My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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When I was born I was breach and suffered brain damage due to forceps delivery. My parents were told I would not live due to suffering Sub-Dural Brain Haemorrage or would be mentally handicapped...

York

...gaining a blackbelt in Taekwondo. When i was at school i had a complete lack of co-ordination and confidence due to epilepsy and my mother and father took us to alton towers as a treat in 1990...

Andy gained a blackbelt in Taekwondo

What I wish I could still say...

I've written here many times throughout the last 6 years but not so much recently because I'm fine and seizure free but actually today I realised there are...

Halifax

When I was 14 I was constantly having seizures I was so confused at the time because so many doctors were telling me so many different things when the doctors finally told me I have epilepsy I...

London

I was diagnosed with temporal lobe epilepsy when I was 18 years old. I live with simple partial seizures and tonic clonic seizures. My tonic clonic seizures have reduced from daily to an average...

Rotherham

Jane writes about her son Matt:

Matt is a strapping 24 year old, 6 foot man with a zest for life. Matt is very sporty and has always liked to keep himself fit. He is a natural sportsman and...

Life is what happens when you are busy making plans.. (or cancelling plans it seems at the moment)
Christmas and New Year is often a time most come to reflect and that doesn't exclude me....

When I was 12 I was on holiday with my family in Turkey.

On the first day I went back to the room to get some more sun cream and I went to sit on the end of the bed then the next thing I...

Wirral

Hello. I am British & of Indian ethnicity. I was diagnosed with Epilepsy since childhood, i was about 7 years old and i am now 33.

When i was younger i did not have any knowledge about...

Sandwell, UK

My son Kai was born with Tuberous Sclerosis Complex and epilepsy due to his tsc. Kai had his first seizure at 4 months old. He had 3 brain operations and went onto a drug trial to help reduce his...

I mainly have focal seizures but used to tonic clonic seizures too. However, they seem to have gone away now. The difficult thing for me is that my seizures happen with no aura, so I have no...

Guildford, Surrey

I’m Amy, I’m 18, and I’m from Southampton. My epilepsy journey has been a roller coaster, I will tell you that!

At 14, one day out of nowhere my eyes went into the back of my head. I was...

Southampton

...completing my Masters degree, despite surgery.

The title of my degree is 'Digital Art and Technology', it’s an MRes. I haven't gained the qualification yet, but I have just about...

Completed his Masters degree, despite surgery.

I was diagnosed with epilepsy when i was 6months old. I recovered at the age of 11 but it came back at my final year in high school, back in 2015. It was a bad year for me in that I lost my...

Nairobi - Kenya

I was diagnosed with juvenile myoclonic epilepsy (JME) when I was about 20 years old. Since then, I have been prescribed several anti-epilepsy drugs to help control my seizures. The first drug I...

I developed epilepsy when I was 17. One night I randomly had a grand mal seizure in the middle of the night and my family called for paramedics. I was taken to hospital and had another seizure...

Newcastle upon Tyne

I had my first tonic clonic seizure when I was 18, in the middle of my A levels. The (now familiar) sequence of confusion and exhaustion occurred for the first time during a college trip to Rome (...

London

My amazing epilepsy specialist nurse is Helen Hodgson, at Southmead Hospital in Bristol, England.

For only 20 minutes every week, a patient of Helen Hodgson's would reveal the most...

Bristol

I had my first seizure when I was 14 years old; I'd never learnt what epilepsy was in the secondary school I attended so it scared me a lot when they kept happening on a daily basis and I couldn't...

Stockport

Hi Everyone, my is Joseph and i suffer from Epilepsy since birth. My seizure was at the age of 9 months. I am 25 years old now and I have tried all the medicine but non have worked. When I was in...

London

I've had Epilepsy and a damaged memory since 1982 and tried many medications. None gave me the self control I now have. I'm becoming more aware of warnings since using a VNS device. Doing a few...

Tunbridge Wells

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