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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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Hi my name is Emma. Age 23 (24 in July) My first seizure was when I was baby. From then to age 13 no seizures at all, but when my grandad died it started coming back and have been having seizures...

Angel was diagnosed with epilepsy when she was 14, nearly four years ago. She has had very mixed experiences in public.

“My seizures are usually once a month and can be triggered by stress...

"I was at the gym a few weeks ago doing an early morning spin class with my manager from work. At some point during the workout I realised I had no idea of how I got to the gym and couldn't recall...

Flintshire

Tell us more about the day you had a seizure in public while pregnant and what a difference someone helping made to you.

6th March 2015 remains the worst...

“One time I had a seizure on the platform at London Bridge. Luckily, a member of the public was able to catch me as I was about to fall in my tonic clinic seizure. They protected my head,...

West London

Becky’s first seizure happened in February 2018 when her son found her on the bedroom floor. Medical tests came back inconclusive and she was told it was a one- off. Six months later, Becky was...

I was first diagnosed with epilepsy at the age of 14.
I was terrified when I came round in the ambulance, convinced I was going to die.
The first anti-convulsant I was put on was...

For Volunteers' Week 2018 we are celebrating the fantastic people that help us make a difference every day. Katie is from Leeds. She has been volunteering for Epilepsy Action for 2 years in the...

Leeds

Kenny shared his story with us for Volunteers' Week 2017. Find out more about volunteering for Epilepsy Action.

As an Epilepsy Action Accredited Volunteer, Kenny...

I experienced a traumatic brain injury aged 4 with resultant physical symptoms. I was given barbiturates. Until the age of 20 I continued to experience myclonic and generalised physical symptoms;...

Following a 10 hours of life saving Craniotomy surgery in Sept 2001, and a follow up op in Dec 2001, I'd spent the next 5 or so years rehabbing, living as normal life as i could with an 11 inch...

Hi, my name is Nicole, I am 17 years old. I have suffer from photosensitive epilepsy for almost 12 years now.

I had my first seizure when I was 6 to 7 years old in elementary school. I kept...

Dr Daniel Hindley works at Bolton Foundation Trust. A paediatric consultant and clinical lead in community paediatrics, he has interests in childhood epilepsy and neurodisability...

Aislinn Carlile volunteers for the Epilepsy Action Ballynahinch coffee and chat group in Northern Ireland. Located in a rural area, the group gives people affected by epilepsy a much-needed...

Passing my cache level 2 in pre school practice and having my two lovely boys

Northampton

This is my third year of having Idiopathic Epilepsy. When I was first diagnosed with Epilepsy I thought the worst and found it really difficult to cope with being in and out of hospital. I was...

Great Yarmouth

Hello my name is rebecca and i am 16 and i have had epilepsy for 13 years. my whole life infact, to all those out  there who have had epilepsy from the day they were born than i tell you do...

lowestoft

It started as any normal day,
You had to change it, turn it grey
Pessimistically wanting it your way
And making sure that I had no say.

Quietly I was sitting, then a pain...

Newcastle Upon Tyne

Gemma was diagnosed with epilepsy in her twenties after many years of seizures. She is prone to falling and this, together with the fear and reality of generalised seizures, has a huge impact on...

Chelmsford

It’s not a particularly long story but its one I want to share. My whole life has been spent active doing sports and competing and generally living a healthy lifestyle, Ive always been one who...

Buckinghamshire

As it is National Epilepsy Week 14th - 20th May I have been asked to write a few words about Epilepsy by my friend Louisa. More because she is fascinated by it,but also bcause of what Sky is doing...

Sheffield

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