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of everyone affected by epilepsy

 

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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Looking back, despite our research, we were quite naive when planning to have our first child. No one was overly concerned that I was taking sodium valproate. At 20 weeks, I had the normal scan -...

From the age 14, I'd get ready for school in the morning and have a cup of tea. My arm would jerk slightly. I thought it was normal. I just carried on with my day.

That happened for years...

Chesterfield

In 2014 I had my first sezuire. I was 9 at the time. One break I came into the class library area and suddenly fell asleep, 2 other students were there, after break I was still asleep and didn’t...

I was on dla for 19 years then it changed to pip system. Since then we got refused via the assessment as they didn’t apply bye the law that the upper tribunal made in 2017 to do with mobility and...

Leicestershire

Planning

When I was diagnosed in 2008 my symptoms were quite severe. I wasn't able to work and day-to-day tasks were a struggle. At this point I thought I might never be...

I was diagnosed with temporal lobe epilepsy when I was seven years old. My parents never made an issue out of it and I was always allowed to do things that I was safe to do. Until the age of 21, I...

I was born with epilepsy and always was having seizures, and as I've grew up my seizures got worse, and after being on more than 3 different types of medicine for my type of epilepsy to try and...

Planning

I did not have any pre-conception counselling before I fell pregnant with my first child. Louie was a surprise!

As soon as I found out that I was pregnant I...

Gemma was diagnosed with epilepsy in her twenties after many years of seizures. She is prone to falling and this, together with the fear and reality of generalised seizures, has a huge impact on...

Chelmsford

I’m Daisy, I’m 10 years old and was recently diagnosed with absence seizures.

Having epilepsy is really hard, especially when you're a child since you can’t do as many things on your own...

Kentish Town

I'm a 37 year old teacher and I have had diagnosed epilepsy for about 20 years.

I was originally told I had JME (juvenile myclonic epilepsy) and it had been well controlled by Keppra for...

Hornchurch, Essex

Despite have meningitis at 8 months, which left me with right temporal lobe epilepsy, I have graduated three times (Hons Degree Chemistry, MSc Waste Management and PhD). I underwent a partial...

Stewarton, Kilmarnock

My son Kai was born with Tuberous Sclerosis Complex and epilepsy due to his tsc. Kai had his first seizure at 4 months old. He had 3 brain operations and went onto a drug trial to help reduce his...

I have been having seizures for around ten years now, my husband, family and friends are all aware of the procedure should they witness me having a seizure.

My little girl Esme has recently...

Derbyshire

...never letting my epilepsy stop me.

After being seizure free for more than twenty years, I did not have many achievements. Then I suddenly started having seizures again. In that time I...

"2016 will be 10 years (+1 day!) since I ran my first marathon, a lot has happened since then."

Lizzie has epilepsy. She had her first tonic-clonic seizure in 2010 while...

I've had Epilepsy and a damaged memory since 1982 and tried many medications. None gave me the self control I now have. I'm becoming more aware of warnings since using a VNS device. Doing a few...

Tunbridge Wells

Hi Everyone, my is Joseph and i suffer from Epilepsy since birth. My seizure was at the age of 9 months. I am 25 years old now and I have tried all the medicine but non have worked. When I was in...

London

Stevie was diagnosed with epilepsy when he was 13. Today, aged 22, his seizures remain uncontrolled. Stevie’s family describe the highs of watching their son play rugby with Dad. And the heart-...

Nansi Thomas is five and has temporal lobe epilepsy, having several seizures day and night. She was finally diagnosed at the age of three after a long time of suspected epilepsy.  Nansi’s...

Planning

About a year before I became pregnant, I read something about the contraceptive pill interacting with my anti-epileptic drug (AED), lamotrigine. After yet another...

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