnosed with epilepsy when i was 31years of age. Although it has been controlled for many years my conditions have worsened regardless of the fact that i am prescribed a phenomenal amount...

Gemma was diagnosed with epilepsy in her twenties after many years of seizures. She is prone to falling and this, together with the fear and reality of generalised seizures, has a huge impact on...

Chelmsford

It’s not a particularly long story but its one I want to share. My whole life has been spent active doing sports and competing and generally living a healthy lifestyle, Ive always been one who...

Buckinghamshire

I began having absence seizures when I was 16. I didn’t know that’s what they were until I started driving. When I have a seizure I become very disorientated, I stare and they make me drool. I get...

Passing my cache level 2 in pre school practice and having my two lovely boys

Northampton

This is my third year of having Idiopathic Epilepsy. When I was first diagnosed with Epilepsy I thought the worst and found it really difficult to cope with being in and out of hospital. I was...

Great Yarmouth

Hello my name is rebecca and i am 16 and i have had epilepsy for 13 years. my whole life infact, to all those out  there who have had epilepsy from the day they were born than i tell you do...

lowestoft

It started as any normal day,
You had to change it, turn it grey
Pessimistically wanting it your way
And making sure that I had no say.

Quietly I was sitting, then a pain...

Newcastle Upon Tyne

My name is Alice and I was first diagnosed with epilepsy just before I sat my GCSEs at school. I suffer from simple and complex partial seizures, which as people who have been exposed to epilepsy...

Nottingham

I had my first seizure when I was 14 years old; I'd never learnt what epilepsy was in the secondary school I attended so it scared me a lot when they kept happening on a daily basis and I couldn't...

Stockport

I have always struggled with feeling groggy and tired and have gone to the doctors in the past with answers only telling me it was normal for teenagers. However the morning after my 22nd birthday...

Cheltenham

Running the Royal Parks Half Marathon for Epilepsy Action in 2009 - despite having seizures every few weeks and being rather heavy for a long distance runner, it really was an amazing feeling to...

Forest Hill

This is a poem that Karen wrote for her daughter Poppy

My little girl has seizures
She has lots of them each day
The only hope I have is
One day they'll go away

She could...

Graphic designer, Gavin is running the marathon for the first time. “I have proudly been selected to be part of the ‘Action Heroes Team’ to run for the nationwide charity. Out of 40,000 runners, I...

Tavistock

I was diagnosed with temporal lobe epilepsy a couple of weeks after my 40th birthday in 2011 when, completely out of the blue, I experienced a huge seizure at my desk at work.

Following two...

Croydon

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